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2011 study Authors Garcia L, Kerr J, Fletcher MA, Sol C, Klimas N. Institution University of Miami Miller School of Medicine and Miami VA Medical Center, Miami, Florida, USA, and St George’s University of London, London, UK ]Funding The study was funded by a research grant ME Research UK...

Warren Tate is on National Radio now (Saturday Morning) - now finished. Placeholder link - the interview itself isn't available for replay yet - https://www.rnz.co.nz/national/programmes/saturday Breathe easy everyone, a diagnostic test is imminent!

Quote of the comment about young people wishing their parents had not wasted money and energy taking them to people who promised to cure them but didn't.

On psychological factors as risks for not recovering, and depression rates

Chris did very well, some great responses to questions that weren't particularly helpful from the reviewer. Some quick notes I made on the list @forestglip posted above of the blood measures found in both cohorts. Not complete by any means. Significantly increased in both Alkaline...

I think the fundraising campaign would be much more effective if it headlined something specific that will be done. There is a lot of talk of 'change', but change can be good or bad. AfME says 'we know change doesn't just happen - it has to be made'. From what I hear on the forum about the...

It is frightening to think of being judged in this way, especially when ill in hospital. While nothing we do will convince this person and others like him, I think this is another reason why we need to move to 'ME/CFS' as the name and leave ME well behind. Telling a doctor like this, or even...

There's been a bit of mention of increased IGHV (immunoglobulin heavy chain) usage lately, click on the tag to see the papers. Also note mention of neuronal sensitisation from the periphery and interferon. This paper looks like it is worth a read I think, I haven't got to it yet. From a UK team.

It's absolutely mind boggling, isn't it? We see this in papers every week - It didn't work, but, but, if only we just tweak our offerings, measure it in a different way... And now the rise of the cleverer BPS proponents not even bothering with patient outcomes, but instead securing research...

Actually, just reading that last comment of mine, what this study shows is that the whole package of those alternative therapies are not worth anything much. And therefore, neither are the individual therapies. If mindfulness or acupressure or naturopathy and whatever else the clinic has been...

Mānawatia a Matariki! Remembering people who are no longer with us, and planning for the future. I hope our New Zealand members are keeping warm and have people to share the day with.

Link to the forum thread for that study on the disappointment that is the Complex Chronic Diseases Program here.

It's especially sad because Luis Nacul came from the UK ME/CFS Biobank. He surely knew that this graded activity stuff was not helpful before he took on the job running this program. I think if you search the forum there will be comments that track members' trajectories from hope to despair...

@Sarah Annesley has written a good article in The Conversation about ME/CFS and the forthcoming new guidelines in Australia - link to the post

Thank you @Sarah Annesley, for taking the time to put your reputation on the line for people with ME/CFS. I would quibble with leading with 'complex' and some of the assertions about what studies have found e.g. changes in brain structure. Even the finding of changes in cerebral blood flow...

Yeah, that's pretty clear, thanks @ME/CFS Skeptic. There's really nothing there beyond what you'd expect from a placebo, natural fluctuations, and more than half of your cohort (probably the cohort with the least improvement) dropping out. I did like the ATG13 work. I haven't read this study...

From the BC Women's Hospital Complex Chronic Diseases Program There's a terrible "Adapt: Returning to physical activity" handout. Have we talked about it already? It notes that exercise is not recommended as an intervention for people with PEM and that any exercise for people with post-viral...

I appreciate the honesty there. While I agree with much of what the authors are saying in the abstract, they are claiming 'some health benefits' for their CCD Program. It's possible, perhaps even likely, that the program wasn't even responsible for that. Perhaps the passage of time and the...

Yes, there are a whole lot of reasons why you might choose a particular chair in a waiting room, or in a clinic room. Ease of getting out of it is just one. Normally, strangers will space themselves out fairly evenly over the available chairs - it is odd if someone doesn't do that, and...

Thank you both. Here's the chart @forestglip posted for RAPGEF5: I'm interested to try to understand what we are looking at here. Tell me if I am understanding things wrong. You have taken a gene that this study has identified as useful in differentiating people with ME/CFS. You used the...