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I meant a proper investigation into whether this type of CBT should ever have been offered and is harmful - doubly bad that the cause is biological. The rest of it notes about false memory scandal - which was huge at the time for the psych world, because it talked of people having false memories...

That's awful I'm so sorry you went through this and second the comments from @Trish There is a very important point you've made in here - regarding the repetitious use of certain surveys and how these in themselves should be being assessed (by any sensible system that actually assessed the...

Spot on

It is bigotry. Plain old. And really nasty level stuff too, incorporating misogyny and cliches and disability troping (not ablism, worse than that). The sort of trope someone really unpleasant would do in a close relationship to get someone to blame themselves for harm that happened to them. Not...

First and foremost it is about someone who must have engaged in an entirely now banned therapy. Which says a lot about the quality of this place if they think CBT is CBT and can't spot the difference. Which leads me onto the second issue - what situation was this individual in when they wrote...

I'm interested in this but don't have the brainpower currently to do the 'put it together thoughts' it probably deserves. My gut is that in the past sometimes my cognitive symptoms have seemed like this (and I have enough CO detectors around my home to prove this, particularly in the past). I'm...

Many have muscle wastage, what is the term for 'muscle gone but not necessarily due to lack of use' or does it all have that cause and is deconditioning? I'm sure I got it when I was still having to walk about including significant vs the condition regular ones for things like commutes (which...

No you are not alone. The way the situation has been over the last few decades has made me unsafe (not 'feel' unsafe, but actually unsafe) and have to wake up and think each day how doI protect myself e.g. freedom and all things that come with the issues the system and myths caused then allowed...

I don't just suspect. I'd want evidence it was anything other than a choice because of how website updating works (sign-off processes - which can by the way be FOI'd, to see who chose to include it) Case studies are chosen, edited, briefed to fit a specific purpose. And to convey information...

That 'case study' is outrageous, these should always relate, rather than pull against the main message so their choice to include this is suspicious. It is clearly very old with regards treatment or diagnoses so it just a red herring: "There are times I thought I was going mad. The term...

The author's access states that 'unfortunately due to financial reasons' on these not happenning to provide objective data. I wonder whether they maybe hoped that providing the case studies could in itself be a bid to fund 7 tests along these lines. I don't know whether the NASA Lean test even...

In fact the whole online checkout algorithm could be a good starting point for all of this. I'm thinking they've have the 'you usually buy', 'incomplete offers' (where these symptoms tend to come together), 'have you thought about' (which could be 'popular items' at that time e.g. heat-related...

To be fair there are probably some examples from e.g. research in business about using such scales vs 'global estimates' and accuracy. There is a lot to be said for (and confirmed in past literature) people's ability to get a concept and be able to assess that instinctively more directly than...

I suspect that phone-data level is the only effective way (goodness knows how you encapsulate all the elements as cogntive/looking at things etc) because I know from having to spend so many years working whilst really ill that it 'collects' e.g. the classic weekend in bed radically resting (I...

Like vertigo? By which I can't tell whether it is balance-related or stimulation-related (ie like watching a fly whizz round the room is like a normal person being at a strobe-light disco) but it obviously has nothing to do with heights

Indeed, and if you are working by things like Heart rate and input into phone apps which is then aggregated across large numbers then the privacy and intrusiveness is more tackle-able (you need to know less about the individual intricacies on an outlier as it skews data less etc) and you don't...

Agreed I think we have to get our head around the fact that if someone using good methodology (Workwell, physiosforME have shown much better indicators of this) isn't setting standards of how these things should be measured, and how such results should be interpreted (ie not lumping and dumping...

Well said, they need to sort out a good vocab desperately. Baseline even in the context it is used 'right' for ME is actually the complete opposite of its usual meaning in every other walk of life. You are supposed to go nowhere near it, rather than progress from.. I'm one of the worst for...

As a side question to all that your point about "be careful about referring to mild": I've seen it written here that the mild, moderate etc might be better described in 'stages'. I can see the benefit of this for these types of comms, I can also see the important of it in lobbying for/changing...

Good point - I read it differently. One thing would be that it would give 'official back-up' to some pretty outrageous to others claims of how long we need to rest completely in order to recover from a short chat or an argument or a small activity. Or bigger ones, and make it easier to say 'no'...