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I guess if you read between the lines is he saying that cognitive techniques have no way of doing anything for ongoing/active immune activation and vascular dysregulation - so where these are generating the symptoms no difference would occur? But yes what is he including in 'secondary autonomic...

I wonder whether this is another issue with genericising everything under 'brain fog'. 20mins seems a feasible timespan for someone to be able to say talk and answer questions before cognitive fatigue kicking in - at which point it isn't my attention that is the issue but being able to find...

Yes, sort of, I didn't explain it well there are circumstances where you cannot rest as you need to and pushing through means adrenaline (which you might need). I agree with your differentiation - it happens because you've gone way over baseline but the crash, and the size of what it will be, is...

I hate the term brain fog. Tome it feels so naughty because there are specific types of cognitive impact that are all very different and easy to differentiate and describe to someone who is actually interested. Brain fog sounds like reducing cogntive fatigue when I have had too many complex...

I'm as cynical about some of what he has suggested as you - and worry they have got the wrong end of the stick by presuming order of things and reasons from observing rather than getting insight from patient in the body. Having said that, if I have to do something far far beyond my baseline...

Good point. People only know what something is from the information thye receive on it. I think this attitude from LC people just shows/reflects how terrible the discrimination and bad misinformation is still. How the job of getting across anything new about what it is has not been done. New...

Same people sound like they are ignoratn-arrogant enough to take people who've been in wheelchairs for decades and think they just need to spend 20mins coming up with a few naive presumptions to give them tips on how to make their wheeling better. Which apparently some people in this world do I...

It just sounds like cult-speak

Love the fact they've tried using bullet points to make it look like one leads to the other/these re connected. Do people who get flu lose 30% of their muscle mass then? Is there nothing like the CMA for medicine? A company stating something inaccurate (particularly where unreferenced) would be...

That's disturbing. PEM/PESE is the kryptonite to the fatigue/mind paradigm BPS are trying to push for ME/CFS. Trying to basically use the advertising theory to hijack PEM so that people think you are mis-saying post-exertional-fatigue because THAT'S what they've had imputed into their memories...

I know this is retrospective that I've found this (I found it as I was wondering who on earth this woman turner-stokes is that is on the Jan 2021 FOI release). However, from what I can she her sudden 'interest' (doubt she spent more than 5mins cribbing something to put down on the sheet that is...

it is like a metaphor for the whole lives being wrecked by dead-headedness of medics with ME what they've done here. Some idiot not remembering that extrapolating forward and indeed inference is based on ASSUMPTIONS. Drawing the lines past this point of 'this is what happens when someone goes...

:laugh::laugh: weird isn't it - you'd think more of them would admire the Oliver Sacks stuff and have (if they didn't innately have it) learned to look into that. Their attitude seems so backwards looking to decide that insight from the person living in the body is 'irrelevant'. Someone is...

Yep the anxiety idea is always a laugh. Even in the most stressful of times when you actually need to think about things or give yourself time to stress the body just carks out eventually like when you can't finish watching a film from exhaustion - it's the one illness that it would be hard to...

The brainwashing seems to have gone so far (by making most medical professionals say 'the mind affects body' to refer them off on a pathway so many times a day I assume indoctrination of the sayer occurs where they assume they believe and understand it) that even established professionals now...

It's weird that the GPs like this have got that far in reading the papers they push out on placebo effect (a BPS favourite), and on reading the rubbish wastepapers on BPS et associates' 'treatments' based on unblinded controls and subjective measures (just like the placebos in the...

it would be sooo interesting if participants were given their unique ID number in the raw data, so one could see this contemporaneous evidence alongside how it was 'dealt with' by investigators. Patterns such as people being categorised as dropped-out, recovered/not declining rather than...

I see your concern. That the things those who have ME generally all need is medical checks and functional support - ie the last thing they are is thick and needing the concept of 'pacing' described in detail, they do however often live in a world that actively makes that impossible unless...

Surely they cannot justify not having a register to check for how many needed emergency or non-emergency surgery for a set time longer than that? I say this assuming that ethics mean they cannot recruit those who would obviously need an appendectomy relatively urgently in that 6mnth space of...

I guess patients should take strength in the fact that they are not alone in getting blamed when their treatments don't work It addresses the 'harms, what harms?' issue by suggesting (which I'm pretty sure I've seen them do before recently) they had 'safety measures' (did they?) and 'it must...