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  1. Andy

    Long Covid in the media and social media 2023

    Long Covid SOS, one of the Long Covid charities represented at the UK Covid Inquiry, posted on Twitter. "Today we found out that @BorisJohnson scrawled 'BOLLOCKS’ across a @DHSCgovuk document about #LongCovid He admitted in his witness statement that he didn’t believe #LongCovid ‘truly existed’...
  2. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,199 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  3. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,149 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  4. Andy

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    "Antibiotic use can increase chances of MCAS flares. MCAS flares can also lead to polyreactivity and loss of oral tolerance. Planning for negative side-effects is an key part of the @remissionbiome safety plan." https://x.com/chydorina/status/1708585382013792320?s=20 First do no harm, unless...
  5. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 25th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid02c5vVD3SM84LHEi7CnLrSNSHLF7kmtW9VRJ164N5bLEDzUBRVmm3v6c1WEb9BbKLUl Mastodon: https://med-mastodon.com/@s4me/111164552103999065
  6. Andy

    United Kingdom: Action for ME (AfME) news

    First Clare Francis Research fellowship awarded "Audrey’s research project will try to identify and characterise factors in the blood of patients that may be responsible for disturbing their mitochondria. Equally important, if Audrey can show that such a factor exists, this could provide a...
  7. Andy

    Australia: News from Emerge Australia

    "While estimates of how many people have ME/CFS vary, it is thought that around 0.4-1% of the population is affected. This means that up to 250,000 Australians have the condition." https://www.emerge.org.au/what-is-mecfs/ Up to 1%??? Do we know that Australians are particularly likely to...
  8. Andy

    Cardiac Vagal Nerve Activity Increases During Exercise to Enhance Coronary Blood Flow, 2023, Shanks et al

    In sheep. BACKGROUND: The phrase complete vagal withdrawal is often used when discussing autonomic control of the heart during exercise. However, more recent studies have challenged this assumption. We hypothesized that cardiac vagal activity increases during exercise and maintains cardiac...
  9. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,108 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  10. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    No, we don't have such a thread. If I started one I think I would be inclined to put it here, https://www.s4me.info/forums/psychosomatic-news-me-cfs-and-long-covid.27/
  11. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    There seems to be yet another themed edition of a journal centered around FND. Rather than flood the forum with them, the table of contents can be found here, https://www.sciencedirect.com/journal/neurologic-clinics/vol/41/issue/4 where you can find the following delights: Lessons from a...
  12. Andy

    Opinion Lessons from a Neurologist After 25 Years of Functional Neurological Disorder Subspeciality Practice 2023 Stone

    Abstract The idea that a neurologist would do an 'FND clinic' or that functional neurological disorder (FND) could be a subspecialty of neurology would have been outlandish even 20 years ago but has become a reality in many places around the world. In this personal review, I reflect on 25 years...
  13. Andy

    Review Functional Movement Disorder: Assessment and Treatment 2023 Serranová et al

    Abstract Functional movement disorder (FMD) is a common, potentially reversible source of disability in neurology. Over the last two decades, there have been major advances in our understanding of the clinical picture, diagnosis, and management of this condition. Motor presentation is...
  14. Andy

    Longitudinal associations between higher self-reported energy, gait speed and cognition in older adults with fatigue, 2023, Ehrenkranz et al

    Background Older adults reporting higher energy levels have better physical function. It is not known if these associations persist among older adults reporting fatigue or if higher energy is associated with cognitive function. We examined longitudinal associations between self-reported energy...
  15. Andy

    Review The Long Road of Long COVID: Specific Considerations for the Allergist and Immunologist, 2023, Bellanti et al

    Long COVID (coronavirus disease 2019) syndrome, also known as post-acute sequelae of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, is a new disorder that can develop after an acute infection with the SARS-CoV-2 virus. The condition is characterized by multiorgan system...
  16. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 25th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid031P4zPyjqEPapsZqT1fBLDYL7u4KbNDDssrem5zCzfjbX8ajCUkEKbUwZ92k2uTmAl Mastodon: https://med-mastodon.com/@s4me/111158986455488941
  17. Andy

    International: Science for ME social media posts

    Monthly News in Brief post on Reddit, https://www.reddit.com/r/cfs/comments/16wvht6/news_in_brief_posts_for_september_2023_covering/
  18. Andy

    Outpatient Motor Retraining for Functional Movement Disorder: Predictors of a Favorable Short-Term Response 2023 Callister et al

    Background Treating functional movement disorder (FMD) with motor retraining is effective but resource intensive. Objectives Identify patient, disease, and program variables associated with favorable treatment outcomes. Methods Retrospective review of the 1 week intensive outpatient FMD...
  19. Andy

    Increased Frequency of Self-Reported Obsessive-Compulsive Symptoms in Patients with Functional Movement Disorders 2023 Nováková et al

    Background Functional movement disorders (FMD) are associated with a high prevalence of psychiatric comorbidities. Objective To assess the frequency of obsessive-compulsive symptoms (OCS) in FMD. Methods A total of 167 consecutive patients with clinically definite FMD (mean age = 44.4 years...
  20. Andy

    Preprint Probing sustained attention and fatigue across the lifespan, 2023, Hanzal et al

    "Introduction Fatigue is one of the most common symptoms experienced by people with a range of clinical conditions, for example, post-stroke fatigue affects up to 50% of stroke survivors1 . Fatigue has also been estimated to affect up to 17% of the general population2 . In the clinical...
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