Search results

  1. Andy

    One-Year Follow-up of Young People with ME/CFS Following Infectious Mononucleosis by Epstein-Barr Virus, 2023 Scheibenbogen et al

    "ME/CFS is diagnosed according to clinical criteria and after exclusion of other diseases that might explain the symptoms [48]. In adults the systemic exertion intolerance disease (SEID)/Institute of Medicine (IOM) criteria [49] are recommended for screening and the Canadian Consensus Criteria...
  2. Andy

    Alpha-gal syndrome: Meat allergy linked to tick bites

    Merged thread The rate of Americans developing a rare meat allergy from tick bites is rising, researchers say, and may have already impacted as many as 450,000 people. New data released by the Centers for Disease Control and Prevention (CDC) on Thursday shows a steep increase in cases of...
  3. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Don't think this deserves a thread of its own, but thought it should be noted in case @dave30th wants to check the claims made Functional neurological disorder: a review, 2023, Dusara et al, published in British Dental Journal Abstract Functional neurological disorder is a common condition...
  4. Andy

    Ed Yong Articles on Long Covid & ME/CFS

    Or an alternative take is to praise how well he has listened to patients and, in taking them seriously, accurately reflected what they said in his writing while still making the article readable. There is far more to the article than a simple regurgitation of patients' accounts. Additionally...
  5. Andy

    Ed Yong Articles on Long Covid & ME/CFS

    Text from Ed Yong tweets, "When long-haulers talk about their fatigue, they often hear “Oh I’m tired too”. But theirs is utterly different to the everyday version healthy people get. More severe. Very hard to push through (& costly if you try). Not cured by sleep. Multifaceted."...
  6. Andy

    Ed Yong Articles on Long Covid & ME/CFS

    For those unable to view the tweet, Ed says "First, an important note. I’ve been told that this piece will be free to read for 24 hours, but will then go behind the paywall. Best I could do. If you’re not a subscriber and this is useful to you or your loved ones, I’d suggest saving a copy ASAP."
  7. Andy

    HHS Urges Primary Care Clinicians to Help Patients Manage Long COVID’s Mental Health Symptoms

    "COVID-19 may no longer be considered a public health emergency, but post–COVID-19 condition—also known as long COVID—remains a hurdle, according to the US Department of Health and Human Services (HHS). Through the Substance Abuse and Mental Health Services Administration (SAMHSA), HHS issued a...
  8. Andy

    Fatigue and physical activity patterns in children with Inflammatory Bowel Disease, 2023, Bevers et al

    Objectives: Fatigue is a common symptom in children with inflammatory bowel disease (IBD). Diagnostic tests to evaluate biological causes of fatigue commonly include markers of inflammation and haemoglobin (Hb), yet functional parameters have been inadequately studied in paediatric IBD. In...
  9. Andy

    Review Perioperative opioid-minimization approach as a useful protocol in the management of patients with Ehlers–Danlos syndrome-... 2023 Ramírez-Paesano

    "Some patients with Ehlers–Danlos syndrome-hypermobility type/joint hypermobility syndrome (EDS-HT/JHS) may suffer from Craniocervical Instability (CCI). CCI can result in continuous microtraumas and inflammation on craniocervical joint surfaces. It causes repetitive peripheral sensitization...
  10. Andy

    Review Perioperative opioid-minimization approach as a useful protocol in the management of patients with Ehlers–Danlos syndrome-... 2023 Ramírez-Paesano

    Full title: Perioperative opioid-minimization approach as a useful protocol in the management of patients with Ehlers–Danlos syndrome-hypermobility type, craniocervical instability and severe chronic pain who are to undergo occipito-cervical fixation Patients suffering from connective tissue...
  11. Andy

    Plasmapheresis to remove amyloid fibrin(ogen) particles for treating the post‐COVID‐19 condition, 2023, Garner et al

    Note the language. In my opinion, a professional, and more normal, way to have described it would have been as a hypothesis.
  12. Andy

    Preprint A Proposed Explainable Artificial Intelligence-Based Machine Learning Model for Discriminative Metabolites for ME/CFS, 2023, Yagin et al

    "ME/CFS Metabolomics Dataset The metabolomics data of CFS patients and healthy controls were utilized to perform the experiments in the study [2]." Reference [2] is Germain A, Barupal DK, Levine SM, Hanson MR. Comprehensive circulatory metabolomics in ME/CFS reveals disrupted metabolism of...
  13. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    "We’ve have over 18k DNA participants! Thank you to everyone who has taken part so far and for the great support in helping us spread the word! We are 75% of the way there and still need more so keep sharing! We are so thankful for the response after inviting more participants to provide DNA...
  14. Andy

    Reactivation of herpesvirus type-6 and IgA/IgM-mediated responses to activin-A underpin Long COVID, including affective symptoms and cfs 2023, Vojdani

    Sorry, meant to link to our thread on that paper, A rating scale for fibromyalgia and chronic fatigue syndrome (the FibroFatigue scale), 2002, Zachrisson et al
  15. Andy

    Reactivation of herpesvirus type-6 and IgA/IgM-mediated responses to activin-A underpin Long COVID, including affective symptoms and cfs 2023, Vojdani

    "Approximately three to four months after recovering from acute COVID-19, all participants in study 1 were interviewed by an experienced psychiatrist. The purpose of this interview was to collect information regarding the sociodemographic and clinical characteristics of the participants. The...
  16. Andy

    Review Management of Functional Somatic Syndromes and Bodily Distress 2018 Henningsen, Creed et al

    Functional somatic syndromes (FSS), like irritable bowel syndrome or fibromyalgia and other symptoms reflecting bodily distress, are common in practically all areas of medicine worldwide. Diagnostic and therapeutic approaches to these symptoms and syndromes vary substantially across and within...
  17. Andy

    Integrated Care for Patients with Somatic Symptom Disorder in Primary Care – A Qualitative Participatory Evaluation... 2023 Tönnies et al

    Full title: Integrated Care for Patients with Somatic Symptom Disorder in Primary Care – A Qualitative Participatory Evaluation of a Randomised Feasibility Trial Objective The VISION intervention is a manualized short-term treatment for people with somatic symptom disorder, integrated into...
  18. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 17th July Facebook: https://www.facebook.com/sci4me/posts/pfbid025mpUnY1NnZUEBMMa8a9udXRynF23SB6L2oLT1E7RTMeWnAwgeksnWqFbQrGy1pMYl Mastodon: https://med-mastodon.com/@s4me/110768503224649034
  19. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 17th July Facebook: https://www.facebook.com/sci4me/posts/pfbid02DFGnqDdZxxEYX1TM7vqgfetCZmxgYfx8dPuTGSejL9SBWtyPXVN61mF6RVZJ7C3dl Mastodon: https://med-mastodon.com/@s4me/110762830524204534
Back
Top Bottom