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Full title: Self-regulation of effort for a better health-related quality of life: a multidimensional activity pacing model for chronic pain and fatigue management Abstract Purpose To propose a comprehensive multidimensional model of activity pacing that improves health-related quality of life...

For those who can't see tweets this is a DecodeME post sharing the video below. "In this video I participated in the Decode ME study by supplying my DNA sample through the spit kit and discussed the aims, values and process of the research with a member of the Decode ME team and fellow ME/CFS...

ONG PEM on Twitter "From our NGO we support this request S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review https://s4me.info/threads/s4me-2023-open-letter-to-cochrane-request-for-action-on-the-me-cfs-exercise-therapy-review.34973/…"

"In 2012, a review by David Molyneux, a parasitologist at the Liverpool School of Tropical Medicine (LSTM), UK, and his colleagues, attempted to draw attention to the relationship between these diseases and mental health1. The researchers pointed to multiple studies showing higher rates of...

"The devastating effect that lymphatic filariasis and its associated stigma have had on Jidda’s life is common among people with neglected tropical diseases (NTDs). These conditions are caused by a range of pathogens, including bacteria, viruses, fungi and toxins. They are united by the fact...

Thread on study here, Gut microbiota dynamics in a prospective cohort of patients with post-acute COVID-19 syndrome, 2022, Liu et al, although there is only one reply highlighting results were similar to similar studies in ME/CFS.

If we were 'simply' recruiting Long Covid patients then I would imagine that we would see a larger number of post-Covid patients but we are recruiting post-Covid patients who have been officially diagnosed with ME/CFS, and it is that diagnosis which seems to be the issue. However, in general, I...

Presumably he is referring to this study, Brain imaging study request for crowdfunding

Highlights Multiple sclerosis (MS) patients experience fatigue and declines in cognitive speed. Whole-brain measures of metabolism have been associated with MS symptom severity. Prefrontal metabolism was uniquely associated with MS declines in cognitive speed. Prefrontal metabolism measures may...

Transcript has now been corrected.

Published papers for w/c 16th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02tdteoqq3A7FKHSHvtmTgXwbWzVY6QqBUUFDy8svzXDx2Uyu9odZSfsgJDFXpnbQrl Mastodon: https://med-mastodon.com/@s4me/111283544094288654

Also implies that if someone can't prove that they have had a Covid infection that they then can't have Long Covid.

Abstract It is well known that glucose serves as the main energy substrate for the brain, and emerging evidence emphasizes its involvement in both physiological processes and disease (traumatic brain injury, memory, epilepsy, etc.). Furthermore, the usefulness of mathematical modeling in...

"Results A total of 2232 subjects were enrolled, an average of 248 patients per year. France had around 55 million inhabitants 18 years and over during our study period [17], resulting in a rate of around 4.5 new in-hospital FDIS codings per million adults per year." So, from a societal...

Objective Patients with factitious disorder imposed on self (FDIS) seek medical care for deliberately falsified problems. Although a large amount of work has been published, the scientific literature lacks robust data on FDIS. The present study aimed to estimate the annual mean of in-hospital...

News in Brief posts for w/c 16th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid021eoqjjbG1tE7RodSFX1EYumzmew6ErZiJofoLnXpChqDQqj5yjipsD5uP5w37K1ul Mastodon: https://med-mastodon.com/@s4me/111277894830631401

8,964 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Not only is PEM a common feature of ME/CFS, but it is arguably the most disabling. For both of those reasons, PEM should be a priority for investigation. I'm delighted that some individuals might be fortunate enough to have found some way that appears to resolve their PEM but that is not a good...

Full title: A prospective randomized, double-blind placebo-controlled study to evaluate the effectiveness of neuroprotective therapy using functional brain MRI in patients with post-covid chronic fatigue syndrome. Highlights Reduction of post-COVID fatigue was observed with CCSA (a novel...

Background: Multimodal pain therapy usually take place in the context of group therapy lasting several weeks and is based on a generally activating approach. Due to the specificity of stress intolerance with postexertional malaise (PEM) in patients with postviral syndromes, physical as well as...