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  1. TiredSam

    Covid-19 vaccination experiences

    Had my second Pfizer Biontech about an hour ago. Was walking back to my car when I noticed a tingling/numbness on the right side of my face, which is still there. I've googled it and apparently it's a very rare side effect which usually passes. Also feeling very dopey, but that's nothing new and...
  2. TiredSam

    Anticholinergic syndrome after atropine overdose in a supposedly homeopathic solution: a case report

    As soon as I read the title of this thread I guessed it would be in Germany, and the paper is from Munich. Homeopathy is very popular here and not protected, so homeopathic remedies can have something or nothing or anything in them. Makes it difficult to argue "there's nothing in it" when a lot...
  3. TiredSam

    2021 Pan-Europe ME Patient Survey (EMEA)

    I'm much more confident translating German into English than I am translating English into German. I've always thought that "schwindlig" just meant dizzy, I didn't realise it was confined to vertigo. I thought Benommenheit had more to do with drowsiness, ie when you've been drinking. But it's...
  4. TiredSam

    The Lancet EiC (Richard Horton) honored as leading scientific and human rights voice at forefront of pandemic

    I expect Dr Richard Horton will be presenting Dr Anthony Fauci with an award soon enough, describing his “tireless and dedicated drive for advancing public health and social justice on an intergalactic level.” These people are worse than actors. Perhaps when they have finished being luvvies they...
  5. TiredSam

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    "At least slightly satisfied" sounds like a way of rebranding dissatisfaction. Conversely, anyone wanting a negative result could have added "at least one minor quibble" to their questionnaire and then say 90% had at least some reservations about their treatment. It's pathetic. How can this...
  6. TiredSam

    ME/CFS Doctors in Germany

    The most well-known example of that in Germany is Olaf Bodden, a former footballer, who came down with CFS in 1997 which finished his football career. He was improving but took Rituximab in 2013, after which he got much worse and ended up in a wheelchair. I've read that Dr Scheibenbogen at the...
  7. TiredSam

    ME/CFS Doctors in Germany

    Any genre you want, many doctors offer a pick 'n' mix of sciencey sounding stuff (unproven treatments / off-label medications with at best anecdotes or small dodgy studies to support them), lots of supplements (vitamin B12 injections etc are popular), to the more esoteric mindfulness / stress...
  8. TiredSam

    ME/CFS Doctors in Germany

    Moved posts That's a decision I've actually had to make, having lived with ME in Germany for the last 7 years. I've had a few ME/CFS docs recommended to me, some very well thought of by patients groups. Having checked them out (and I'd really love to find a good one), I've never found anything...
  9. TiredSam

    Odd leg symptom

    It went away.
  10. TiredSam

    Covid-19 vaccination experiences

    48 hours after my first Pfizer jab. No side effects. I took the day off afterwards and stayed on the sofa, felt a bit tired and groggy but that could have been anything - the excitement of the day before, allergies, the drop in temperature weatherwise etc etc. No headache or anything.
  11. TiredSam

    Understanding, is it necessary in every contact or friendship?

    I'm glad it's sorted out. Couple of general points: If anyone says "If you can do this, why can't you do that?" I just tell them that it's an extremely annoying question for someone trying to manage ME, and would they mind not asking me again. I just don't answer that question. If I find...
  12. TiredSam

    Covid-19 vaccination experiences

    Had my first Pfizer jab this evening. Turned up with all my documents proudly early for my 20:30 appointment, only to find a long line of people all the way down the street with a 20:30 appointment too. I had to stand in that line for over an hour. After half an hour I sat down (it's very hard...
  13. TiredSam

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    Why are these psychological impairments? Anxiety perhaps, but the others? Sadness is a normal emotion, testiness is what I feel when I'm hungry, and sleep disturbance can be due to restless legs or many other physical causes. Surely a better list of psychological impairments would be anxiety...
  14. TiredSam

    2021 John Maddox Prize, nominations are open until 14th June 2021

    I like to think of the John Maddox Prize as a satirical annual ceremony on a par with the Golden Raspberry Awards.
  15. TiredSam

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    My GP has put me in category 2, so I can expect to be vaccinated with the 75-79 year olds in a week or so (I'm 54, so would be way down the list otherwise). This was a pleasant surprise, I didn't apply for it, my wife phoned the GP and said "what category is my husband in?" and they said "ah...
  16. TiredSam

    BPS attempts at psychologizing Long Covid

    When my car is broken it doesn't stand up on one wheel. They seem to be using their lack of understanding of broken cars as an analogy for their lack of understanding of ME.
  17. TiredSam

    Trisha Greenhalgh on ME/CFS and Long Covid

    I don't know why people boast about getting death threats on twitter, it's hardly an achievement, anyone can do it. I reckon if I suddenly got the urge to receive a few death threats twitter is the place I'd go. I'd just foist some annoying opinions on people and wait. Can't beat a cesspit full...
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