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  1. Midnattsol

    Can we influence trial and review methodology, eg open-label trials with subjective primary outcomes?

    But we work together (which is good for funding: it's multidisciplinary!). And having other fields being critical of behavior research makes it easy to argue to your in-group "those people just don't get what we do" and ignore the criticism like before.
  2. Midnattsol

    Can we influence trial and review methodology, eg open-label trials with subjective primary outcomes?

    Those of us in behavioral fields are taught methodology together with those who go on to be in different fields, I must admit I don't see those other fields as being better informed than "us". Being able to see that a study is not a double blind randomized controlled trial doesn't mean someone...
  3. Midnattsol

    Can we influence trial and review methodology, eg open-label trials with subjective primary outcomes?

    If this is a problem in the whole field you are working in, you are setting yourself up to not receive funding or be taken seriously. And giving credence to anyone who say what you work with is all rubbish. I'm sure this will influence people in different ways, but as a dietitian we've been...
  4. Midnattsol

    News from Scandinavia

    I want to highlight that they mention ME/CFS :thumbup:
  5. Midnattsol

    Preprint Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms, 2025, Male+

    I'm not sure that is "more" likely. We really don't know all that much about normal/healthy menstruation either so who knows what is common.
  6. Midnattsol

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Not least adding that feeling we are not taken seriously is the worst that can happen, while referring to Maeve O'Neills case in the same text.
  7. Midnattsol

    Diabetes Distress and Associations With Demographic and Clinical Variables: A Registry Study of Adults With T1 Diabetes in Norway, 2023, Hernar et al

    In Norway we still have educational texts explaining diabetes type 1 as "childhood diabetes" and diabetes type 2 as "old man's diabetes", contributing to children with DT2 being treated as they have DT1 and adults with DT1 being treated as they have DT2. This is probably true in other countries...
  8. Midnattsol

    Diabetes Distress and Associations With Demographic and Clinical Variables: A Registry Study of Adults With T1 Diabetes in Norway, 2023, Hernar et al

    I thought some might find this article on distress interesting. Worrying about the future and complications I'd say is relevant for conditions other than diabetes. Like ME/CFS diabetes involves levels of self management and stigma that patients have brought the illness on themselves. Like with...
  9. Midnattsol

    Diabetes Distress and Associations With Demographic and Clinical Variables: A Registry Study of Adults With T1 Diabetes in Norway, 2023, Hernar et al

    Full title: Diabetes Distress and Associations With Demographic and Clinical Variables: A Nationwide Population-Based Registry Study of 10,186 Adults With Type 1 Diabetes in Norway Abstract: OBJECTIVE To estimate diabetes distress prevalence and associations with demographic and clinical...
  10. Midnattsol

    Brief Outpatient Rehabilitation Program for Post-COVID-19 Condition, Nerli et al, 2024 - with comment from T. Chalder

    It is Nerli, not Sørås, who says the reports are not scientific. Though I wish Sørås didn't say this treatment should be provided to LC patients.
  11. Midnattsol

    News from Scandinavia

    My experience is that a lot of health care workers also believe the hype of how progressive we are, so they refuse to believe we can be treated badly without there being good cause (ie. it's needed "tough love" we are treated with).
  12. Midnattsol

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I say stats, "research methodology, "trial design" and "pitfalls of data analysis" would be better. If the data can't be trusted I don't think knowledge on human nature should be needed. I've met too many doctor students and doctors without common sense to assume having it is a common trait...
  13. Midnattsol

    News from Scandinavia

    Another good opinion piece at the start of the year: Psykologiske tolkninger av fysiske symptomer er ingen eksakt vitenskap | Psychological interpretations of somatic symptoms is no exact science Also, there are several old articles on ME (and long covid) on the main page of Forskning.no for...
  14. Midnattsol

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    When collecting diet intake data in large studies, we are supposed to validate using a method with different bias. In practice food frequency intake questionnaires are used and then "validated" by performing a diet intake interview with a selection of the participants (both have similar biases...
  15. Midnattsol

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    While we are taught about double blind, the cop-out when not being able to blind the participant is the same as the BPS are using: "It's difficult" and left at that. Nothing about how using objective outcomes could reduce the issue, or that subjective outcomes would be an additional issue. And...
  16. Midnattsol

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I can't remember if it was mentioned at VGS, but I've had teachers skipping whole chapters/topics based on "this class wouldn't understand/I think we need to spend more time on another topic so this has to go" so my education pre-university might be lacking ;) From university I have 60+ ECTS in...
  17. Midnattsol

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    But when is this taught? I've taken methodology classes with medical students, and I've only ever really heard about this problem in the ME patient community. The go-to professor on stats at my medical faculty is a co-author on a study with just this problem (on ME patients to boot).
  18. Midnattsol

    Preprint Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms, 2025, Male+

    I was fully expecting to feel terrible during pregnancy, at least as the start as the luteal phase (from ovulation to menses) is when I've felt worst. However I felt pretty great throughout except for when I had post-partum preeclampsia. I've now (nearly ten months post partum) started to have...
  19. Midnattsol

    Thesis Investigation of an ME/CFS-associated Mutation in the Transmembrane PRR L-SIGN and Its Effect on Infection and Phagocytosis, 2024, Schwarz

    One of mine, that used data from a clinical trial, is not even published on the university’s own library pages as the chief investigator who owns the data had not published their findings. For the other the thesis is available from the university, but the scientific article is behind paywall at...
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