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  1. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    Yes, it rather looks as though 1 in 4 clinicians have a tendency to accept psychosomatic explanations. I wonder if something bad happened to them in their childhoods.
  2. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    In case you are wondering - did any attending clinicians call 'bullshit'? Yes, two. Two out of 80. No, this study did not "reinforce that skilful validation of somatic symptoms and the exploration of psychosocial contributors may help reduce patient dissatisfaction and clinician...
  3. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    I think that quote is worth reading. It looks as though the BPS people are slowing down on the trials of interventions like GET and CBT on patients. Perhaps they have realised that they don't have effective treatments. But they don't actually need to prove treatments work. What they really...
  4. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    I actually just wanted to see what clinic was allowing this stuff to be taught to their clinicians. But, there is plenty that is worth ridiculing. There's the Psychosomatic Illness Knowledge Questionnaire. How do you demonstrate a high level of knowledge about Psychosomatic Illness...
  5. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    346 clinicians were invited to attend during their work day - 80 attended and completed the feedback form. This is the Adapted Somatic Symptom Scale - 8 (SSS-8) Adapted prompt"Which of the following symptoms do patients with medically unexplained psychosomatic complaints most frequently...
  6. Hutan

    Thirty Minutes to Transform Care: A Mixed-Methods Study on Brief Psychosomatic Education for Unexplained Symptoms 2025 Sioni et al

    "Thirty minutes to transform care" from a situation where the doctor may be uncertain about slapping a psychosomatic label on someone to a situation where that doctor can apply that label with confidence. That is, thirty minutes to make "care" less curious, less empathetic, less sound and more...
  7. Hutan

    Nutrient tracking experiment

    Very impressive @forestglip. That's very dedicated nutrient and activity tracking. It is exciting, I'm interested to see what you find. Yes, the confounding with activity level may well be a problem. Do you think you change what you eat when you are active versus in PEM? e.g. maybe you eat a...
  8. Hutan

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    We have moved some posts about daratumumab and the drug development process to the Daratumumab trial thread.
  9. Hutan

    ME/CFS Support Group online forums

    (The bit about me is very kind of Trish to say, but she contributes as least as much as me to moderation, and an enormous amount in many other ways too. And of course there are many who have contributed to what the forum has achieved, in many ways.) While our experience on this forum can...
  10. Hutan

    ME/CFS Support Group online forums

    Such good points @Ravn. We see ME/CFS patient support organisations making statements about treatments like 'what works for one person may not work for another' - and I think a part of the reason for that is that they want to maximise membership. Even if they think the Lightning Process is...
  11. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    It's a tricky issue, this platforming of unevidenced treatments. It's one we struggle with here too. I made a thread here with some thoughts on it, so as to not take the News thread off-topic: ME/CFS Support Group online forums
  12. Hutan

    ME/CFS Support Group online forums

    A survey from a patient support charity about whether they should support the promotion of brain retraining therapies in their patient forum and the responses we had to it got me thinking about the phenomenon of the ME/CFS Support Group online forum. It seems as though every self-respecting...
  13. Hutan

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    Putting those two things together, there was one case report of the removal of a spleen, and subsequent recovery from 'CFS'. It wasn't a very good case report. But, I wonder if there are any more cases of this happening. The thermodynamics of binding events - that's an interesting thought...
  14. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    Yes, that was my initial reaction. However, I imagine some proponents of these therapies are insistent and creative in the way they promote them e.g. on the organisation's Facebook page. If the majority of stakeholders indicate that they don't want the therapies promoted, it would make it...
  15. Hutan

    Open Medicine Foundation (OMF)

    Perfect, thanks for that information @forestglip
  16. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    ME Support are gauging feelings on 'brain retraining'. It looks as though proponents of some version of that stuff (e.g. Lightning Process) have been trying to get clients via their Facebook facility. You don't have to be a member of ME Support to complete their survey.
  17. Hutan

    News from Australia

    A new video out from Chris Armstrong's team here Open Medicine Foundation They are recruiting women for Melbourne based studies.
  18. Hutan

    Open Medicine Foundation (OMF)

    14 minute video Both of the young researchers have family members with ME/CFS and clearly have a genuine interest in contributing to the understanding of the illness. Malopus project on brain function in ME/CFS and LC. They will be using high-resolution MRI scanning and PET-scan tracers. They...
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