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  1. Sean

    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    Is a crash just the culmination of pushing yourself and ignoring the warning signs from PEM? A massively amplified exacerbation of PEM?
  2. Sean

    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    At the risk of exposing my statistical ignorance, there were 4 trials arms in PACE, each with 4 objective outcome measures, which equals 16 separate measurements in total. At a significance level of 0.05 there is a 1 in 20 chance of a random result. 1 in 16 is getting close to 1 in 20. If that...
  3. Sean

    Functional neurological disorder and placebo and nocebo effects: shared mechanisms, 2022, Fiorio, Edwards et al

    Bold statement. Very bold. Plus, it assumes that all 'neurological' symptoms are driven by the neurological system. Could be the endocrine or immune systems that are doing the driving, for example. Apart from placebo effects not yet being demonstrated to be significant and sustained (with...
  4. Sean

    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    It is infuriating. Clearly there is something profoundly rotten in the heart of mainstream medicine. The fact that they have been able to get away with this for so long, and continue to do so, just proves how much political protection they have, and how willing they are are to use for ill...
  5. Sean

    MSD Manual (US): Chronic fatigue syndrome - updated Apr 2020 and Sept. 2021

    At what point does this become criminal negligence? The IOM report came out 7 years ago.
  6. Sean

    Long Covid in the media and social media 2022

    They really are not letting go of the deconditioning angle. They have learned nothing. Are Dr Gough, et al, prepared to sign binding contracts taking full professional, moral, and financial responsibility for any adverse outcomes for patients?
  7. Sean

    News from Doctors with ME

    Well said, @Trish.
  8. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Maybe 'exercise' has a specific meaning in medicine, like malaise does. But the use of exercise instead of activity is an issue for me. Any and all activity, including basal metabolism, is a problem for us. Inability to exercise is just a subset of that problem
  9. Sean

    Detox and other diets as for chronic illness treatments, and doctors who promote them.

    Woo and personal testimony go together like a horse and carriage. :emoji_musical_score:
  10. Sean

    BPS attempts at psychologizing Long Covid

    'Woo cures all' is a major red flag.
  11. Sean

    United Kingdom: Vitality360, a private company treating ME, fatigue and pain

    Based on very low-low quality evidence. Marketing, par excellence. :sick:
  12. Sean

    Norwegian Directorate of Health: course for sleep problems

    Call me a cynic, but I am guessing it is a lucrative program.
  13. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yes, we do need to be careful here. There will be a lot more going on behind the scenes than we will ever know. Cochrane is the last big medical institution left nominally supporting the psycho-behavioural claim about CBT/GET, so fans of that approach will be fighting particularly hard there as...
  14. Sean

    Functional neuroimaging in psychiatry and the case for failing better, 2022, Nour et al

    No advance in three decades. We have heard this song before.
  15. Sean

    Norwegian Directorate of Health: course for sleep problems

    I am worried that long term sleep problems will have consequences for my physical health WTF is wrong with having that concern? IIRC, chronically poor quality sleep is well known to be associated with, and probably (partly) causal of, lower quality physical health. Society has been bombarded...
  16. Sean

    Predictors of Chronic Fatigue Syndrome and Mood Disturbance After Acute Infection, 2022, Sandler, Lloyd et al

    But they have already declared us mentally ill. QED. :rolleyes:;)
  17. Sean

    The effect of attachment style on long-term outcomes in psychogenic nonepileptic seizures: Results from a prospective study, 2022, Villagrán et al

    Which is exactly the situation they want. Ambiguity suits them fine. The moment they start gathering data that allows causal relationships to be clarified their pseudoscience will be exposed. That is why they are working so hard to lower methodological standards. So they can can eliminate the...
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