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    Functional Neurological Disorders and COVID-19 Vaccine: a Call for Action, 2022, Fung and Fasano

    What a laugh! Yep looks like the mental map that is a no-win trick for 'wrong-face' people who walk into the door of certain physicians, sort of useful to have it diagrammed out As you say no numbers on the time axis, so over your entire life: predisposing factors include: education...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I don't know if she had other jobs elsewhere but I know that she started out doing PR for a college/uni. In that instance the 'PR dept' would be providing access to scientists in order to increase the profile and reputation of both the scientist and the organisation, and maybe to fulfill...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    There is the following article from Sean O'Neill from June 2020: https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt which is ME-specific and goes onto talking about FII more but includes the following: "Hundreds of families whose children...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    OK thanks. Most of my impression of this issue has been from news articles I've seen of recent years (not all from the ME side of things). I'm adding up the issue covering those under the austistic spectrum and whether there are also other certain conditions that would tend to be vulnerable to...
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    Open Medicine Foundation (OMF)

    I noticed that decrease in impedance for all conditions where it wasn't healthy cells in healthy plasma. Which is where it got me thinking what the nanoneedle is precisely measuring and whether it was the salt. e.g. wondering whether even for the me/cfs cells in healthy plasma did they 'wash'...
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    Open Medicine Foundation (OMF)

    I'm going round in circles imagining the set-up because that was exactly what I assumed at first thought, but then thought it didn't sound 'clean enough' in relation to the conclusions/description. I also then start thinking what is the concentration of cells to plasma to salt and whether...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    That's interesting. Because it doesn't focus on the truth issue - but really emphasises that this is about the PR industry surrounding medicine. If you think about it, from her and the SMC's job point of view, it is a fantastic advertisement. They are in PR and the truth seems to be that those...
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I'd be surprised if it means anything at all legally? I certainly remember that we were warned re: CMA regs that you could no longer just use disclaimers to cover up not providing required information accurately (and we have to be able to reference any figures etc claimed) I also note that...
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    Open Medicine Foundation (OMF)

    Thank you. It's pretty relevant stuff to define in the methodology it feels - I tried google and was surprised that I didn't just get the answer. I've seen an engineering-related paper that talks of nanoneedles that can go inside (but then that just throws various other questions in my mind)...
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    Open Medicine Foundation (OMF)

    Am I right in assuming that to measure impendence they are using the nanoneedle to penetrate the cell itself? and how do they get salt into the cell without it going into the plasma, and would it matter if they did?
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    Yes I've added in the word 'staff' but still not sure how it reads (or how to rectify - yesterday wasn't a good day noise wise). What has been the cost so far of FII when you total up everything involved for all the cases put through this (at any level of the process)? So you've potentially...
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    FII (fabricated and induced illness), and the new ME/CFS guideline

    How this can claim 'it might reduce the need for safeguarding interventions' (when that sounds like exactly what it is introducing) when it notes it 'lacks sensitivity and specificity'. Isn't the 'hard job' of social work being able to identify, well, the cases where terrible harm could occur...
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    Mental health outcomes in patients with a long-term condition: analysis of an IAPT service, 2022, Moss-Morris et al

    It's just an unkind and unscientific or even logical 'solution' to a 'problem' come up with by narcissists who like to use phrases like 'playing the victim' whilst normally engaging in antisocial or inconsiderate behaviour towards said person. When I was doing my BSc Psychology I would say...
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    The biopsychosocial model is lost in translation: from misrepresentation to an enactive modernization, 2022, Stilwell et al

    the arrows got reversed, basically to make it look like the patient is the one causing all the nonsense of financial, social (e.g. bigotry, lack of support) - I still don't get how changing the way the 'victim' thinks ever conned anyone as a solution. I can't find any way of getting more than...
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    Open Medicine Foundation (OMF)

    You've got me thinking. The latest message that I got was that it was the plasma (below copied from: https://www.virology.ws/2019/12/16/trial-by-error-simon-mcgrath-on-ron-davis-on-something-in-the-blood/) "As in the previous graph, impedance shoots up for ME/CFS in their own plasma, while...
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    The Hans Eysenck affair: Time to correct the scientific record (2019) David F Marks

    Not being 'passive' also helps you not get fobbed off and end up with a late stage diagnosis or any of the other medical factors that can make all the difference too I can well imagine. This just sounds like tosh sold to distract in the misogynistic/narcissistic 'false hope' presumption some...
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    Medical Research Council funding to 2025

    Interesting to get that confirmed. And agreed on the focus re: biggest issue area of last few years being NIHR vs MRC. Yes, I've done a very cursory scout and the only MRC ones seems to be Chalder moving into functional neurological disorder type areas (often with Anthony David it seems) e.g...
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    Medical Research Council funding to 2025

    side note as I look up to see where the grants for certain researchers have been from. There is currently: Esther Crawley: Sanofi: Exploring the prevalence of Pompe’s disease in patients diagnosed with CFS/ME: £550,000 Listed here: https://www.bristol.ac.uk/academic-child-health/grants/...
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I'd say feel free to add - the best inspiration often comes from comparing how things work in different systems for different conditions, and someone asking the 'obvious questions' that when you get used to something operating a certain way you don't see anymore e.g. 'why do they do that' might...
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