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  1. Sean

    Article in The Scientist: Mechanisms of Long COVID Remain Unknown but Data Are Rolling In

    Just look at the number of studies, their sample sizes, time spans, hard physiological basis, and how quickly they got up and running. Compare and contrast with the situation for us over the last 60 years. I mean, I am very happy that LC is getting serious attention, because it should and is...
  2. Sean

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    What everybody else has already said. Great work. :thumbup::):hug:
  3. Sean

    A general thread on the PACE trial!

    The Actiwatch is a compact, light weight,... Which I believe is the opposite of "cumbersome".
  4. Sean

    From harm to help - promoting an evidence based shift in understanding of ME/CFS, presentation to RNZCGP conference 2021, Cathy Stephenson

    Only looked at the PDF file, but it is excellent. Thanks to those who produced it. :thumbup::) Just one suggestion, on the last page (31): CBT is supportive but not curative. I would prefer: CBT can be supportive but not curative.
  5. Sean

    BPS attempts at psychologizing Long Covid

    The cruelty bit for me is that it is coming from the very profession supposed to relieve suffering. This has always enraged me. It is one thing for an individual or small group within a profession to misbehave. But for virtually the whole profession to stand by and do nothing about it and...
  6. Sean

    BPS attempts at psychologizing Long Covid

    You clearly need some Equipoise Socks™.
  7. Sean

    Guardian Article on NICE pause

    @Adrian Far as I know, there is literally nothing in the PACE data (or in FINE, GETSET, etc) that even justifies further research into the psycho-behavioural approach, let alone its application in the clinic and medico-legal settings. If PACE, et al, show anything it is that this is not a...
  8. Sean

    Guardian Article on NICE pause

    Patients who get better tended not to be as vocal as those who had had bad experiences, she said. That would be the patients "who get better", who for some mysterious reason, also failed to show up in the results of your own "definitive" study?
  9. Sean

    Guardian Article on NICE pause

    Not "medical research bodies". Furthermore, that situation is due largely to the likes of Sharpe and Chalder for two reasons: First, by using such broad inclusive criteria in their studies leading to the mixing of several different patient groups. Second, by discouraging and even blocking...
  10. Sean

    Guardian Article on NICE pause

    That would be your criteria, Prof, which wasn't even the best then, let alone now. Did you inform Natalie Grover of that relevant conflict of interest? Well, you claimed it was the patient group (AfME) involved in that trial that asked for that, but then you told a different story to the trial...
  11. Sean

    BPS attempts at psychologizing Long Covid

    There is no cruelty quite like medical cruelty.
  12. Sean

    Functional Cognitive Disorders (FCD): How Is Metacognition Involved?, 2021, Larner

    Difficult to understand something that probably doesn't exist. Another suggestion is that this, and the broader FND project, is a figment of your imaginations. Is that an admission of the previous two points I made? These people are diagnosing the lurid fantasies in their own heads, not what...
  13. Sean

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Special elites are allowed to do that. Only us peasants have to obey the rules. --------------- Can somebody on Twitter reply to this tweet that the PEM response is also non-linear. Pushing a little too hard can result in a major cost (payback). Especially early on in a patient's experience of...
  14. Sean

    What we're not being told about ME - UnHerd (Tom Chivers)

    And, boy, is there a story here. Just not the one that has been dominant for the last 3 decades.
  15. Sean

    What we're not being told about ME - UnHerd (Tom Chivers)

    We need both. Analysis is the foundation on which the politics must be built. We would have gotten nowhere without the analysis.
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