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  1. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Just a note on the use of the wording "well short". Some might take that to mean that we will not be successful if we don't recruit 25k DNA donors, and I wanted to reinforce the message that we already have enough DNA samples in order to run a GWAS, and if we receive samples back from all 20k...
  2. Andy

    International: Science for ME social media posts

    October News in Brief post on Reddit. https://www.reddit.com/r/cfs/comments/17l8tgy/news_in_brief_posts_for_october_2023_covering/
  3. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    "The next APPG on M.E. meeting with take place on Wednesday, 15 November 2023 from 1.30-2.30pm and we would be grateful if you could invite your MP to attend. The more MPs at these meetings the better the chance of raising awareness of key issues and lobbying for positive change."...
  4. Andy

    A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services, 2023, Melby and das Nair

    Full title: ‘We have no services for you… so you have to make the best out of it’: A qualitative study of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients’ dissatisfaction with healthcare services Introduction People should have access to healthcare services that are effective, safe...
  5. Andy

    PM2.5 exposure, glycemic markers and incidence of type 2 diabetes in two large Indian cities, 2023, Mandal et al

    Abstract Introduction Exposure to fine particulate matter has been associated with several cardiovascular and cardiometabolic diseases. However, such evidence mostly originates from low-pollution settings or cross-sectional studies, thus necessitating evidence from regions with high air...
  6. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,141 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  7. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 23rd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02D7Tzhzar9WFdtkt9dUES6hEVB8e5GvnNoPfgykecQ93hip9zh87f2EZVcMSZPzxnl
  8. Andy

    Guardian — Health anxiety can be all-consuming. Accepting uncertainty is an important step

    Two, among a number of, good comments from readers "It is sadly common to see people who are suffering badly with Long Covid (and other chronic illnesses) being diagnosed with somatic symptom disorder. They are then dismissed by multiple health providers as this incorrect diagnosis follows them...
  9. Andy

    Review Prevalence of sleep disturbances in patients with LC assessed by standardised questionnaires and diagnostic criteria... 2023 Chinvararak and Chalder

    Funding statement TC is part-funded by the National Institute for Health Research (NIHR) Biomedical Research Centre at South London and Maudsley NHS Foundation Trust and King's College London. Declaration of Competing Interest TC has grants from UKRI, NIHR and St Thomas' Charity. TC is the...
  10. Andy

    Review Prevalence of sleep disturbances in patients with LC assessed by standardised questionnaires and diagnostic criteria... 2023 Chinvararak and Chalder

    Highlights Sleep disturbances are highly prevalent in long COVID-19 patients. Sleep disturbances include poor sleep quality, insomnia and excessive daytime sleepiness. It is impossible to know whether sleep problems pre-dated COVID-19 infection. The healthcare sector should provide early...
  11. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,120 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  12. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 23rd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid0sAAaFrNvY9cDSsDnYUDh9Aqv45PbVD99QMXHX85g7jsWpX2G7LCRi2n9htpyyeNKl Mastodon: https://botsin.space/@s4me_news/111317669760397604
  13. Andy

    Hierarchical Cluster Analysis Based on Clinical and Neuropsychological Symptoms Reveals Distinct Subgroups in FM..., 2023, Maurel et al

    One author is from the Division of Rheumatology, Clinical Unit in ME/CFS and Long COVID, Vall d’Hebron University Hospital, Universitat Autònoma de Barcelona, 08035 Barcelona, Spain, while another is from the Division of Rheumatology, Research Unit in ME/CFS and Long COVID, Vall d’Hebron...
  14. Andy

    Review A Review Article on Exercise Intolerance in Long COVID: Unmasking the Causes and Optimizing Treatment Strategies, 2023, Koleničová et al

    Conclusions Intolerance to physical activity is a commonly reported symptom of PASC. This limiting condition prevents individuals from engaging in physical activity or exercise due to persistent symptoms or complications after overcoming an infectious disease. These symptoms include fatigue...
  15. Andy

    Review A Review Article on Exercise Intolerance in Long COVID: Unmasking the Causes and Optimizing Treatment Strategies, 2023, Koleničová et al

    There is a growing body of research on SARS-CoV-2 (PASC), previously known as the post-COVID syndrome, a chronic condition characterized by symptoms that persist after SARS-CoV-2 infection. Among these symptoms, feelings of physical exhaustion and prolonged fatigue are particularly prevalent and...
  16. Andy

    Long-COVID is Associated with Impaired Red Blood Cell Function, 2023, Kronstein-Wiedemann et al

    COVID-19 disease, caused by the severe acute respiratory syndrome virus 2 (SARS-CoV-2), induces a broad spectrum of clinical symptoms ranging from asymptomatic cases to fatal outcomes. About 10–35% of all COVID-19 patients, even those with mild COVID-19 symptoms, continue to show symptoms...
  17. Andy

    Hierarchical Cluster Analysis Based on Clinical and Neuropsychological Symptoms Reveals Distinct Subgroups in FM..., 2023, Maurel et al

    Full title: Hierarchical Cluster Analysis Based on Clinical and Neuropsychological Symptoms Reveals Distinct Subgroups in Fibromyalgia: A Population-Based Cohort Study Abstract Fibromyalgia (FM) is a condition characterized by musculoskeletal pain and multiple comorbidities. Our study aimed to...
  18. Andy

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    Preprint: Quantitative errors in the Cochrane review on "Physical interventions to interrupt or reduce the spread of respiratory viruses" The COVID-19 pandemic has brought a heightened sense of urgency in the scientific community regarding the need to advance understanding and prevention of...
  19. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,073 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  20. Andy

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Selected quotes. "Chronic Symptoms Following Infections Infections can sometimes leave people with symptoms that last for weeks to months or longer, even after appropriate treatment. Some of these symptoms are well-recognized and specific to the type of infection, for example, loss of smell...
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