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Thats reasonable

Basically this. Someone once said half of what you learn in medical school will later be proven wrong (and i wish someone had told me which half). @Jonathan Edwards If we apply your standard of only whats been conclusively proven or a disease mechanism (and how do we set this standard, a...

So i am a bit confused then, you already have a detailed document about ME/CFS, at most it might need an update?

Perhaps, but if Commander Data offers to write MEpedia for us i'm sure we would all be overjoyed. I could also use his help on an unrelated ME/CFS piece i am working on. :D

Good to know Request sent

I think this is a great idea, i had thought about something after the Montreal conference but didn't do much about it beyond that. There is a journal of CFS that shut down some years ago and it seems current research is published in many different places. One thing that is worth bearing in mind...

Good idea but i think we should start with the LOLcat ME/CFS bible and move on to creating the LOLcat ME/CFS diagnosis criteria.

Thanks for the links but its the same problem, with my cognitive dysfunction i can't digest those anymore. I can retrieve information i already know, i can do some logic, i can explain some things but i can't comprehend complicated articles, long articles, books or easily read flyers anymore. My...

I've done a few edits and have a few in mind but starting new pages was tricky, i don't get how to do the styling. The page you linked above is too complicated for me to digest so its probably best i just stick to some edits here and there.

I agree but tinkering on the edges is small potatoes. As a slight aside i have been taking a new supplement that has made some small improvements, i was of course happy but compared to my condition a year ago its a very small victory and i continue to progress so the improvement will be wiped...

I assume they have a procedure in place already which they are quite attached to. It would be interesting to get a copy of it A better procedure would be what tests should be run to rule out other diseases and best practices currently in ME/CFS treatment. This would ensure profit to them and get...

Thank you :)

Okay so lets figure out the angle and work on it

Done :)

This is probably the best way to deal with acceptance of lies, negative press. Lots and lots and lots of negative press.

But we can make the same argument in regards to heart disease or ulcers, continuing to claim its caused by stress brings them money in since it would keep failing. In general money is the deciding factor in many things but i don't think this is one of those times, this is probably a rare...

I seem to recall @JenB saying there was some exclusivity detail as part of being on Netflix so i would not be surprised if its not legitimate :( That said i really don't know

I don't think this is directly about profit, i suspect they are wedded to the view they already have and admitting its wrong plus moving into something different and less "certain" is "risky then whats comfortable and "appears" to work. Of course there is some cost involved in rewriting their...

So they believe in CBT/GET and facts don't matter because they have some unreliable anecdotal evidence that takes precedence over reality. The patients of their's that claim improvement are just appeasing them or using energy to get through the program and paying for it later (or in disease...

I only skimmed the article but it seems every time something comes in vogue its linked to everything big and the correlation hunting begins... I remember thinking about this a bit many years ago but filed it away and i think Dr Edwards said something to this effect in the enterovirus thread...