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  1. Sean

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, 2022, Rekeland et al

    Despite the results reported in Wiborg, and those from PACE, among others, showing disagreement between self-report and objective measures, and no correlations. The excuse given by the PACE authors to the Trial Steering/Oversight Committee (?) for being allowed to drop actigraphs mid-study was...
  2. Sean

    News from Scandinavia

    This.
  3. Sean

    Activity monitoring and patient-reported outcome measures in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, 2022, Rekeland et al

    The correlations between steps per day and self-reported SF-36 Physical function, SF-36 Social function, and DSQ-SF were significant. Interesting contrast to Wiborg's finding of no correlation between self-report fatigue and actimeter/actigraph results (for CBT intervention). "Although CBT...
  4. Sean

    Personality Trait measures

    Context and history matters. Who knew?
  5. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The sheer gall of people like this lecturing the world about the importance of standards for evidence and ethics. Incidentally, Garner bears more than a passing resemblance to one of my favourite comedians, Milton Jones.
  6. Sean

    Letter to BMJ: "Medical gaslighting: to say that invoking psychological symptoms is equivalent to dismissal is reductionist", Michael Sharpe

    Plus they used (a modified version of) the London ME Criteria to select a sub-group of the trial participants. Of course it was about ME. Me too. Struggled on in the job for about 18 months, with lots of paid then unpaid sick leave, but had to quit. Then tried more full time, then part time...
  7. Sean

    Long Covid in the media and social media 2022

    The stuff about executive function hits home.
  8. Sean

    News from Scandinavia

    Thank you, Prof. Bergquist Building evidence-based multidisciplinary care requires nationally coordinated professions. A certain section of the profession would benefit from finding a little more humility in the face of the unknown. And by a little, I mean a lot.
  9. Sean

    Article: The idea that many people grow following trauma may be a myth

    “What does not kill me, makes me stronger,” No, it just didn't kill you.
  10. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Just had a quick look. A mixed bag. Still basically operating on the rehabilitation model, far as I can tell, despite there being no real evidence of its benefits for LC yet.
  11. Sean

    Return-to-Work Following Occupational Rehabilitation for Long COVID: A Cohort Study, 2022, Brehon et al

    rehabilitation is a core health service for anyone with an acute or chronic health condition, impairment or injury that limits functioning, That is one hell of a land grab.
  12. Sean

    Return-to-Work Following Occupational Rehabilitation for Long COVID: A Cohort Study, 2022, Brehon et al

    The gravy train keeps rolling for the rehabilitation industry?
  13. Sean

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I think what this all shows, once again, is how unproductive it is to speculate about causation based on psycho-behavioural interpretations and concepts. To try forcing physiology and psychology together just on principle, a lá BPS, not because it actually delivers good explanatory and...
  14. Sean

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    To expect 100% at this stage would be asking a lot, given the issues with diagnosis. Why 3-5? Any special significance of that number?
  15. Sean

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Excellent. :) Thank you. :hug:
  16. Sean

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    "This is exactly why these meetings are not public. There is absolutely nothing unscientific about hypothesizing that people who are high achievers and work hard and over exert themselves may be at risk for something." There is if there is no evidence for it.
  17. Sean

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    These combinatorial disease signatures capture both linear and non-linear effects of genetic and molecular interaction networks... This could be important.
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