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If zolpidem suppresses the norepinephrine oscillations, and inadequate brain cleaning contributes to ME/CFS, then presumably zolpidem would make ME/CFS worse. Has anyone here with ME/CFS used zolpidem? That's an interesting idea. I wonder if more rapid norepinephrine pulsing in response to a...

Thank you Dave, news of Alem's improvement is very welcome indeed.

What an incredible indictment. And it's not even as if the deemed recovery of the 20% of referrals can be attributed to the treatment. Surely that percentage mostly consists of people who would have recovered anyway. It's so hard to understand how this is allowed to continue.

There are some iconic prospective studies, for example the Dubbo study which looked at what they called post-infective fatigue syndrome following infections of EBV, Ross River Fever and Q fever thread here

Recovery of neurophysiological measures in Post-covid fatigue - a 12 month longitudinal follow up study, 2024, Maffitt et al It's interesting that there was some speculation about long term damage, with a followup study that is worth a look.

I've seen some skepticism about the idea that there is a high rate of recovery from ME/CFS in the first two years. I think it happens and it's important to acknowledge that it does, because, if we don't, the people who do recover will think that they are special, that whatever treatment they...

ANZMES currently has a survey asking people what they think that NZ ME/CFS organisation should focus on going forward. One of the authors of this Tate et al paper is the President of ANZMES. The survey seems to assume that ANZMES is and will remain the national ME/CFS advisory charity. It...

Yes, they measured the wrong thing. We've discussed the inappropriateness of the 6 minute walking test for measuring physical incapacity in mild ME/CFS a number of times. If these researchers had taken the time to carefully talk to people with 'post-covid syndrome', they would have known that...

Fair point, I couldn't find any examples in a quick search. The illness is certainly characterised by some as the result of self-obsession, of paying too much attention to oneself, so having an illness name of ME seems like a very bad idea when it comes to branding. I would feel embarrassed to...

I can't see this paper. but, the AI response to the question is Grounding in Dance Movement Therapy (DMT) is a core principle using physical movement to connect clients to their bodies, emotions, and present reality, fostering stability, self-awareness and emotional regulation, especially for...

It's very good to hear that this is sensible. Based on the quotes provided by Nightsong though, this document could have been refined with the input of patients. For example, here's some thoughts about that paragraph about PEM: It would be better to refer to cognitive activities than mental...

I'm not hung up on the 'enduring symptoms' wording at all. I don't understand your point about that. Being present at a BACME conference is, in itself, totally fine. What matters is what you say there. If all the other speakers at the conference are saying 'these people need...

I think you are missing the point @Andy. The context and the contribution the Cheston paper makes to the editorial narrative is important. Barnes, the RCP officer, clearly had an agenda to push forward with BPS/BACME type clinics for the broad basket of MUPS. I don't know how the papers were...

I really appreciate your posts on this thread @SNT Gatchaman.

A comment in response to David's blog: "Thanks for this David, that’s a nice analysis in the first two sections. For sure, people with ME/CFS don’t want what the Royal College of Physicians is so keen to sell – that is, the all-singing, all-dancing multidisciplinary clinics that, as you point...

Authors: Fernanda Silva, Ditty Dokta, Rosemarie Samaritter Rotterdam, Netherlands Abstract This article studies grounding in Dance/Movement Therapy (DMT) for people with persistent physical complaints (PPC). Existing literature identifies the potential of grounding for PPC. This article is...

This thread is now open for posting. This thread is about a paper that is part of the RCP Future Healthcare Journal Special Issue The thread on the editorial for the special issue is here, with links to the other papers. This thread is where the Special Issue was initially discussed. It...

That's certainly true Kitty, that people talking about enhancing and multiplying BPS clinics for 'persisting physical symptoms' isn't the same as it happening. But, we are definitely seeing a big effort to make those clinics and that type of care a reality, in the UK and elsewhere. That RCP...

From our earlier discussion, information about who Barnes, the person writing the editorial for the Special Edition, is: In particular, note that she has a role in the Royal College of Physicians' policy on planned specialist care, and, just this year presented at a 2025 Liaison Psychology...

We have removed a number of posts about a personal trial of Anktiva that is currently in progress, for moderation consideration.