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  1. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,597 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  2. Andy

    International: Science for ME social media posts

    Published papers from w/c 9th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02aVeX8nZVvPPKMHizudhW3ofJaZiYnGEYqYd8xmKxmceMtPEDUyp2KgG1Jvqtato1l Mastodon: https://med-mastodon.com/@s4me/111243588397803713
  3. Andy

    Review The Impact of Depression, Anxiety and Personality Disorders on the Outcome of Patients with Functional Limb Weakness... 2023 Calma, Perez, Stone et al

    Full title: The Impact of Depression, Anxiety and Personality Disorders on the Outcome of Patients with Functional Limb Weakness – Individual Patient Data Meta-Analysis Objective Psychiatric comorbidities such as depression, anxiety, and personality disorders are common in patients with...
  4. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 9th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid0DXNisfLYG88kkDcPqFk6QM8EaBghQSNdSxP6dPrLN2tMAtAKeuAFxyxkp4tTVGuYl Mastodon: https://med-mastodon.com/@s4me/111239003056492168
  5. Andy

    Predicting Myalgic Encephalomyelitis/Chronic Fatigue Syndrome from Early Symptoms of COVID-19 Infection , 2023, Hua et al

    Peer review record is here, https://www.mdpi.com/2624-8611/5/4/73/review_report
  6. Andy

    Fibrin microthrombi in bladder urothelium after SARS-CoV-2 infection: Case report, 2023, Roberts et al

    Abstract A 45-year-old male with diabetes, hypertension and hyperlipidemia was referred to urology due to persistent symptoms of urinary frequency, urgency, nocturia, erectile dysfunction, and constant pain localized to the bladder, pelvis, and perineal area, 3–4 months after SARS-CoV-2...
  7. Andy

    Association of SARS‐CoV‐2 Infection & Cardiopulmonary Long COVID W/Exercise Capacity & Chronotropic Incompetence Among People W/HIV 2023 Durstenfeld

    Abstract Background Postacute sequelae of COVID‐19 (PASC) and HIV are both associated with reduced exercise capacity, but whether SARS‐CoV‐2 or PASC are associated with exercise capacity among people with HIV (PWH) is unknown. We hypothesized that PWH with PASC would have reduced exercise...
  8. Andy

    Opinion Post-COVID and ME/CFS – DoWe Need New Disease Theories? 2023 Schauenburg

    ABSTRACT Background and Research Question: The SARS-CoV-2 pandemic often resulted in prolonged illness courses. A particular challenge today lies in the clinical presentation resembling that of Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS). Method: We review selected literature...
  9. Andy

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Trial By Error: Authors of Dutch Long Covid Paper Contradict Each Other https://virology.ws/2023/10/14/trial-by-error-authors-of-dutch-long-covid-paper-contradict-each-other/
  10. Andy

    Trial Report Investigating causal links between chronic physical illness and major depressive disorder and anxiety disorders in youth, 2023, Shakeshaft

    Given that a couple of authors are based at Aarhus I'm surprised that they reported the negative association.
  11. Andy

    Chronic fatigue syndrome in caregivers of children with cerebral palsy and affecting factors, 2023, Pasin et al.

    "According to CDC-1994 criteria, 80.4% of the participating mothers have CFS (n=45), and 19.6% have not (n=11)."
  12. Andy

    Article: This is the largest map of the human brain ever made

    "Researchers have created the largest atlas of human brain cells so far, revealing more than 3,000 cell types — many of which are new to science. The work, published in a package of 21 papers today in Science, Science Advances and Science Translational Medicine, will aid the study of diseases...
  13. Andy

    News from Cochrane

    I had a quick look to see if I could find a recording, sadly I couldn't. What I did find though was a session from the recent "Cochrane London" event entitled "Building trust through co creation: re-imagining evidence".
  14. Andy

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    He'll randomly post from time to time on social media posts repeating his claim to have invented pacing - in fact his last one was yesterday.
  15. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,514 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  16. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The 20,500 figure is the most up to date one, the slide quoting 20,000 must have been created from slightly older information and the discrepancy between the two slides not spotted. Spit kits are sent out in batches which, while recruitment is still open, is why the number of kits sent out will...
  17. Andy

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    Swedish investigation spoils Macchiarini cover-up at Lancet "New developments in the affair of the murderous trachea transplant surgeon and former Karolinska Institutet professor Paolo Macchiarini. The Swedish National Board for Assessment of Research Misconduct (NPOF) made a decision about a...
  18. Andy

    Exploring post-stroke fatigue from the perspective of stroke survivors: what strategies help? A qualitative study 2023 Delbridge et al

    Purpose Post-stroke fatigue is a research priority for stroke survivors and health professionals but there is limited evidence to guide management. We aimed to explore (1) the experience of post-stroke fatigue from the perspective of stroke survivors and their caregivers and (2) fatigue...
  19. Andy

    Utility of 2-day Cardiopulmonary Exercise Testing Protocol in LONG-HAUL COVID (LHC) PATIENTS: PRELIMINARY DATA, 2023, Abbasi et al

    Well, if you define PEM only as ‘Physically drained or sick after mild activity’ then you deliberately haven't correctly identified if your participants have PEM or not. Biased investigators will produce biased trials that will give biased results.
  20. Andy

    Preprint Dysautonomia and small fiber neuropathy in post-COVID condition and Chronic Fatigue Syndrome, 2023, Azcue

    "Patients diagnosed of ME/CFS should be previously diagnosed or meet the Fukuda et al.(6) criteria at the evaluation time."
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