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The rest in the series at Forskning.no (google translate web is at time of writing this not dealing well with the forskning.no site, so only including the Norwegian links with a translation of the titles): Hvorfor er forskerne så uenige om hvor godt psykoterapi virker? / Why are researchers...

I just want to point out that malnutrition is common across the board, and not necessarily treated well even in other patient groups (partly because it is not discovered and/or taken seriously). This is generally believed to be about lack of knowledge on the part of healthcare staff, with...

I would say the opposite, I've seen many "people think they are reacting to gluten, but in fact..." and then there is some study with maybe 11 participants who were served an ultra processed muffin containing who knows what someone could potentially react to if they have a sensitive gut, but...

Though also with diabetes long-term consequences are ignored. Blood vessel damage due to high blood sugar over time causing worse blood circulation and at worst gangrene and amputations. We really aren't doing well treating conditions long term I feel :(

:banghead::banghead::banghead:

The design of these trials are terrible. The wash-out periods are too short, the symptoms they are recording too limited (not all food allergies/intolerances/celiac manifest with gut symptoms, for me it's mostly cognitive for example), and not least are the food they provide in order for it to...

I'm not familiar enough with the terminology in English for politics to know what it would be called, but a representative from a political party has asked the current minister of work in Norway about the situation for pwME and how nothing really has changed the last few years despite clear...

Aspartate/Asparigine are amino acids that have also been seen to change with diet. Increased asparigine and lower aspartate is associated with «healthier» dietary patterns with more vegetables, nuts and other fibre rich foods and lower junk foods. This would be a diet with more antioxidants...

I wouldn't be surprised if this is some sort of compromise, seeing as the BPS proponents in Norway argue that there is a fatigue-spectrum with ME/CFS on one end.

Yet another great article from the same journalist, this time including information on two-day CPETs and how deconditioning does not explain the findings. Why do many people with ME and chronic covid get sick from activity?

I just hope they stick to the open process they want. Currently it is all but impossible to find anything about this process except for information from the patient organisations.

It seems like I've missed something. I hadn't seen there has been a meeting about the new guideline work in mid-april this year (there is reorganization of tasks in our official institutions including the Health Department, National Institute of Public Health and "electronic health" which may...

A great article in forskning.no about living with ME today! No psychologisation and mentioning the lack of knowledge about PEM in healthcare. - I lie straight down with a fever and body aches Physical and social activity is healthy for everyone. What's life like when you can't stand it? I...

The stated goal of the new pasientforløp/care pathway is to increase focus on quality of life and coping in the patient population.

Based on the name this is the one where Recovery Norway has been given two positions since they, as recovered, are vulnerable when meeting still-sick patient representatives or carers. ME-Foreldrene/ME-parents was not allowed to join since our national ME Association already had a seat, and...

Thank you! I hadn't heard "breastfeeding fog" anywhere but I was sure there was something. I have heard pregnancy brain, so maybe I should have made the leap to baby brain ;)

I couldn't see that someone else had linked to our thread on dehydration: Dehydration-like feeling next day after exertion?

Dehydration and polyuria has been a common PEM symptom for me. One year I had nocturia as well, and got up once or twice every night to pee. But that only occured for one year nearly on the mark. Since it was a new symptom I had it checked out and nothing was found. Since I had the history of...

I think this will also be true for cognitive impairment. In Norwegian we have the term "ammetåke" which translates to "breastfeeding fog", a spin on the Norwegian word for brain fog. I have not had this explained to me as just a symptom of poor sleep, although that could of course be an...

My PEM threshold was quite a lot higher during pregnancy, and still is two months after giving birth. I don't feel a lot of either malaise or fatigue (I don't even feel sleep deprived, even though maybe I should. I sleep so well the hours I do sleep it's amazing. Note: I can get up to five hours...