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I have no idea what Janet Dafoe is talking about in her tweets to Solve ME/CFS saying that ME/CFS isn't mentioned. ME/CFS is mentioned. It's not just about Long COVID. The letter to email Members of Congress says: https://p2a.co/tE8DZk8 This link in the Solve ME/CFS tweet goes to their White...

The Death Threat Myth Exposed Posted on April 6, 2021 by Jennie Spotila https://occupyme.net/2021/04/06/the-death-threat-myth-exposed/

NIH Attitudes Affect Policy: A Story In Two Parts Posted on June 27, 2017 by Jennie Spotila https://occupyme.net/2017/06/27/nih-attitudes-affect-policy-a-story-in-two-parts/

Here are two articles in the the Washington Post by Leana Wen about the NIH ME/CFS study. I'm posting them because the first one is about a patient in the study and the second one has some quotes from Nath. I didn't encounter a paywall for either article. Opinion Chronic fatigue patients are...

I wonder if there were any violations regarding informed consent. Maybe there is something here that can help us. Informed Consent FAQs https://www.hhs.gov/ohrp/regulations-and-policy/guidance/faq/informed-consent/index.html

Here are some Occupy ME blogs by Jennie Spotila. This is what I found on a quick search and wanted to post them here. I tried to copy a section from https://occupyme.net/2016/11/03/an-open-letter-to-dr-koroshetz/ but the paste wouldn't format correctly and I couldn't fix it so I took a...

How did he go from this Todd Davenport @sunsopeningband I'll note that not one scientist in any press I've read so far about the Wallit paper has demanded a retraction. Cowards. I'm willing to go on the record and do that. The flaws are foundational and catastrophic. The conclusions...

NIH, VA Launch Study of Gulf War Illness https://nihrecord.nih.gov/2023/05/12/nih-va-launch-study-gulf-war-illness VA-NIH Project IN-DEPTH https://research.ninds.nih.gov/patients/va-nih-project-depth

I'm extremely disappointed to see the Massachusetts ME/CFS & FM Association giving this person a platform. :banghead: Judy Tsafrir, M.D. Holistic Adult and Child Psychiatry in Newton, MA https://www.judytsafrirmd.com/

I copied this the best I could from the closed captioning on the screenshots I took. https://www.pbs.org/wnet/americanmasters/anthony-fauci-documentary/23072/ Fauci’s wife:

The caption under the picture in the article that this thread is about Anthony Fauci and unlocking the biggest mystery in medicine https://www.inquirer.com/health/expert-opinions/expert-opinion-long-covid-20240106.html says: Here is the link to the PBS documentary...

Opinion: The U.S. is facing the biggest COVID wave since Omicron. Why are we still playing make-believe? By Eric J. Topol Jan. 4, 2024 3:15 AM PT https://www.latimes.com/opinion/story/2024-01-04/covid-2024-flu-virus-vaccine

I just realized there is a short blog too that is almost the same as the write up on YouTube. Trial By Error: An Interview with Journalist Ed Yong https://virology.ws/2024/01/04/trial-by-error-an-interview-with-journalist-ed-yong/

Interview with journalist Ed Yong David M Tuller

You can read the paper on this page for free. You have to scroll down the page a little to see the whole paper. https://www.academia.edu/112434477/Framing_the_activists_gender_race_and_rhetorical_disability_in_contested_illnesses This is a link to the author's website. http://www.vjohsu.com/

Yes, we need to get people on benefits but I'm very disappointed in the ongoing advocacy failure to address the hunger, poverty and homelessness people can endure while on benefits and the advocacy failure to hold Biden to his promise to update the safety net. :banghead:

Monica Bertagnolli, M.D., takes the helm at NIH https://www.nih.gov/news-events/news-releases/monica-bertagnolli-md-takes-helm-nih National Institutes of Health Director Nominee Monica Bertagnolli Confirmation Hearing...

Recovering from long-term COVID-19 https://healthy.kaiserpermanente.org/health-wellness/coronavirus-information/recovering-from-long-term-covid-19

https://en.wikipedia.org/wiki/Sodium_phenylbutyrate/ursodoxicoltaurine