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What difference does that make? When checking for Parkinsons doctors do everything from physical tests in their office to questionnaires to asking spouses about behaviour from REM behaviour disorder (acting out dreams, very common in Parkinsons, often a precursor for future Parkinsons if the...

Indeed. But we do have measurable abnormalities as well (while we are alive which is even better, though a small percentage of Parkinsons patients can have measurable abnormalities also while alive) but the PACErs are not ready to give up their lies so we are going to need a disease mechanism to...

I know a great deal about Parkinsons and its universe so while i am not a doctor i can attest to what kind of treatment they receive compared to what we do. Nobody suggests what they have is psychosomatic and while the alpha synuclein killing brain cells in the substantia nigra is only a theory...

3 patients only?

When people deny reality then anything is effective, even witchcraft :emoji_face_palm: Since PACE is their claim to legitimacy and its a fraud they have nothing. And of course they have nothing, they are denying reality and selling blatant lies :emoji_face_palm:

The Canadian Consensus Criteria and the proposed International Consensus Criteria require PEM and they supersede the Oxford criteria which has been proven to include depression (though i don't have a reference handy). It may be worth asking them why they want to use obsolete criteria to have...

Its a divide and conquer tactic, as you say if it works for some and all have the same disease then it would work for all. Its also a way to alleviate cognitive dissonance, avoiding the need to reject what was previously gospel.

Ah, i had no idea her current severity :( The video conference idea (if she is interested) would probably work much better then.

This is a crazy idea but has anyone asked Karina Hansen if she would be willing to fly to Manhattan to the protest to speak? There would be cost and crashing involved but a thought Maybe a video conference with a giant screen and a high powered sound system instead?

Yes things can be found in autopsies and yes we do have measurable abnormalities. We don't even need to be dead to have measurable abnormalities. From many immune abnormalities to exercise tests to high specificity questionnaires to tease out ME form people with other diseases (there was a...

Moderator note: This thread has been split from this thread: Petition: Per Fink Should Not Spread Lies about ME at Columbia University! We have no biomarker for Parkinsons disease, the is no proven disease mechanism and diagnostic tests are mostly to rule out other diseases. MRIs and spect...

If Fink is welcome to help harm us why are they not hosting anti vaxers, homeopaths and phrenologists?

I missed this thread when it was posted but this is very good news. If it were also accredited in Canada that would be great :)

That makes a lot of sense now, he mentioned names that people would not know unless they watched the movie and i wondered why some things had implied context from Unrest so i get it now. That is awesome, my GP recently retired and i got a new graduate as a replacement who knew nothing about ME...

We need to have eternal vigilance to prevent "scientific" organizations from screwing us over by believing lies and not looking into the most modern science... :emoji_face_palm: I look forward to the day this is no longer an issue and we can trust scientific organizations to be scientific. All...

When your a hammer everything is a nail :eek:

I can't cognitively read the webpage but since sexual harassment and abuse are unfortunately common in our society many CFS patients will have this in their past. And if you cherry pick something carefully enough you can build houses of cards. PACE was built on nonsense and believing discredited...

Its a nice theory but i am unconvinced.

Well made video, though a couple references to the movie make it ideal to watch Unrest first My suggestion would have been to edit those out and reword it a bit so watching it would be unnecessary, though it already mostly is unnecessary.

https://www.npr.org/sections/health-shots/2018/10/10/654445929/when-icu-delirium-leads-to-symptoms-of-dementia-after-discharge