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I am curious as to why the reference for other patients supporting a biopsychosocial view is the Norwegian Government's report on Women's health. It's not weird since one of the subsections on ME is one on Lightning Process written in positive words (one of the authors of the report is...

In the Lightning Process ethical review case, we saw one of the FHI/NIPH employee's who has been outspoken in favor of lightning process use her personal email address when contacting member of the ethical board, that would not have shown up in an FOI of NIPH.

I've said it before, but I've learned more about research methodology in the ME/CFS community than in my health science studies (PhD level!). Well written @Hutan

Engel is still taught in Norwegian nursing school(s).

Yes to the above. If you want more to read there have been studies on heat shock proteins (HSPs) and ME/CFS too. HSPs are important to protect celluøar proteins from external stressors and avoid structural degradation (they got the name from heat stress, but are also activated by other types of...

That too. There are so many things that could influence why someone would be referred. One thing that could make the numbers worse than they are are milder patients being more able to advocate for getting treatment (but might also have read up on GET and not wanting to go that route?). Agreed...

Germany's obesity rate is about 20%, so having the PCS/non-PCS group split between 30% and 12% are again suggesting people with lower socioeconomic status have more diagnoses (and they would likely have more physically stressfull jobs with less possibilities to avoid PEM). On reverse causality...

As far as I know, cutting Cochrane was part of overall budget cuts. The move to HVL was the same year as FHI lost 400 million Norwegian Kroners in government funding.

As far as I'm aware FHI "lost" Cochrane due to lack of funding (there has been a lot of reorganization lately in Norwegian health government, and in what responsibilities public offices like FHI should hold, too). Anything in particular you think is strange and I can try to find if anything is...

And while we wait for said new research, let's not act on what we have. A potential loss of >2% gross domestic product is not worrying. :thumbup: (This is sarcasm!)

We have been off to a strong start of the year when it comes to opinion pieces, with several accepted from patient advocates Frøydis Lilledalen and Lena Kjempegren-Vold :thumbup: Forskning.no Helsesystemet står med svekket tillit i møtet med ME-pasienter | The health care system has little...

Moved posts A problem in Scandinavia is that we also have people who use biopsychosocial as it should be used, and they cannot for the life of them understand why ME patients object to it. And unfortunately in stead of trying to understand where ME patients are coming from, patients are then...

Ignoring the point of the question and latching on to the use of the world "probably"... not exactly following good practice.

Looking forward to how Wyller et al's work will include more representative patient populations going forward than what they have in the past :thumbup: Edit to add: Remember Wyller is amongst the researchers who have argued diagnostic criteria don't matter.

There is a puff-piece on the study in a news site for health interested today (paywalled) including an enthusiatic "we could save a lot of money by having patients seen in the clinic rather than in long-term rehab stays" It would be even cheaper to drop the clinical visits too :whistle:

For myself I conceptualise sensory stimuli, temperature changes, an infection and other things as different types of exertion for the body. They are things the body has to deal with in one way or other, and at least for me I don't see the difference between accepting cognitive load or emotions...

I'm generally mild. With PEM, I have been unable to get to the store two minutes of walking from the apartment we were currently living in. I might not be in bed when like that, but I am not necessarily able to walk very far without support, and even with support my body can just quit on me. I...

Like @Peter Trewhitt I can experience the more paradoxical aspects of PEM immediately, and I think I am then in "rolling PEM", or PEM has been growing and by chance came apparent when doing something or other. But who really knows? We need research.

There are studies on translocation of LPS from the gut into the bloodstream in many diseases, including ME/CFS. Also seen during heavy exertion in otherwise healthy people. Reduced integrity of the gut lining ("leaky gut") has been in the news and blamed for various ailments, without that...

Impressive to say that the treatment used and promoted for decades has been overlooked.