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Naga Munchetty: I was failed and gaslit by NHS despite debilitating periods "Naga Munchetty has said she spent decades being failed, gaslit and “never taken seriously” by doctors, despite suffering debilitatingly heavy periods, repeated vomiting and pain so severe that she would lose...

Might be worth pointing out that this Knoop is Iris Knoop based at King's College London, not our old 'friend' Hans Knoop.

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystemic disease of unknown aetiology that is characterised by disabling chronic fatigue and involves both the immune and gastrointestinal (GI) systems. Patients display alterations in GI microbiome with a...

Full title: Exploring the complexities of illness identity and symptom management in seeking a diagnostic label of postural orthostatic tachycardia syndrome (POTS): An inductive approach Objectives Postural orthostatic tachycardia syndrome (POTS) is a debilitating and under-recognized...

Long covid: Researchers “extremely angry” at Boris Johnson’s “bollocks” comment "Clinicians who led research on long covid from early on in the pandemic and who met government members to discuss the condition have expressed sadness and anger after messages emerged in which the then prime...

In response to the above article. We need better care for long covid and ME/CFS "As a patient with severe long covid and myalgic encephalomyelitis (ME), I was pleased to see Dean’s article about a long covid clinic.1 I went from working on-call as a consultant to being unable to stand or feed...

What Went Wrong with a Highly Publicized COVID Mask Analysis? "In fairness to the Cochrane Library, the report did make clear that its conclusions were about the quality and capaciousness of available evidence, which the authors felt were insufficient to prove that masking was effective. It was...

At this point, without any findings, we can't know whether they will or won't be tested on animal models, or whether even the animal model would be relevant or not. Even if we do find something that suggests it might be worthwhile, in my opinion it is unlikely that any of the current DecodeME...

Trial By Error: Depression/Anxiety Not Linked to Negative Outcomes in Patients with Functional Limb Weakness, FND Experts Report https://virology.ws/2023/10/17/trial-by-error-depression-anxiety-not-linked-to-negative-outcomes-in-patients-with-functional-limb-weakness-fnd-experts-report/

Selected quotes from the paper.

Abstract Riboflavin, or vitamin B2, is an essential nutrient that serves as a precursor to flavin adenine dinucleotide (FAD) and flavin mononucleotide (FMN). The binding of the FAD and/or FMN cofactors to flavoproteins is critical for regulating their assembly and activity. There are over 90...

Abstract The willingness to exert effort for reward is essential but comes at the cost of fatigue. Theories suggest fatigue increases after both physical and cognitive exertion, subsequently reducing the motivation to exert effort. Yet a mechanistic understanding of how this happens on a...

The 12th Oct webinar recording and transcript is now available, https://www.decodeme.org.uk/webinar-recording-and-transcript-initial-questionnaire-analysis-decodeme/

Chris and Sian will be speaking to Edinburgh Medical School on Instagram Live on Weds 18th, 11:30am BST.

‘My self-worth plummeted every month’: the hidden disorder that can ruin women’s lives "By the time Emily got her diagnosis, she was under 24-hour supervision by her mum, suffering with anorexia and routinely self-harming. Her suicide attempts had numbered “too many to count”. She had seen...

Introduction Major traumatic injury is associated with early hemorrhage-related and late-stage deaths due to multiple organ failure (MOF). While improvements to hemostatic resuscitation have significantly reduced hemorrhage-related deaths, the incidence of MOF among trauma patients remains high...

Highlights Fatigue is a symptom with a serious impact on patients’ quality of life. Inclusion of fatigue as an RCT outcome is crucial to understand the impact of DMTs. Limited RCTs of DMTs assessed fatigue as an outcome. The reporting of PROs of DMT trials assessing fatigue is suboptimal...

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