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Tomorrow 1pm EST

Thats interesting, i found it useful but for a very different reason (at least this is my theory) When i was less severe it worked great because i was burning myself out hard but mostly recovering each time once the PEM passed, it helped the recovery. Now that i am more severe burning myself out...

I pretty much agree Its efficient but it will be used as evidence that we are the problem and they are the heroes. And they have the power and resources and influence (and mental/psychical capacity) so people will believe them over us :( Thats why we need to work carefully to not give them...

I was skimming the thread but stayed out of it till now. I like the idea of patients knowing what to expect in treatment an knowing about the real risks. But the goal of the PACErs is to beat us into submission, by calling us vexatious, militant, unscientific and so forth they hope to manipulate...

I am in the same boat, but trying to get an appointment with Dr Hyde (had one but was cancelled). I had a quick look at Dr Teitelbaum's website and my advice is don't waste your money. He seems to think he can treat or even cure ME/CFS and Fibromyalgia...

Is medical fraud a crime?

In women heart attacks are missed at a higher rate then in men, more then a little bit by dismissal of symptoms (and a bit because they differ slightly). Not to mention many diseases or just the fact doctors take women's complaints less seriously due to sexism (or belief in hysteria). There have...

That makes sense :( So we really do need to get PACE retracted in our case. But people who are harmed by heart attacks or cancer or other things because doctors listed to MUS would have a case but it would be twice removed because their doctor will have put into play a concept by other doctors...

In the UK can doctors lose their medical licenses by breaking their Hippocratic oath (assuming they take it)?

Indeed :( Perhaps we should write our own living with ME/CFS guide for patients.

Yes and also unnecessary ME progression, if i had known what i had years earlier and the real effects of progression i might still fairly functional today by pacing far better over my lifetime.

Very interesting

No response :emoji_face_palm: Try calling the clinic yourself and asking the secretary, i've sometimes had to do this to get the gears turning. Yes it is :( I would open a clinic myself (with crummy hours) but i suspect that would not be legally allowed. Plus not being an MD i can't write a...

Perhaps we should open our own clinic, between forum members we know more then most doctors about this condition :D That is infuriating. Is it worth hunting down a specialist who would be able to handle them?

I was looking for evidence to give to my doc about Naltrexone and struck out, i saw it on your link, its ok but a search after sorting out my inability to log in to medscape came up with this, the best reference i have found, so i owe you one. https://www.medscape.com/viewarticle/894020 I know...

I would guess they think its science based. PACE showed positive effect so they developed a program and using confirmation bias and patients being compliant "found" it works. There was no need to test it again scientifically because PACE did it for them. PACE is still on the books and given...

Its not?

Perhaps forum members should apply, we have unique personal insights into ME/CFS And we would be more effective then reality deniers (keep that part silent till after your hired). Since the goal is to get us back into paid work this is a grand opportunity to practice what they preach :rofl...

Alvin and swift rarely belong in the same sentence :laugh: But it can be arranged, though how does one create a surprise on an open forum?

We can only hope that is what happens :) Perhaps its worth asking him what happened to the money that was supposed to be used but was usurped since 1989(?) @Everyone Should we as a forum put together a get well card or something?