Search results

NICE guideline is robust and globally supported "On 11th July, a new study was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member...

Blog from Brian Hughes. The cries for help are getting louder. And that’s a good sign "The JNNP article is little more than a self-serving letter to a friendly editor, infused with special pleading and groupthink. It has no standing other than as a work of academic contrarianship. It is a cry...

Trial By Error: Dutch Team Offers “Dog-Ate-My-Data” Excuses for Not Reporting Null Objective Findings https://virology.ws/2023/07/11/trial-by-error-dutch-team-offers-dog-ate-my-data-excuses-for-not-reporting-null-objective-findings/

Many of them are keen on labelling ME/CFS as a functional condition, and many are keen on using CBT and physiotherapy as 'treatments' for functional conditions, so to have NICE show that the evidence base for CBT and GET for ME/CFS is severely lacking undermines their position.

Notably, at least at time of me posting this, there was nothing about this on the Science Media Centre's site, https://www.sciencemediacentre.org/working-with-us/for-journalists/roundups-for-journalists/

Archived version here, https://web.archive.org/web/20230711064123/https://www.theguardian.com/society/2023/jul/11/chronic-fatigue-guidance-discouraging-exercise-is-flawed-say-researchers Using this link rather than the original will help the original sink faster out of view.

How does their membership criteria prevent them from potentially coproducing anything? That makes no sense to me, I'm not a member of the University of Edinburgh but I am part of the team that is coproducing DecodeME - you don't need to be in the same organisation to coproduce something.

Their criteria is "Membership of BACME is open to UK-based healthcare professionals and researchers involved in the diagnosis and/or treatment of ME/CFS using clinically effective practice." as shown here, https://bacme.info/join/ If you meet that criteria then you have grounds to be...

"All pathological conditions included in the functional somatic syndrome, such as fibromyalgia, chronic fatigue syndrome, chronic pain, and irritable bowel syndrome were significantly more frequent among patients with panic disorder."

Objective To assess the prevalence of panic disorder during the second and third waves of the COVID-19 pandemic. Design Cross-sectional multicenter study. Setting Primary care. Participants Participating primary care physicians selected patients visiting their primary care centers for any...

Full title: Chronic inflammation, neuroglia dysfunction, and plasmalogen deficiency as a new pathobiological hypothesis addressing the overlap between post-COVID-19 symptoms and myalgic encephalomyelitis/chronic fatigue syndrome Highlights Plasmalogens (Pls) are lipids containing a...

Now published, open access here, https://www.sciencedirect.com/science/article/pii/S2213231723001970

Published papers thread for w/c 3rd July Facebook: https://www.facebook.com/sci4me/posts/pfbid02qeWtFRw3mk8xTDfonyWo8E1B7kdVgCXcvA73GSeGQJTuiXY77BuFcWU7jv6Hnqb3l Mastodon: https://med-mastodon.com/@s4me/110689055155993280

Frustrating that when the article is talking about UK ME/CFS research that DecodeME isn't mentioned (although I may be slightly biased there) and surprising that they don't talk about Invest in ME's efforts that are looking at the gut microbiome.

Not sure why they aren't referencing the newer guideline, "NICE published guidelines in 2007 to help quantify fatigue severity in the context of ME/CFS."

Key points According to recent data from the US Census Bureau and CDCs National Center for Health Statistics, 7.5% or one in 13 patients diagnosed with coronavirus disease 2019 (COVID-19) reported long-term symptoms. Because of the varied possible etiologies causing post-acute sequelae of...

News in Brief posts for w/c 3rd July Facebook: https://www.facebook.com/sci4me/posts/pfbid0WR9sha5qveHp4eZshH278yX8y4SzJroZEWmfDizrpuf3gQL4szCATngingehoyiAl Mastodon: https://med-mastodon.com/@s4me/110683979905921290

John Pring from Disability News Service is asking on Twitter, "Many of you will know of the notorious 'Malingering and illness deception’ conference held in Woodstock, near Oxford, in November 2001, which was funded by DWP. Does anyone know the name of the hotel where the conference took place?"

"Stone et al.18 identified functional and psychological symptoms in 16% of patients referred to neurology clinics over 15 months."

Abstract Background: Functional neurological disorders (FND) lead to increased care requirements and costs, negatively impacting healthcare budgets. Healthcare expenditure in FND has escalated beyond other neurologic disorders during the past decade. Objectives: To assess inpatient costs in...