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I don't under stand this: PEM’ is best conceptualized in 3 dimensions 1. PEM - malaise / fatigue 2. PESE ( symptom exacerbation ) - Here I've seen a range of symptoms depending on domains affected - e.g Dizziness, temperature regulation, hair pulling, RLS, sleep difficulties. 3. PENE...

I took pycnogenol early in my illness for several months with no effects. Is this study done with their own proprietary brand?

Right? It's like PEM is no longer this mystery or weird made up phenomena by pwME.

How 'rare' is this with post-infectious syndromes?

Abstract Acute pandysautonomia is a rare disorder characterized by autonomic failure affecting sympathetic, parasympathetic, and enteric functions. We present a case of acute inflammatory demyelinating polyneuropathy (AIDP) with severe pandysautonomia in a young, otherwise healthy, female who...

Novavax Submits Application to U.S. FDA for Updated Protein-based 2024-2025 Formula COVID-19 Vaccine Novavax's updated JN.1 COVID-19 vaccine is active against current circulating strains, including KP.2 and KP.3 Novavax's JN.1 COVID-19 vaccine would be the only protein-based option available in...

Abstract Background and objectives Dual amylin and calcitonin receptor agonists (DACRAs) are therapeutic candidates in the treatment of obesity with beneficial effects on weight loss superior to suppression of food intake. Hence, suggesting effects on energy expenditure by possibly targeting...

Menopausal depression is different to other depressions. The key mental health symptoms include anxiety and panic, rage, exhaustion, sleep disturbance, decreased libido, poor concentration, poor memory, and tearfulness. Physical symptoms such as muscle aches, joint pains, cystitis, palpitations...

Abstract Menopause is a biological process experienced by all people assigned female at birth. A significant number of women experience mental ill health related to the major brain gonadal hormone shifts that occur in their midlife. There is poor understanding and management of the complex...

I've read that doctors have been taught detachment cognition because investing in pts emotions will interfere with their clinical assessment and being objective.

Financial Assistance Program for Lumina Program Expected Timeline Funding of the Lumia™ Financial Assistance program has already begun, and spaces will be limited. As of now, the Lumia™ device and Membership program are not yet ready to ship — we are still in pre-orders and ongoing...

Dr Louise Newson, Professor Deepak Ravindran, Dr Sarah Glynne, and Dr Ellen Fallows Offer 10 Top Tips for Primary Care Practitioners on Improving Care for Women with Fatigue and/or Pain https://www.medscape.co.uk/viewarticle/top-tips-care-women-fatigue-and-or-chronic-pain-2024a10009vj

Dr. William Dugal experienced total paralysis after developing Guillain-Barre syndrome. After a year of rehabilitation, he's back to working as surgeon. Having Guillain-Barre syndrome changed his perspective as a doctor. “I have more empathy and a better understanding of the patient’s...

Full Title: Noradrenaline-induced change in cerebral blood flow in health, traumatic brain injury and critical illness: a systematic review with meta-analysis, 2024, Lingzhong Meng et al Summary Background Noradrenaline is a standard treatment for hypotension in acute care. The precise effects...

Good gracious. Céline Dion has given interviews lately concerning her diagnosis of Stiff Person Syndrome. The years of not having a diagnosis. The amount of Valium she had to take to relax her muscles that could have killed her. All the money in the world isn't enough for cure or...

Yup, like when I tried educating my M.E doctor and Virologist about the hypercoagulation theory for M.E and was warned not to become their guinea pig for their pet theories. They were very kind about it because they have seen many desperate patients in their careers.

Why Lumia™? Our solar-powered wearable device uses the power of light to track changes in the blood flow to your head. Together, we can illuminate what’s really happening in these complex orthostatic conditions . . .. and enlighten the science for how our conditions are understood and managed...

News Release | June 11, 2024 WASHINGTON — A new National Academies of Sciences, Engineering, and Medicine report says the federal government, state and local authorities, clinicians, medical societies and organizations, public health practitioners, employers, educators, and others should adopt...

Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.