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  1. Midnattsol

    Gastroparesis, post-prandial pain, eating difficulties

    Diet induced thermogenesis accounts for ~10% of energy requirement in energy requirement calculations.
  2. Midnattsol

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    It is also possible to make one's own feeding solution for enteral feeding, but then one would need to know what has to go in it to fullfill nutrient criteria (and it must be blended well to be able to pass through the tube). Here is a company started by a Norwegian mother with a son who...
  3. Midnattsol

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Exactly this. Combining what the patient is able to eat themselves with tube feeding is common practice (and then reducing the tube feeding as/if the patient increase their own oral intake).
  4. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The range of feeds are unfortunately limited. For feeds that can be used as the only form of nutrition there are variants that don't increase blood sugar levels, feed that can easily be digested, allergy-friendly and low-volume/high calorie feeds, but not necessarily all in one and the supply...
  5. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Agreed. Thinking about the belief ME is psychological in nature, the argument about the neurofeedback from the stomach reminds me that for eating disorders there are theories that patients that eat too little find the feeling of fullness uncomfortable and thus stops eating too soon, while for...
  6. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    But the idea about what someone needs can be influenced by beliefs. In this case: do they need psychological support to be able to feed themselves (and the results can be achieved in a timely manner to avoid death from starvation), or nutritional support?
  7. Midnattsol

    Thesis The long, arduous road to recovery: an exploration of the experiences of young Norwegian women falling ill with ME/CFS ..., 2024, Krabbe

    I've never seen PEM translated to "Anstrengelsesutløst sykdomsfølelse" before. "Sykdomsfølelse" would translate to "feeling sick", and based on the focus of these papers that have been discussed on the forum already this seems like the author is saying the patients aren't sick but feel like they...
  8. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Yes, thank you to all who provide us with updates. Much appreciated!!
  9. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The stretching of the stomach when it fills sets of some neurons that is among the first satiety signals. But this is again a weird argument when the patient is starving. There are medications that causes hunger, sometimes even long term after medication is stopped (f.ex. seen in children who...
  10. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Risks to sedation and infection considered with nutrition support, but not risk of not feeding? Taking nursing burden into account with nutrition support, but not from syringe feeding? Some of this seems very like missing the forest for the trees. Only seeing that one thing...
  11. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    See this post, not lot of information on the PEG, PEJ not mentioned: And yes, these options should have been considered.
  12. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Not keeping track of weight loss is unfortunately common (often blamed on time constraints). Being on an eating disorder ward could also increase the problem as for ED some will avoid weighting the patient for fear of them becoming fixated on the weight. That said, it is difficult to weight...
  13. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    But even with eating disorders, if someone is close to death from starvation there is force feeding. As you and others have stated already, this is not a way to treat someone with any type of illness.
  14. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    If anyone has more information on the PEG part, I'd love to hear more specifics. PEG is recommended if nutrition support is believed to be needed for more than 3-6 weeks (unfortunately guidelines vary on the length of time so they can't be called "clear").
  15. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Except for outright stating that the risk of death outweights the risk of death from aspiration, I'm not sure I see the difference between this and general guidelines for providing nutrition support for any patient? Yes if the patient has a functioning gut we want food to be provided...
  16. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    There is. With partial PN the patient is able to have some food pass through the digestive system, but not enough to meet their nutrient needs. So PN is used to provide what the patient cannot receive through the intestines. @hibiscuswahine The lower end of 1400-1700 kcal would be unlikely to...
  17. Midnattsol

    News from Scandinavia

    One of Norway's pop-psychologists (Frode Thuen) has given a positive review on the book "Gjør ikke skade" ("Do no harm") by Frøydis Lilledalen (herself a psycholgist ill with ME). I think this will be helpful for having the book reach a larger audience :thumbup:
  18. Midnattsol

    COFFI - The international collaborative on fatigue following infection

    Asking someone out for a cup of coffee is the strategy of two BPS supporters in Norway when they are criticised, and at least one of them is known to pester people with requests until they remove their criticism.
  19. Midnattsol

    GDF15 linked to maternal risk of nausea and vomiting during pregnancy 2023 Fejzo et al (hyperemesis gravidarum - morning sickness in pregnancy)

    I haven't listened so this might not be relevant, but metformin can cross the placenta and could thus influence fetal development. Currently metformin use during pregnancy is associated with small-for-gestational age at birth and childhood obesity. The father's use of metformin around time of...
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