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Recently named cancer institute director may become head of NIH Cancer researcher Monica Bertagnolli would take position vacated in 2021 by geneticist Francis Collins https://www.science.org/content/article/recently-named-cancer-institute-director-will-become-head-nih

@dave30th, please also look at this thread. Dysautonomia International 10th Annual Conference: 'Collaborating for Cures', July 14-17, 2022 https://www.s4me.info/threads/dysautonomia-international-10th-annual-conference-collaborating-for-cures-july-14-17-2022.27750/

davidtuller @davidtuller1 Why is the NIH counting a $3.6 million award to a project on cancer-related fatigue as part of the $13 million spent on its category for CFS and ME/CFS? @jspotila https://virology.ws/2023/04/14/tri Trial By Error: Why Did the NIH List an Award for Research on...

Disability Denied: Unable to Work, COVID Long Haulers Face Barriers to Benefits The long COVID crisis exposes a disability claims system in disarray. Published on April 12, 2023 By Larry Buhl https://capitalandmain.com/disability-denied-unable-to-work-covid-long-haulers-face-barriers-to-benefits

CFS/ME, chronic fatigue syndrome / M.E. and Chronic Fatigue Syndrome (CFS/ME) are on the fatigue page https://pre-prod.neurosymptoms.org/en_GB/symptoms/common-associated-symptoms/fatigue/ which has links to the NHS website https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs and Dr. Vogt's...

Here are a couple blogs by Jennie Spotila about what the NIH claims to have spent and what they actually spent in previous years. The 2020 NIH Funding Fact Check https://occupyme.net/2021/08/09/the-2020-nih-funding-fact-check/ The 2019 NIH Funding Fact Check...

M. and S. Shaw @twoShaws People living w/ #MyalgicEncephalomyelitis #LongCOVID #pwME #pwLC, did you see that on https://report.nih.gov/funding/categorical-spending#/ , @NIH reported to Congress that it spent only $12.6 million ($12,617,492) on MEcfs research in FY 2022? This is dangerous...

Thread of LongCovid Research Consortium (LCRC) projects.

Thank you, @Mfairma. Thread Text of tweets

Jennie Spotila's blog Occupy ME has a lot of U.S. history. She is writing a memoir so hasn't kept up with things more recently like she has in the past. The blog goes back to February 2012. https://occupyme.net/

Thirty Years of Disdain — How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis by Mary Dimmock and Matthew Lazell-Fairman December 2015 Full version 283 pages https://www.dropbox.com/s/bycueauxmh49z4l/Thirty Years of Disdain - Background.pdf?dl=0 Summary version 161 pages...

It goes on to talk about SARS, MERS, Russian flu, Spanish flu, chicken pox and shingles, Ebola virus, and Epstein-Barr virus. The following is about the Russian flu. The following sections are from the conclusion. Biden, the 2022 #MEAction protest in front of the White House, and recent...

Why is the word "stress" being used? I think that it's an appalling word choice.

Funding for the ME/CFS Collaborative Research Centers. :mad: :banghead: :cry:

A social and medical examination of Long COVID as a “mass disabling event”: Part 2 The end of the article talks about the lack of research funding, including for ME/CFS. Bolding is mine. Edited to add the title of the article.

https://justiceinaging.salsalabs.org/omittingfoodfrominkindsupportandmaintenancecalculations/index.html

Long COVID Is Making Some People Choose Not to Have Kids By Jamie Ducharme https://time.com/6268429/long-covid-reproductive-health/

I was able to read the article behind the paywall. I’m using a PC. When the page loaded, I pushed the Ctrl key and A key at the same time to highlight the whole article - even where you can’t see it behind the paywall. Lastly, I copied the article and pasted it into a word processing program to...

Unum Asks Ninth Circuit to Weigh Long Covid as ERISA Disability https://news.bloomberglaw.com/employee-benefits/unum-asks-ninth-circuit-to-weigh-long-covid-as-erisa-disability The cases in the paragraph below are against various insurance companies including Unum (McKinsey & Co. consultant)...