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This is a big issue I think in a broader sense. I'd like to see a thread on it in wherever the relevant place would be - noting this one is for services that individually can be addressed - discussing whether what we currently have is a set up where lots of the services saying they are for ME...

"nadir around August" I mean I can think of many illness-related reasons why it would be a certain point into peak or long terms that people would end up falling over, but I can't help but ask whether the researchers have accommodated for PHYSICIANS summer holidays. I know my dentists for...

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2770651 I think this is where people are trying to head in some areas. "Conclusions and Relevance The findings of this study suggest that improvements in clinical outcomes among participants randomized to placebo were not limited to...

Technically it is delay if you can complete more than you should have. I think it is easy to forget that normal people get signals from their body well before they are into a 'zone' that would lay them up for days+. Someone can't make themselves run a marathon fast enough to do enough damage, or...

Agree on the placebo being a bit of an emperors new clothes we've allowed them all to get away with for too long. No proof it is 'all in the mind of the patient', normally it is a trial effect - manipulation that requires and involves many people's behaviour, choices, set-ups and promises of...

It is incredibly naughty because those clinicians cannot speak for themselves, for all we know they could have thought it had been too soft on BPS. And I'm very sure that if the biomed side had inferred in the way these guys have then BPS would have noted that fact. Putting words in the mouths...

Keep the same people in, they do all this and then at best claim a 'compromise' AGAIN so at best you end up with BACME doing what they want. A load of money wasted on physios delivering motivating CBT about very little with no medical care - so basically ending up filling the clinic places they...

Wow. I mean we shouldn't be shocked at someone doing the right thing properly and taking it seriously, but it has been so bad for so long by so many

I've concluded from the number of these new jobs that seem to undermine the guideline that those in the current services genuinely believe that they are for them and all about them. And that nothing can move forward until they are cleared out. I feel so much less sympathy for any 'poor me'...

"One patient booklet, for example, informed patients: “You will experience a snowballing effect as increasing fitness leads to increasing confidence in your ability. You will have conquered CFS by your own effort and you will be back in control of your body again.”" And I think the other point...

I just have that horrible feeling it is 'manufactured' ie they get someone with severe ME and force them on a sleep hygeine and exercise regimen and then refuse to listen when they beg to sit down, eventually you get what would be called exhaustion of the kind no normal person would experience...

The original article sounds about right to my personal experience. It is essential things like this are written, heard and the what it feels like to have this body and what not enough rest and too much exertion does and feels like as a life is understood. When I see the video of Clare Gerada...

Is anyone medico-legal (or close enough they know what it looks like) on here? They definitely don't write in business-speak, so I'm curious to know whether this is the etiquette for medico-legal-speak and am open to knowing the answer either way

I find it insightful that she has used the noun 'patients' in response to an email to 'you'. All sorts of possibilities feeding into that

Is anyone actually going to do more than raise an eyebrow and forget about it with that one either? EDIT: OK now I know it is about Roe v Wade then that actually is one where people hopefully will do more Telling people to learn this term is not going to help them to communicate what has really...

I'm only going by the pseudonym but @Suffolkres might either be interested in this or shed light (if already aware). Agree that it is refreshing to see Nice, but you don't have to be cynical to think it could have been carried over from an old job description or they mean the old 2007 ones.

Interesting. I read this through and one neurologist talked about SHOWING them the Hoover's sign. I had to look this up. Seems to be about it only being genuine if when trying to lift the bad leg the patient is unable to do so without pushing through the heel of the good leg. But what about...

Good post

It can be harder to write though, something achieved through an edit process - and I'm not saying that means it should be skipped, just that the length mightn't be their 'aim/ideal' - I don't know and am curious.

Yes, it looks tricky. Normally I'd suggest whether there is someone who they know and respect is on their side (whether inside and high up or not necessarily inside) and comes from experience of getting things done, what's important etc (not necessarily ME, just campaigns or organisations like...