I'm not familiar with fatigue following B12 supplementation. I don't think I would have asked a GP or dietitian about MTHFR, you're likely to either be preceived as someone believing in rubbish or be told a lot of rubbish.
What type of B12 did you take following Rich van Konyenberg protocol...
I hardly ever use the name of whoever I see beyond introductions, and my experience in Norway is that first name is what is common for said introductions. Sometimes title, but that would be to explain who the person is, not an honorific. I could say "Hi, I'm midnattsol and I am your dietitian"...
Norwegian: Fakta og myter om ME
Google Translate: Facts and myths about ME
It's the old arguments about how ME can be cured with cognitive therapy, that there's no scientific basis for harm from cognitive or graded exercise therapy and that IOM and NICE are not research do not represent...
Anne Kielland from "Tjenesten og MEg" that has looked at how the Norwegian health service meet ME patients has among other things said that what surprised her the most was that they found no one when collecting their data who had been helped by the rehabilitation centers pwME are sent to. And...
When they've used the phrase previously it has been as a term used in sociology. In Norweigian the word "symbolic" would be the same as in English. Kielland have referred to the work by Xavier Gimeno Torrent that also uses the term, discussed here: The circuit of symbolic violence in chronic...
That is a problem, but with the packaging it is possible to get a semi-reliant estimate from looking at recipes for a similar meal and compare the recipes nutrient content with the nutrient content on the packaging. Food composition datatables are also increasingly adding ready meals, so...
Yeah, the only reason I can do a recall is that I eat more or less the same throughout the week, so there are very few things to remember.
I'd like to include a question about foods that are avoided (or foods that have previously been excluded from the diet for some reason) and/or cause some...
That's an important point. I've had patients that have filled out food records who say knowing that they are supposed to write down everything they eat makes them eat differently so it is easier to write down. Also obviously there are other reasons for these records not working out.
I've been thinking about how best to survey dietary intake in a population with cognitive impairment and/or low cognitive stamina.
Food Frequency Questionnaire
Typically for a survey, one could use a food frequency questionnaire that consists of a finite list of foods and beverages with...
Opinion piece written by an ME patient in the newspaper Aftenposten
Norwegian: Nei, du har ikke såret følelsene mine, Harald Eia
Google translate: No, you haven't hurt my feelings, Harald Eia
Posts about the recent podcast episode by the comedians Eia and Sagen where pwME were made fun of, and the following backlash, have been moved to a new thread:
Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022
Split from the "News from Scandinavia" thread
pwME were made fun of in a recent podcast by two well known media profiles in Norway (who have ties to Vogt and Kennair, both proponents of the Lightning Process study), among other things comparing talking an ME patient advocate to talking to ISIS...
Hilda has written a review on what happens when reviews are not updated and becomes "zombie reviews":
Blog: What’s Happening When Living Systematic Reviews…Stop? by Hilda Bastian
I first thought the Norwegian exercise/rehab clinic by the same name (only in Norwegian) had used an English translation to create the "GEAR" acronym...
A post on the results of EFNA's survey on "Assessing diagnosis and care pathways of people living with neurological disorders in Europe" has been moved to the survey thread here:
Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes...
A post has been moved to a new thread
Webinar Oct 13: Current evidence on diagnosis and management of ME/CFS according to NICE and EUROMENE: Are all guidelines the same? Luis Nacul
A quick translation of the Norwegian text:
Nacul has long clinical experience with ME, and has been a researcher for a long time. He has many publications to his name. He was a member of the committee behind the new NICE guidelines, and has been associated with the British ME biobank and is a...
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