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  1. Alvin

    Simon Wessely: ‘ECT is in my own advance directive’

    Kill brain cells until people stop complaining and are more compliant. It has a storied past in the US and is still rather commonly used...
  2. Alvin

    David Tuller: Trial By Error: My Letter to Red Whale/GP Update

    Still playing both sides... :emoji_face_palm:
  3. Alvin

    GETSET letters in The Lancet

    Are you sure? https://www.space.com/20948-moon-property-ownership.html
  4. Alvin

    Europe: EUROMENE

    I also think it should be embraced but perhaps they need to have membership requirements that exclude psychosomatic nonsense.
  5. Alvin

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Indeed, by any chance do they have a legal obligation to not invent lies?
  6. Alvin

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Same here but even if i am unable to read them i know he is doing good on our behalf :)
  7. Alvin

    Discussion - Does ME involve brain inflammation?

    In that case if we can't show this is the case we should abandon the theory that neuroinflammation is the cause of depression. I can't see this happening...
  8. Alvin

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    This wasn't a case of disagreement in good faith, this was bad faith by whoever at the hospital was trying to take rights away from the patient and their family without the family doing anything wrong. I agree but there is a big difference from quackery to medical disagreement. The Mayo case...
  9. Alvin

    Discussion - Does ME involve brain inflammation?

    This sentence leads to this question, one of the current theories is that depression is caused by neuroinflammation, what are your thoughts on this (afaik it does not show up on MRI)
  10. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    Does it need to be a whole page?
  11. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    I look at it as a sum of all forces, if people are worse off over time then they have progressed. The mechanism is not well understood, is all progression from overdoing it into PEM, would it progress on its own if patients were diagnosed the day after they got ME/CFS and told to never go into...
  12. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    Not a cheap price, but not completely insane. It does not have to be a booklet, an advertisement or editorial might be good enough? Would a paper include it if it was sent as a letter to the editor (do they still do that)?
  13. Alvin

    David Tuller: Trial by Error: Open Letter to The Lancet, version 3.0

    How much would it cost to publish this in the the UK's most read newspaper?
  14. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    I see. If i had been asked 10 years ago i would have said i was rather static, the decline was very slow and hard to notice but for much later hindsight (unfortunately), but if you asked me today my last 7 years has been very downhill :( I can't read it, i lack the cognitive ability to get...
  15. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    This is very interesting. What kind of timeframe did they study for disease duration? Also were they able to define patients that said they were fine but had reduced their activity to levels to fit their capabilities, i recall there was discussion or paper on this (does this ring a bell for...
  16. Alvin

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    I'm not familiar with that one but the christian right is not an ally you typically want.
  17. Alvin

    CNN: Escape from the Mayo Clinic: Parents break teen out of world-famous hospital

    This is insane. I do want to know why they did this, there has to be some reason they would go out of their way to torment a family and try to kidnap a patient. It could be as simple as a doctor who feels aggrieved but it merits a full investigation IMO
  18. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    Of course, thats why i called it informal. I wish it was not progressive "except for a minority" but starting with the conclusion that its not progressive except some then constantly moving the goalposts to maintain that conclusion is not cutting the mustard. GET studies in general seem to find...
  19. Alvin

    Biomedical articles on MEpedia - purposes and pitfalls

    Indeed, it seems from the informal poll its a minority that do not progress instead of the other way round. And to get the results they wanted in PACE they had to ratchet down the recovery threshold, not keep it static...
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