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Am I right in thinking that it is not abnormal to have a professional team in with you to work out what you want to say? EDITED TO ADD: Actually the better-cultured set-ups actually value the input of professionals who can help with defining what is possible in a timeframe when project managing...

NO you are correct on context and that being what most people think of it as. I guess the picture it is drawing in the phrase is that of seeing above a certain stage but not being able to get there I think the more common types of phrase in this context involve terms like 'with teeth'. Because...

This seems shockingly poor in basic required quality. Reference 11 is the reference that apparently applies to their claim that IAPT reducing costs of sickness absence (I was looking it up because I wondered whether this study actually remembered that sickness absence gets logged in a different...

That's good to know that the leaflet itself is OK. But the issue was the perception/message that was given by the post itself (hence not detailing the leaflet particularly - as most won't read it given it is paid for), and more importantly the quote. Both of which would be read. And whilst...

Merged thread MEA social media post and leaflet on 'managing your emotions' - BPS narrative? I wanted to put this in the main news, but then I wondered is it psychosomatic or advocacy or what. But to me this feels an important one to flag and ask whether anyone else feels the same on it? Can...

I think that they have some important points to make and add. For example I think the following relates to how dangerous hospital admissions can be for those with severe ME in particular currently (as well as plenty of other risky situations for those who get acutely ill/come across the wrong...

imagine getting to do all of those things, and no payback that means you spend most of the holiday in bed (even if mild) or it causes a relapse to an even lower level of function. That's what is so sickening about what they put out. Many can try and do these things - but they get an unfair...

Ha ha - it's all a bit 'League of Gentlemen' (BBC TV show from a while back: https://en.wikipedia.org/wiki/The_League_of_Gentlemen where the same few actors played all the characters) with this group anyway

Nah it's only 'believeable' to them because it backs up what they want to claim. If he was to be saying the opposite not sure they'd be changing their tune on what they think of long covid and having it at their conference. the bit I am intrigued by (wondering how long he knew these people, as...

Agreed - not 100% sure where (or if there is a single source or just noone stepping back from their took 1 second to make an assumption belief) the ideologies came from, or if anyone was actually following them or the guidelines just provided a back-cover for that. But the reality is that...

On that note I think it seriously needs to be happening as part of an anti-discrimination/'ism' (we need our own phrase for that because it's extensive) compulsory training. And yes it should be that intensive and extensive as a course given how deep their issues are/go, and how they've had it...

hmm good point. The acceptance issue seems to be more of an issue for those without ME, who should be accepting. I worry that 'acceptance courses' are all about accepting that - which would be nice and convenient for those who in my mind are behaving unacceptably, and most of us strike a balance...

Too right. Contradiction in terms that someone would professionally talk about goals and acceptance whilst claiming to know about ME. Tenacious as you can be, anything needs to be incremental - and goals need to be what you want/need not 'achieve' in some pat on the head get a medal sense...

I think the term is used lots in the emotional sense or to bring in some 'mind' aspect. But it also is just what pacing actually is. Just like someone joining a running group accepting that trying to sprint the whole way around 400m ends in them crawling the last 1-200m and they get a better...

I don't have a source but I had an abnormally very enlarged gland and tonsils in quincy state for 18mnths as well as being ill and achy, once tonsils were out it was then over 6mnths before gland reduced and was still just as ill. All seemed to very much be the EBV rather than a 'change of...

Hmm. I haven't had a chance to read through all the study, but I'm not sure all the criticism is correct on this one. If it is what I think it is study-wise then it is unusual in that it is 'organic' and longitudinal scanning of students - they can't guarantee who gets EBV and from there what...

I think that it's rude (and intended to be so) that he has used that term in the first place - given that it is written and he'd have had more than enough time to check etiquette I assume it is choice which tells me all I need to know about his personality and purpose in writing it. Using the...

Spot on. It's dumping a heterogenous load of ill people into a bucket and instigating that research must be lowest-common denominator leaving very few things that would ever actually work if you were doing real research, but a nice funding con for those who claim tiny effects across larger...

Reading this you've convinced me that the real disease that we are looking at is one of hubris potentially. Or grandiosity. I'm sure there is a good helping of those who haven't even deluded themselves they are doing anything other than dumping someone into a convenient bucket and other reasons...

I think one of the unwritten things here if the UK NHS GP system is pathways, data and financial nudges etc + big workloads. Hence the 'gatekeeper' analogy. It is a machine in a way. Many real illnesses seem to have pathways that actively tell the GP to send the patient away with whatever...