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trust them to go for the word 'beliefs'. You sort of want to peel out that Mrs Merton classic line of "so what first attracted you to the millionaire Paul Daniels?" to say back to them. There is a reason that one has to declare financial etc conflicts of interest. They tend to influence what...

Is there a case study anywhere of what was involved and how this was done? Just thinking if this is a way forward whether we have somewhere that these things are collected for learning and building on purposes.

Brilliant. And particularly glad for seeing what is in the last paragraph said. If only this, and indeed the penultimate line, would act as a wake-up call/look in the mirror to get a few to think about whether that which might become habit is how it is supposed to be.

trust them to go for the word 'beliefs'. You sort of want to peel out that Mrs Merton classic line of "so what first attracted you to the millionaire Paul Daniels?" to say back to them. There is a reason that one has to declare financial etc conflicts of interest. They tend to influence what...

and the workwell research demonstrating PEM. with all it's non-subjective issues. They are using sophism again to try and make it look like PEM is the subjective variable using deflection when really it is what it is replacing that is subjective.

and the review had to be done because the CDC had thrown out CBT and GET, based on their assessment of the research in 2017. Based on the Academy of Medicine (previously Institute of Medicine) being commissioned to look into the state of research/treatment of patients, which reported in 2015...

Indeed if you can (which sadly not all who read what BPS write can) step back and think - hmmm so PEM/PESE is the cardinal symptom for ME/CFS. They've found some cancer survivors have developed PEM/PESE. How does this make their research where due to their using Oxford/Fukada their...

I think you are on the right track talking PEM/needing to understand the 'phase/stage' the body is in before they interpret anything. My next bit is I'm afraid a bit of a ramble focused on mainly the thinking out loud on the overbreathing, what it is and how it could be miscontrued but how my...

indeed - it definitely needs objective measures, and it definitely needs much longer longitudinal measures - with drop-out rates from the start not being used as a 'control'. My personal gut feelings from experience on where this one might head then anyone who 'got conned' and has ME will not...

It's also worth noting (as relates back to Knoop's current proposed research) that Fukada criteria were used for CFS and they seemed to be new referrals betwen 2008-10 to a centre. They used the following definitions for 'low active' and 'high active': "Two groups of patients are discerned...

I can't believe how many people in this world act like this. It's dumb. It's apalling. And leads to quite dangerous things happening to ill people at laymen's hands. But they are allowed to get away with it and noone pulls them up or forces them to look at the consequences of their behaviour...

And that most important tactic of all - that if you make the monitored requirement hard enough then anyone who actually has ME drops out. I call it the Krypton Factor filter. The last thing you want is someone getting ill in your timeframe of measurement affecting your figures and having to...

You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and more active group if they aren't going to measure their level of activity at any point other than the start. I wonder if he's spotted something...

Copied from ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19. You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and...

Is the issue awareness of it or them not wanting to do it even if they know about it?

That, given our situation, is a very important point to make and warning to bear in mind

I like that idea as a place to look for inspiration. Second the power bit being as important as the energy bit. Also feel the part that eludes people is continuing to 'function' (although you wonder how they don't see it in you when you catch yourself in the mirror) when you are way past your...

Get exactly what you are saying. I think it was certainly taken on by the business literature to describe people as 'time poor' (convenience mattering) as well as money poor or whatever. I don't think other people can get their head around what 'energy poor' means though. I think it needs to...

Yes reminds me of the annoying (even the OH person said that) computer programme that shut your screen down every 15mins for a short time period 'to give you a break'. You can imagine the scenarios where you are mid-email or something and you end up having to re-read the whole thing to get back...

I think that last line of yours is important. Just as they develop synacthen test type things to differentiate secondary from primary in those various illnesses, are there any mechanisms that could be probed to separate these out? I guess just like with those conditions it could be that there...