Search results

  1. L

    Severe ME Day, August 8 2023 and Severe ME week

    Thank you, Anil, for another great video. :thumbup: :trophy@:heart: :emoji_cat2: :emoji_clapper:
  2. L

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Link to the article at The Washington Post. I didn't get a paywall. NIH taps Jeanne Marrazzo to succeed Fauci as infectious-disease chief https://www.washingtonpost.com/health/2023/08/02/new-nih-niaid-director-jeanne-marrazzo-anothony-fauci/
  3. L

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    NIH selects Dr. Jeanne Marrazzo as director of the National Institute of Allergy and Infectious Diseases https://www.nih.gov/news-events/news-releases/nih-selects-dr-jeanne-marrazzo-director-national-institute-allergy-infectious-diseases Infectious disease expert Jeanne Marrazzo assumes Fauci...
  4. L

    USA: The RECOVER Initiative - Long Covid research

    Post copied and further posts moved from News from the USA HHS Announces the Formation of the Office of Long COVID Research and Practice and Launch of Long COVID Clinical Trials Through the RECOVER Initiative Current analysis estimates that 7.7 million to 23 million Americans have developed...
  5. L

    News from the USA, United States of America

    HHS Announces the Formation of the Office of Long COVID Research and Practice and Launch of Long COVID Clinical Trials Through the RECOVER Initiative Current analysis estimates that 7.7 million to 23 million Americans have developed Long COVID...
  6. L

    Long Covid in the media and social media 2023

    "This open-label, single-center, investigator-initiated study was conducted at the Bateman Horne Center (“BHC”) with an unrestricted investigational grant." Virios Therapeutics Announces Positive Data Demonstrating Improvement in Multiple Long-COVID Symptoms Following Treatment with a...
  7. L

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    copied post "This open-label, single-center, investigator-initiated study was conducted at the Bateman Horne Center (“BHC”) with an unrestricted investigational grant." Virios Therapeutics Announces Positive Data Demonstrating Improvement in Multiple Long-COVID Symptoms Following Treatment with...
  8. L

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    New CDC Director, Mandy Cohen, was sworn in on July 10th. New CDC director brings health care, public health experience to agency facing aftermath of pandemic https://www.cnn.com/2023/07/11/health/cdc-director-mandy-cohen/index.html In N.C., Mandy Cohen built bridges to GOP. Can she find...
  9. L

    News from the USA, United States of America

    HHS Issues Advisory on Mental Health Symptoms and Conditions Related to Long COVID https://www.hhs.gov/about/news/2023/06/21/hhs-issues-advisory-mental-health-symptoms-and-conditions-related-long-covid.html Identification and Management of Mental Health Symptoms and Conditions Associated with...
  10. L

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Evaluating and Supporting Patients with Long COVID in Returning to Work https://emergency.cdc.gov/coca/calls/2023/callinfo_061523.asp Transcript https://emergency.cdc.gov/coca/ppt/2023/061523_transcipt.pdf Slides https://emergency.cdc.gov/coca/ppt/2023/slides_061523.pdf Greg Vanichkachorn...
  11. L

    A catatonic woman awakened after 20 years. Her story may change psychiatry. Washington Post

    They aren't even giving her adequate maintenance care! :mad: :broken_heart:
  12. L

    Parents want ban on treatment to unlearn 'autistic behaviour' - NOS

    Matthew Israel https://en.wikipedia.org/wiki/Matthew_Israel Judge Rotenberg Educational Center https://en.wikipedia.org/wiki/Judge_Rotenberg_Educational_Center Graduated electronic decelerator https://en.wikipedia.org/wiki/Graduated_electronic_decelerator Edited to fix link.
  13. L

    Long Covid in the media and social media 2023

    Text of Tweets Great audio clip with Rep. Anna Eshoo Typical response from Dr. Koroshetz in the article 'Screaming Into a Void': Long COVID Patients Have Waited in Vain for Years for Treatments...
  14. L

    Long Covid in the media and social media 2023

    Very disappointing quotes from Leonard Jason. A cardiologist wanted to prevent long COVID. He turned to meditation. A recent review of research suggests meditation may be effective for some in treating long COVID and other post-viral conditions...
  15. L

    ME Awareness Day / Week / Month, May 2023

    Excellent article by Ryan Prior in Psychology Today. COVID Long Haulers Protest in DC: "Pandemics Are Chronic" As the COVID-19 public health emergency ends, patients rally for a cure. Posted May 16, 2023...
  16. L

    ME Awareness Day / Week / Month, May 2023

    Washington, DC pictures with lots of pictures of pillowcases. https://meaction.smugmug.com/MillionsMissing-2023/ I made a pillowcase with the help of a friend (and Zazzle). I'm so happy to see that it made it there and was used in the art installation.
  17. L

    ME Awareness Day / Week / Month, May 2023

    Morgan Stephens @morganstephensa I've been asked to share my Long COVID speech transcript from yesterday. So, voila! Excerpt from speech:
Back
Top Bottom