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Anybody here surprised?

Every time I have signed a petition there they have suggested a bunch of other petitions to sign. Normal practice for them.

Speaking as a former medical equipment tech, they sometimes even complain when it is working perfectly.

And the concept of PEM is not exactly new either. Been around for several decades.

Oh don't worry, they are expanding their remit as we speak. What will happen is that MUS (or whatever label it is trading under this month) will simply become an additional diagnosis on top of whatever real disease the patient has. Do you mean 'irrelevant'? Fair point. But in which case he...

Exactly. If they couldn't even get a result in PACE using the weakest criteria (Oxford), which doesn't require PEM, what makes them think PEM is the issue? There isn't even a point here for them to make.

WTF is wrong with British journalism?

How about a jackfruit?

There is a critical difference between patient reported, and patient preferred outcomes. Might be some overlap, but they are not the same thing.

Our very own Groundhog Day. Aren't we lucky. :bored:

Well that is one interpretation of the joke. ;)

I think Wessely is vulnerable on this incident. His behaviour really does not seem that of a man genuinely in fear of his safety, let alone that of his then early teenage (?) son and his schoolmates. One of the more obviously fraudulent of the harassment and threats claims, I suspect. Yes...

Especially a green one. :jawdrop:

Pretty good article overall. :thumbup: Does this model specifically require a viral trigger? Anger is what you get when sick, vulnerable, innocent people are persistently mistreated this way, then blamed when that approach inevitably goes wrong, and finally told they should be grateful to...

...and a powerful call for action to fix the broken story. Not fix the broken medical system?

Yeah, I'm sure they do. Excuse me if I suspect that this is a PR exercise so they can say we did consult with these stakeholders.

Wessely is very good at talking the talk, but never delivers on the substance.

Might be worth archiving important documents on archive.today too. They don't delete anything. https://en.wikipedia.org/wiki/Archive.today And of course, keeping copies on your own computer. Basic text, plus a few images, doesn't take up much space.

FND involves a disruption in normal brain mechanisms for controlling the body. I wish I could be that certain about anything. overt inconsistency, as typically observed in patients with FND Not sure why inconsistency is so definitive a symptom. Normal human lives are full of inconsistency...

Exactly. If you cannot predict responders then you don't have a robust understanding, and we all know where that leads. ---------- https://www.s4me.info/attachments/fine-there-is-no-disease-jpg.14799/ That is beyond disgraceful. It's literally 100% wrong, and in the worst possible way. Also...