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They are saying that the thing they measured by questionnaire only ('global meta' and then for some reason questionnaires on anxiety and depression too) 'influenced' 'prior' the actual cognition performance as that level didn't correlate with controls/norms, so it must have been their...

Indeed, I think a standard for websites is still things like Unique Users, visits and members - it is well-known with forums that there is an iceberg situation (seem to remember it being called 'lurkers' and there commonly be people who just comment every so often etc) re: those who comment vs...

I've no idea - probably different 'ends' ie one high, one low they are looking at if so. I've mainly flagged it as it seems like an NHS service is writing letters saying 'we did the 5HT receptor test and it was low which is consistent with CFS' ie as if this is being used as a diagnostic by...

That is my concern somewhat. These seem to be official letters by the looks from an NHS service saying this with some certainty of statement and patient being relieved to finally get diagnosis etc.

Something I have now seen a number of times over the last few months is people who have just been diagnosed talking about how it has been confirmed with a 5HT test. It would seem the healthcare (NHS-based it seems, maybe all from similar or the same place?) involved states this to be some sort...

what a poisonous ramble/manifesto

I don't fully get why the research is needed. I can imagine who the individuals are (almost imagine the types of interactions going on at an appointment), and noone is being told anything new More to the point given that taking allopurinol or not and getting agonising pain is instrumental...

Probably a stupid comment, but had a moment of thinking really one of the issues is the order they've jammed words together with. Really it is 'social-psycho' if you are thinking about what impacts on what, or there is probably something even more precise. It doesn't tend to be the individual's...

Is it NIHR projects where the primary outcomes were getting switched after recruitment, sometimes seemingly happening rather a lot? I do not understand how a project can be allocated funding on one basis and then significant changes can be made to the extent some of these changes represented...

Very hard to know without seeing any more of the article what it is claiming and whether that has any robustness behind it. eg I don't even what they mean and have focused on in 'psychosocial issues' under their 4 themes. Definitely don't know whether their conclusions of support being offered...

Here's the horrible bit about ME and how it has been 'played': exertion makes it worse, ergo others being inconsiderate and lack of adjustments means that people can't survive or keep themselves within their baseline to keep their health from getting worse (and the little bit of energy being...

This question of 'who at the NIHR in the past' has been allowing so many of these BPS projects funding is something I'm really interested in. I don't know where the power structures lie e.g. whether it is delegated in various ways down to different people or sections or is part of a strategy at...

100% agree. Used a bright light box for years not that long ago. I'd be looking very closely at their timeframe for 'outcomes' and what specifically they think they are measuring given the likelihood that you can force people to try and sleep at set times, but the likelihood of relapse ie it...

I'll probably do the same (not that I think anyone I know would actually follow-through, but one can but hope) @adambeyoncelowe is there already a copy on here? just thinking for posterity in case it disappears down the reviews or anything dodgy happens..

Is John Grisham still doing novels?

It's spot on. I hope it felt as good writing it as it did reading it

It does feel time. Sometimes there are points where people go so far over the line that they are trying to set new precedents about what is acceptable and what truth is. My gut says we need to be smart here, but that highlighting this - certainly from the perspective of history once those...

I think that long covid is being used as a trojan horse by the same individuals, as well as it obviously being a big prize in itself. Two bites at the cherry so to speak by them realising that the ME guidelines were perhaps long gone they've been fighting tooth and nail to delay, delay and...

If that is the case then there is enough work going on in certain parts of psychology that look at the processing involved in movement - particularly with things like stroke or brain injury or illness - for that to be significant. I'm thinking with the forward and backward processing involving...

It's a weird set-up in the UK. There is a shortage. We hear of the police picking up some with mental health issues (not the ME sort of situation I don't think, but on news programmes) and them being stuck in police cells short-term. But because most psych beds nowadays are actually private...