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This blog post is about why it might be difficult but sometimes also very important to criticise "the good guys". It's well worth a read. It's relevant not only because of the Montoya news and how it is currently being talked about on social media etc, but also in relation to the situations...

Have you been following the discussions on Twitter? I don't know exactly what sparked this post of hers, but seeing how some people are talking about this on social media, I really appreciate Jennie's perspective.

http://occupyme.net/2019/06/05/ill-make-it-simple/

No, I'm too ill, unable to watch :( Haven't seen any comments yet about what was said either.

Video recording available here now: https://www.riksdagen.se/sv/webb-tv/video/interpellationsdebatt/bemotande-av-patienter-med-diagnosen-me_H610263

Here's one of Bragée's slides from Ur Samtiden, about recovery in ME. The title is "But certainly one can be cured", and the last bullet point says "More reports about recoveries after neck surgery". Would be very interesting to know what source(s) that statement is based on?

Did you, by any chance, have a look at the questionnaires they are using? Unfortunately the questionnaires they have chosen don't capture PEM in a meaningful way (or at all?), and I'd say that's definitely a problem.

On Monday 3 June there will be an interpellation/debate about ME in the Swedish parliament. Will probably be live streamed, recorded and available to watch here https://www.riksdagen.se/sv/webb-tv/...

One of the main problems, from my point of view, with MEpedia and other wikis in general is that very early drafts are published immediately as is, and there's usually nothing that tells the reader that the article is in fact at an early draft stage, or that it hasn't been properly reviewed yet...

This is from an earlier thread:

No, not including the ones with burnout. He was talking about ME patients only.

Yes, a private clinic. Opened in February 2017. Both Bo Christer Bertilson and Björn Bragée are new to ME. ETA: They do have a contract with Stockholms Läns Landsting, the regional public health authority, which means that patients don't pay more than at public health providers/centers. I don't...

Here's a link to another tv programme where Bertilson talks about ME and his hypotheses. It's in Swedish, was recorded 12 April 2019 during a seminar arranged by Bragée ME-center. https://urplay.se/serie/212286-ur-samtiden-kronisk-utmattning (I'm in a bad relapse, haven't had a chance to...

Here's an earlier thread about one of Bertilson's other studies: https://www.s4me.info/threads/the-med-study-bo-christer-bertilson-sweden.8443/

Here's a transcription of what Bertilson said about their preliminary finding on Malou efter 10 (morning show on Swedish TV), 13 May 2019. Available to watch online here (In Swedish. Geoblocked outside of Sweden). https://www.tv4play.se/program/malou-efter-tio/11795690 Google Translate...

There’s been some discussion in other threads about some very bold claims made by Bo Christer Bertilson and Björn Bragée at Bragée ME-center in Stockholm, Sweden. For example, in an interview on Swedish TV (Malou efter 10, 13 May 2019), Bertilson claimed that close to 90% of the patients at...

I, too, would love to know more about this (but I'm unable to watch videos). For example, is there anything in the CCI and chiari scientific literature that suggests that PEM and immunological symptoms -- those that are characteristic of ME, in particular -- are common? I find it very confusing...

I don't think RME will be happy when they find out that this is being discussed publicly. They are very very big on sweeping things under the rug. I kind of made a half-hearted attempt at "hiding" the post here deep into the thread, hoping that it will take them just a little bit longer to...

No no no, none of your excellent suggestions caused any problems at all! They were super helpful and really made things better, easier. Very much appreciated :) And I really do honestly and genuinely mean that. The term 'biopsychosocial' was the obvious choice, no regrets. It's the term that...

Almost all of us are all severely ill :( Maybe not impossible, but would definitely not be easy.