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  1. TiredSam

    David Tuller: Trial By Error: The CFS/ME Research Collaborative Conference

    For a long time it was very frustrating that nobody, in a roomful of such bright people, thought to ask "Why, if that woman is so proudly standing up for science, has she got a big circle drawn around her feet?" So it's particularly satisfying to see her nose so thoroughly rubbed in it by...
  2. TiredSam

    Well-known, famous people with fibromyalgia

    When I was diagnosed I was told that there's no cure than there's nothing they can do for me. I was extremely impressed.
  3. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Ok come on own up, which one of you posed for the picture on the front cover? Calls it CFS/ME (always makes me nervous) quotes Fukuda criteria in the executive summary at the beginning. Oh good, only one more year to go then for me. I was reading through this and thought it was making some...
  4. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    I'm trying to distinguish between Esther Crawley's prevelance numbers and Rachel Hunter's cost of ME numbers. Both are shockingly large numbers which could be used for advocacy, but we'll have no truck with EC's number (Ron Davis was very quickly corrected by us when he referred to it), and are...
  5. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Here's a conundrum that's been exercising my mind. I'm interested in what others think. I accept that it's important to make the argument about the health costs of ME - both in terms of the costs to society (lost productivity rather than costs of non-existent or harmful treatment, which appear...
  6. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    Just watched the whole thing - originally to count all the "kind of"s (two in the first 20 seconds), "actually"s, "obviously"s, "err"s, but I got bored with that. Seems to be a summary of 6 poor quality studies (two by McCrone, one of which is from 2003 with 44 patients). The fact that the...
  7. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    I put her misinterpretation down to sloppiness and lack of attention to detail, especially after she referred to us as "ME Science, a kind of discussion blog ..." (as an aside, I'll be back to teaching students how to give presentations next Monday, and will include such tips as don't overuse...
  8. TiredSam

    UK CMRC 2018 Conference - Rachel Hunter (health economist)

    This thread has been split from the CMRC conference thread here. See also the MEA Summary page 9. Well I do think many of us (myself included) are hiding from healthcare because we can do without the patronizing abuse which is all many health-care providers seem to have to offer, and I also...
  9. TiredSam

    Concerns about Cochrane

    It's actually to make theft easier so that Bayer gets more orders from companies whose employees nick stuff.
  10. TiredSam

    Concerns about Cochrane

    http://mentalfloss.com/article/94046/why-there-huge-cotton-ball-my-aspirin-bottle
  11. TiredSam

    Concerns about Cochrane

    I've done some googles: https://forum.wordreference.com/threads/aspirin-asprins.1771200/ https://www.wordhippo.com/what-is/the-plural-of/aspirin.html https://www.merriam-webster.com/dictionary/aspirin
  12. TiredSam

    Treating chronic fatigue syndrome / Oxford Neuroscience

    Well that's not true - politicians take them very seriously and go straight to them for all their data needs. Need to back up a new policy with data? Throw a few million at some psychologists, they'll never let you down.
  13. TiredSam

    What I learned about weight loss from spending a day inside a metabolic chamber

    The great thing about plummeting it's one of those tasks where no memory or concentration is required, it's one of the few things ME sufferers can do just as well as everyone else. Surprised there hasn't been a study on it.
  14. TiredSam

    What I learned about weight loss from spending a day inside a metabolic chamber

    Are you saying that you are not sure you could manage to land if you jumped out of an airplane? I'm pretty sure you would land eventually, even if you exerted no effort at all.
  15. TiredSam

    A series of PACE funding FoI requests

    I think there was a thread in which the amounts that are known to have been contributed to PACE by various parties were added up and didn't come very near to 5m, so the questions arises where the rest came from. If the 5m figure originated from the PACE authors, "plucked out of the air" is as...
  16. TiredSam

    Bristol - New Network - Prof Munafo

    Sounds like the Wessely approach. Details and committing yourself can be so tiresome.
  17. TiredSam

    A series of PACE funding FoI requests

    Is the only source of the 5 million figure the PACE authors? I can't help thinking that if the number is true, it will be the first reliable and accurate number they've ever given for anything. They could have inflated it or deflated it for any number of reasons (inflating and deflating numbers...
  18. TiredSam

    Trying Again. What First? D-Ribose? BCAA's?

    And with my moderator's hat on: Discussing supplements on their own merits and exchanging personal experiences is fine of course, but there is no need for any reference to other forums. All references to other forums will be removed from this thread, as they are not relevant and likely to...
  19. TiredSam

    Trying Again. What First? D-Ribose? BCAA's?

    That has been exactly my approach. I will be coming up to 5 years of ME at the end of this year. I've been keeping daily data for the last 3.5 years, and after reviewing it and how I have been doing this year I think I'm ready to claim that I have significantly improved, and may write about it...
  20. TiredSam

    Michael Sharpe skewered by @JohntheJack on Twitter

    Has he actually read it?
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