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OMF has responded to concerns that key people of influence within the organisation may be promoting unevidenced protocols - discussed here: https://www.s4me.info/threads/whitney-dafoe-updates.9831/post-662929

We have moved a discussion about which researchers are funded to Why can't good ME/CFS researchers get more funding?

@Julia O, just alerting you to the question about the planned study.

It was interesting to see the regulators of nitric oxide SDMA and ADMA increased with reactivation of some viral infections. There was a Hanson study that found that healthy controls excreted more SDMA and ADMA after intense exercise than before, but people with ME/CFS did not. Perhaps there...

Thanks to Amanda for telling her story, I thought it was powerful. By no means is she the sickest, she's working part-time now and so probably would be classed as 'mild'. But, getting ME/CFS at age 19 has had a devastating impact on her life and the contribution to the world she could have made...

Authors Alex Long, Antonio Choi Chiu, Orthi Onupom, Richard Berwick, Dimitra Psyllou, Jane Pernes, Katy Plant, Harvey Neiland, Andy Cross, Felicia Tucci, Andreas Goebel, Rachael Bashford-Rogers Note that Andreas Goebel is a co-author. Funded by Versus Arthritis and Pain Relief foundation The...

Thanks for clarifying that @MelbME. I've deleted the post on the OMF news thread, as it doesn't sound as though OMF is promoting Leisk. Lots of people do see the Davis Dafoe family as rather synonomous with OMF though. There is a comment on the forum, on the Born Free thread, from someone...

Whitney Dafoe has been suggesting that his recent improvements may be due to the Born Free Protocol, discussed here: Whitney Dafoe Updates

We have moved some posts on coffee to the thread about the use of stimulants We have a thread specifically on the Born Free Protocol

Yes. But the supervisor was Newton. I think a supervisor has a responsibility to make a good decisions about whether something gets published, especially when it comes to a study on human health. We all know that papers get misused, myths get created on the basis of abstracts, myths that just...

ah yes, Persistent. I have amended my post upthread where I mentioned Persisting Physical Symptoms. I got carried away with the present particle (?), to match Endur-ing. What's the equivalent grammatical form for Enduring Symptoms? Durable Symptoms? You can see why that particular name was...

Setting aside whether Goebel has the answer to fibromyalgia or not, (and we've discussed that more on the threads about his papers here and here) it's interesting to look at how Therese Barnes, the editor of the Special Issue reacted to the possibility of a biological cause and an (expensive)...

Future healthcare for patients with the common pain disorder ‘fibromyalgia syndrome’ – fundamental changes based on the discovery of an immune cause Author: Andreas Goebel Recent laboratory advances have allowed re-conceptualising fibromyalgia syndrome, a common, severe chronic widespread pain...

Part of the RCP Future Healthcare Journal Special Issue - other papers: A patient perspective on enduring symptoms - the unmet need, Cheston (this was the initial thread that discussed the Special Issue; it has some general discussion on the special issue) Future healthcare for patients with...

Umm, checks notes.. I think that may have been at 2 pm last Thursday, after 'Enduring Symptoms' was briefly tried and then abandoned when someone realised it sounded too permanent. I'm not too sure what is happening with 'Persisting Persistent Physical Symptoms', I think that seems to be...

They selected 12 services to be case studies, recruited through professional networks and online searches. It's interesting that they use the term biopsychosocial here, as in an earlier PACFIND paper, they thoroughly rejected the biopsychosocial paradigm as being subservient to the biomedical...

I think the PACFIND study and the people involved are important in the current push for holistic clinics for Medically Unexplained Symptoms. They have some interesting connections. There are a series papers coming out of the PACFIND study, you can find them with the PACFIND tag. Catherine...

Trish's comment on another PACFIND paper seems quite apt: See the PACFIND tag (top left) for more PACFIND papers

I was interested to know what new models of care for people with fibromyalgia might look like, because Catherine Pope, the senior author, seems to be quite influential in UK medicine and health research and so might influencing where the NHS heads next on Medically Unexplained symptoms...

I'm inferring that they are proposing a system of care that doesn't tell people that their illness is psychosomatic, reducing the need for the patient to feel they have to prove that they are ill (and all the attempts to get referrals) and reducing the stigma and shame that everyone is worried...