Search results

  1. Midnattsol

    Any good science on problems taking Vitamin B12?

    I'm not familiar with fatigue following B12 supplementation. I don't think I would have asked a GP or dietitian about MTHFR, you're likely to either be preceived as someone believing in rubbish or be told a lot of rubbish. What type of B12 did you take following Rich van Konyenberg protocol...
  2. Midnattsol

    ‘Kind of Awkward’: Doctors Find Themselves on a First-Name Basis, NYT

    I hardly ever use the name of whoever I see beyond introductions, and my experience in Norway is that first name is what is common for said introductions. Sometimes title, but that would be to explain who the person is, not an honorific. I could say "Hi, I'm midnattsol and I am your dietitian"...
  3. Midnattsol

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    Norwegian: Fakta og myter om ME Google Translate: Facts and myths about ME It's the old arguments about how ME can be cured with cognitive therapy, that there's no scientific basis for harm from cognitive or graded exercise therapy and that IOM and NICE are not research do not represent...
  4. Midnattsol

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Anne Kielland from "Tjenesten og MEg" that has looked at how the Norwegian health service meet ME patients has among other things said that what surprised her the most was that they found no one when collecting their data who had been helped by the rehabilitation centers pwME are sent to. And...
  5. Midnattsol

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    When they've used the phrase previously it has been as a term used in sociology. In Norweigian the word "symbolic" would be the same as in English. Kielland have referred to the work by Xavier Gimeno Torrent that also uses the term, discussed here: The circuit of symbolic violence in chronic...
  6. Midnattsol

    Measuring dietary intake

    That is a problem, but with the packaging it is possible to get a semi-reliant estimate from looking at recipes for a similar meal and compare the recipes nutrient content with the nutrient content on the packaging. Food composition datatables are also increasingly adding ready meals, so...
  7. Midnattsol

    Measuring dietary intake

    Yeah, the only reason I can do a recall is that I eat more or less the same throughout the week, so there are very few things to remember. I'd like to include a question about foods that are avoided (or foods that have previously been excluded from the diet for some reason) and/or cause some...
  8. Midnattsol

    Measuring dietary intake

    That's an important point. I've had patients that have filled out food records who say knowing that they are supposed to write down everything they eat makes them eat differently so it is easier to write down. Also obviously there are other reasons for these records not working out.
  9. Midnattsol

    Measuring dietary intake

    I've been thinking about how best to survey dietary intake in a population with cognitive impairment and/or low cognitive stamina. Food Frequency Questionnaire Typically for a survey, one could use a food frequency questionnaire that consists of a finite list of foods and beverages with...
  10. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Opinion piece written by an ME patient in the newspaper Aftenposten Norwegian: Nei, du har ikke såret følelsene mine, Harald Eia Google translate: No, you haven't hurt my feelings, Harald Eia
  11. Midnattsol

    News from Scandinavia

    Posts about the recent podcast episode by the comedians Eia and Sagen where pwME were made fun of, and the following backlash, have been moved to a new thread: Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022
  12. Midnattsol

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Split from the "News from Scandinavia" thread pwME were made fun of in a recent podcast by two well known media profiles in Norway (who have ties to Vogt and Kennair, both proponents of the Lightning Process study), among other things comparing talking an ME patient advocate to talking to ISIS...
  13. Midnattsol

    ‘The Lightning Process’ and chronic fatigue syndrome/myalgic encephalomyelitis, 2022, Vallings

    "a group Scandinavian psychologists"? Wyller and Flottorp are not psychologists.
  14. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hilda has written a review on what happens when reviews are not updated and becomes "zombie reviews": Blog: What’s Happening When Living Systematic Reviews…Stop? by Hilda Bastian
  15. Midnattsol

    The GoodHope Exercise and Rehabilitation (GEAR) Program for People With EDS and Generalized Hypermobility Spectrum Disorders 2022 Mittal et al

    I first thought the Norwegian exercise/rehab clinic by the same name (only in Norwegian) had used an English translation to create the "GEAR" acronym...
  16. Midnattsol

    Europe: European Federation of Neurological Associations (EFNA)

    A post on the results of EFNA's survey on "Assessing diagnosis and care pathways of people living with neurological disorders in Europe" has been moved to the survey thread here: Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes...
  17. Midnattsol

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    A post has been moved to a new thread Webinar Oct 13: Current evidence on diagnosis and management of ME/CFS according to NICE and EUROMENE: Are all guidelines the same? Luis Nacul
  18. Midnattsol

    Norway: ME Forening (ME Association)

    A quick translation of the Norwegian text: Nacul has long clinical experience with ME, and has been a researcher for a long time. He has many publications to his name. He was a member of the committee behind the new NICE guidelines, and has been associated with the British ME biobank and is a...
Back
Top Bottom