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The following para is interesting: "Efforts to identify causative factors in CFS are evolving as hypotheses are generated and tested. In the early 1980s it was speculated that persisting Epstein-Barr virus infection sustains the symptoms of CFS.9 That notion was rejected after careful...

@Sarah94 Sorry I didn't realise there were pics on the twitter thread. I have to agree that these look bigger even than the ones I have - which I got from LLoyds pharmacy (although I'm cautious that this was a while back so they might've changed what they sell) the order confirmation says...

Tricky one. Only an idea to try, but I have a small nose/face and have found with mine I put them 'high' and pinch the wire to sit it right on the top of the bridge of my nose - on some masks that has meant having around 1cm 'pinched together' so it sits like a line above my nose (if that...

So this seems to be from 1998, which to me underlines how if there were some sort of 'organised' function of going through the logical possibilities needing to be narrowed down and finessed over that period of time we all might be in a very different position. Part of it is obviously politics...

Agreed. But as a point really I think the main ME websites should have a section on this - I hate it being subsumed under the term 'intolerance' or 'sensitivity', because sadly in today's day and age that gives too many an excuse to suggest the problem is 'all ours' or one of perception and only...

With the various terms that are getting pushed - is this PASC term including people who had acute severe covid (in intensive care) and are 'recovering from that slowly but surely' lumped in with the long-covid, where they were never in hospital originally? I'm very concerned from what I've seen...

It seems to do a better job than most and is much more specific to the type of things found in ME/CFS that 'come under that mileu' rather than trying to claim 'a lumped entity of brain fog' - giving it the grace that noone is perhaps positioned to yet 'pull it all together' (different patterns...

Interesting - I seem to recall something like that being used for something else in either the same series or something very much like it for something like recovery or hydration after exercise? And it talking about nitrates or something being the reason for its choice? I've found this but no...

THIS is great to see. Probably the first article (certainly in a long time) that seems to be written by someone who knows what they are talking about. Would like to see this shared by MEA and other sources It also brings up the need for us to push towards getting scientific parts of psychology...

The worry is that no matter how not very far along research has got on these 2 areas, the punchline for such things always ends up with definitive suggestions for sleep hygeine and CBT being 'the answer' I say that knowing that getting people to understand ME/CFS is different to the collection...

In most areas it also isn't marketing anymore - CMA guidelines would require them to evidence and be able to reference any claims made (and so they would have to be in pretty specific to what the data actually tested words)

If you think about people going into a trial optimistic that this could be 'the cure' for whatever horrendous thing they have, and told the fact that if they don't get x% and miss it by just 1% then it won't get to round 2 etc then I see it as 'trial effect' rather than placebo anyway. You'd...

And they are going to the same people for the solutions and diagnosis of issues. There must be some wise riddle for 'this' somewhere in history that someone who has that type of mind or interest can pick out - for a start you sort of need to know what jobs people currently do and want to in...

I've only just seen these posts but fascinated by this because - if your description of air hunger is right it is insightful and takes the timline back to where I assumed with more precision: I used to be an athlete I started getting an inability quite often to get a full breath and would sit...

http://www.darkhorses.com/7-Deadly-Sins-Dark-Horses.pdf I really like this and thought I would post it so that I didn't forget it and where it was from (an advertising agency called Dark Horses) It is about 7 deadly sins in marketing women's sport (including things like treating it like a...

Yeah. You can tell these are done by people who didn't pay attention in their psychology degree to disabuse their presumptions before either. I've had pain and I've had chronic itching (yes the afraid to go to sleep because without will you will scratch holes in your own skin level). Quite the...

I'm interested because the findings and drop-out data are stark. I think there needs to be a check (and if needed a campaign) whether 'implicit threats/nudges/warnings' exist and/or existed for those dumped into the various categories of ME, CFS, MUS, PPS and the like under a paradigm where 'nod...

Did they test cheddar? I've just read the abstract and noted Camembert which I thought was strange if the only comparator to then call 'general cheese' given it is soft cheese. Given my personal preferences I'd really be looking to confirm whether cheddar, particularly melted cheddar does me...

This is a very good point. There is a huge issue in giving such space to someone as if they can speak for those who are in a worse situation. Everyone has a right to deal with their own life psychologically in a way that works for them at that situation in time. To translate that to advice on...

I'd hope they weren't done on patients who were severe putting them on a treadmill. They might not, and the methodology would need to be significantly different - ie looking at essential ADLs exertion-wise rather than treadmills. This seems to be one area that @PhysiosforME was looking at with...