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  1. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yeah, that was a hard road for me too.
  2. Sean

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Indeed. On balance I think it better to publish it. But nervous about doing that too. :confused:
  3. Sean

    BPS attempts at psychologizing Long Covid

    Would help your case if you could actually establish that this is what is actually going on, and you can actually safely and effectively treat it, instead of just assuming and asserting it.
  4. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    Don't know if we are more at risk of getting COVID or having worse outcomes. But common sense precaution would suggest that, at the least, we can't afford to lose any more function than we already have. So taking extra preventative steps seems wise.
  5. Sean

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    Yes, he might be rather busy saving his empire right now.
  6. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Wiborg (2010) https://pubmed.ncbi.nlm.nih.gov/20047707/ 1. Summary: CBT does not increase physical activity in CFS patients, as measured by actigraphy. In particular, the self-report fatigue and actigraphy results did not correlate, so there is simply no possibility of CBT having a causal...
  7. Sean

    Article in Verywell:Treating Post-Exertional Malaise in Chronic Fatigue Syndrome

    The urge to get involved and have a life has never gone away. I don't need motivating. :mad:
  8. Sean

    Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescents and Young Adult Cancer Survivors? 2021, Fauske, Reme et al

    Furthermore, none of the methods and measures favoured by the BPS school discriminate between changes in perception and changes in reporting, because they are not the same and have different implications.
  9. Sean

    News from France

    :banghead: :mad: We still have a long way to go. :grumpy:
  10. Sean

    Article in Verywell:Treating Post-Exertional Malaise in Chronic Fatigue Syndrome

    Don't you just love the assumption underlying all this that us silly hysterical delusional patients never considered or tried various forms of 'exercise' or broader activity management strategies. That we just collapsed on the divan at the first hint of unease and stayed there, despite leading...
  11. Sean

    Learning to feel tired: A learning trajectory towards chronic fatigue, 2018, Lenaert et al.

    If I knew for a certainty that a man was coming to my house with the conscious design of doing me good, I should run for my life. Henry David Thoreau
  12. Sean

    Covid-19 vaccination experiences

    Four days since my second AZ. Did get a slight headache or two, and felt a bit worse than usual, for the first couple of days. But otherwise okay now, and overall it was a lot milder reaction than the first shot, which seems the standard pattern for AZ.
  13. Sean

    Covid-19 vaccination experiences

    Should have got the AZ. I did and can now hear the Universal Symphony, with Aretha singing lead and Ginger on drums.
  14. Sean

    Covid-19 vaccination experiences

    Much sympathy to those dealing with prolonged side-effects. :hug:
  15. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    A 'significant role in the PACE trial' doesn't seem like something you would want on your CV. :whistle:
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