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  1. Sean

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Exactly. Which is why those benefiting from them not being retracted are fighting so ferociously to stop them being retracted. Reputations, career, empires, and egos are going to be left shredded in the dust of history when all this is over.
  2. Sean

    News from Doctors with ME

    Good piece from DwME. Thanks. :thumbup: It will take lawsuits, or at least serious threats thereof.
  3. Sean

    Long Covid in the media and social media 2022

    We did try to warn the world this was coming. We are only at the end of the beginning of the Covid disaster. It is still globally active, virulent, and mutating merrily away. Just had a prominent Australian epidemiologist say today that we can expect another major wave of it soon here. Just...
  4. Sean

    The promise of a model-based psychiatry: building computational models of mental ill health, 2022, Hauser et al

    Computational models have great potential to revolutionise psychiatry research and clinical practice. Maybe. new concepts in mental health. www.thelancet.com/series/the-digital-mind Hmm.
  5. Sean

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Keep records of all this, good people. Both on your own computer, and on sites like archive.org and archive.is. Make sure the guilty can never claim they didn't say it.
  6. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Apparently the source is this book: https://en.wikipedia.org/wiki/Nuremberg_Diary I don't have a copy, so can't confirm. But it seems to be widely available to buy online.
  7. Sean

    Compassion-Focused Therapy for an Older Adult with Motor Functional Neurological Disorder: A Case Study 2022 Zarotti et al

    not explained by identified structural damage to the brain Because, apparently, a) they have ruled out all plausible forms of structural damage to the brain, and b) these symptoms can only be caused by structural damage to the brain. Yeah, where's the bottom couple of rows in Maslow's pyramid...
  8. Sean

    Taking the pain out of data sharing, 2022 Matthew Hutson

    The only tricky bit in making data available is ensuring it is adequately anonymised (where required, e.g. clinical trials). The rest, as @rvallee points out, is a trivial exercise in the modern online world. I am so tired of the excuses for not making data publicly available for all to access...
  9. Sean

    Somerset NHS: Long term Health conditions (incl MUS)

    High Intensity Yeah, that is just what ME patients need. :facepalm:
  10. Sean

    The Chrysalis Effect

    empowering One of those words that is a big red warning flag about the woo to follow.
  11. Sean

    Pulse Today ("the leading publication for GPs in the UK"): "Long Covid: Explaining the unexplainable?"

    Good idea to keep screenshots of them for the record, and/or save a copy of the whole article (with comments) to archive.org, or archive.is (where it is harder to get articles removed from than the .org site). In part, I would suggest, because they know what is coming about how their colleagues...
  12. Sean

    Wesselys Mental Health review could also replace Mental Capacity Act

    Not in principle. The devil is in the details.
  13. Sean

    Pain relief and sedation with ME - any issues to be aware of?

    Had two surgical procedures with sedation/general anesthetic, no IV pain killers. No problems with them.
  14. Sean

    Long COVID: defining the role of rheumatology in care and research (2022) Calabrese et Calabrese

    Better off just getting a nice pet. ...which equates with having no physiological cause.
  15. Sean

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    Is he basing that on retrospective or prospective studies?
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