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  1. Sean

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Translation: Mental illness is real too! Well, good thing nobody is saying it isn't. What is being said about your work and claims is that your definition of psychosomatic and how to diagnose and treat it is, um, problematic. At a very fundamental level. But you don't want to answer awkward...
  2. Sean

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I was able to access the article, and saved a copy of it. Only comment showing on it was this one: "I’d love to understand what the disagreement was. Without graded exercise is this a syndrome without any definitive diagnostic tests, defined pathological processor effective treatment."
  3. Sean

    Functional Neurological Disorders - discussion thread

    Another Wessely. Very persuasive talker. Very unpersuasive scientist. Are there no alarm bells going off in neurology? Is nobody within the specialty starting to wonder that the FND claim is just too good and too broad to be true? At this rate Stone et al will have claimed all remaining...
  4. Sean

    Functional Neurological Disorders - discussion thread

    They could get around losing control of the ME/CFS diagnostic category by 1. Changing an ME/CFS diagnosis to FND. 2. Diagnosing new patients as FND in the first place, simply bypassing ME/CFS completely and never having that diagnosis recorded on the patient's notes. 3. Adding an FND...
  5. Sean

    Functional Neurological Disorders - discussion thread

    This. They want to be the first triage point in the health system. Let that sink in.
  6. Sean

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    Yeah, I think the terms brainwashing & gaslighting are not wrong for PACE style CBT & GET.
  7. Sean

    Placebo effect: a psychosomatic component, or only an aggregate of other biases?

    Nobody can say they lied about what was in the bottle.
  8. Sean

    Open Cardiovascular Analysis of PEM, 2021, Natelson

    Nor by certain other researchers: "There was no association between level of functional impairment and degree of hyperventilation. There is only a weak association between hyperventilation and chronic fatigue syndrome." https://pubmed.ncbi.nlm.nih.gov/8140219/ "However, no significant...
  9. Sean

    Do adolescents w/CFS/ME & co-morbid anxiety &/or depressive symptoms think differently to those who do not have co-morbid psychopathology?,2020,Loades

    Wear that 'depression' like a champ. :slugish: This is the core of the problem with that claim. To be able to make such judgements requires those making them to have some grand sweeping view of the human condition and experience that is simply impossible. Extraordinary claims need...
  10. Sean

    Short-term and Long-term Rates of Postacute Sequelae of SARS-CoV-2 Infection, 2021, Groff et al

    Like some have been saying since the pandemic started.
  11. Sean

    I need a good summary of the problems with mind-body theory

    Immunity to falsification must be high up the list of cardinal features of mind-body theories.
  12. Sean

    Mattress toppers that don't make you too hot?

    The quality of latex is variable. The good stuff should last decades. I have some latex pillows that are more than 20 years old, and still going strong.
  13. Sean

    Let's talk wheelchairs and mobility scooters

    Have not used a wheelchair so far, and know very little about them. But this company seem to be getting good reviews. https://whill.inc/us/products/
  14. Sean

    Functional neurological disorder and somatic symptom disorder in Parkinson's disease, 2021, Onofrj et al

    Vultures on steroids. They are going to force this shit onto every single disease. Just watch. This is what medical zealotry looks like.
  15. Sean

    Who was it that said being in support groups leads to poor outcome?

    This whole shit show has basically been a marketing and propaganda exercise, masquerading as medical science, in the service of naked empire building. And we have paid the price for it all.
  16. Sean

    A charter to improve ME/CFS research

    Good thread, @Michiel Tack Besides the standard stuff of adequate sample size, good selection criteria, and relevant control groups, etc, my two biggies are outcome measures (must be either objective or adequately blinded, or both), and measuring PEM. We have decades of hard undeniable real...
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