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I appreciate you taking the time to clarify this. Thank you.

There is one comment from a GP (I think) under this article: "David Jarvis 13 July, 2023 3:07 pm Any guideline with ME in the title is going straight in the bin anyway for lack of rigour in using a pseudoscience sounding made up name. With no proven, as yet, pathological process it is by...

I have noticed that the Guardian article has been amended since the original posting. The following chages were made: 1. Syndrome has been included in the title 2. Between 2007 and 2016, only £10m of UK government funding was doled out for the study of ME/CFS 3. Added: ME was recognised as a...

Haha. So it is!

Great news. Bhupesh Prusty et al's research article can be read here: https://journals.aai.org/immunohorizons/article/4/4/201/4109/Human-Herpesvirus-6-Reactivation-Mitochondrial Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifactorial disorder with many possible...

There's another thing they could do with taking into account: Those that have been ill for a long time and particularly those who were very sick throughout their childhood, often say they have recovered when they are adults. However, they do not actually realise how sick they actually still are...

Ha ha. You beat me to it ... by 3 minutes!!

Here's an interview with Bupesh Prusty summarising his findings/thoughts so far. Episode 54: Dr Bhupesh Prusty – Molecular Virologist (Via TLC Sessions - Living with Long Covid.) I hope you will find it illuminating. I think he's probably onto something fundamental to our disease. Let's hope so...

Does anybody know if such a CPET test can be done in the UK?

I think it's part of a MASTERS degree.

Thanks everyone for your input. I have a more rounded understanding as a result. So much psychological damage has resulted from exactly this. Most of the pressure I have experienced is the pressure I have actually put on myself. Acceptance (which took an incredibly long time) has paved the...

Here is the Leeds Long COVID rehabilitation booklet. It says it's "Produced in partnership: The Leeds Teaching Hospitals NHS Trust and Leeds Community Healthcare NHS Trust" https://flipbooks.leedsth.nhs.uk/LN005039.pdf It has struck me that things have come an awfully long way: The booklet...

BTW, thanks everyone for the suggestions so far. I'll put together a thread for Jo. Jo is a sensitive person so I trust her completely not to bombard a sick friend with loads of information. (Point taken Barry!) But I think it's probably worth providing Jo with this kind of information in...

Ooo ... just found this: https://www.cell.com/trends/molecular-medicine/fulltext/S1471-4914(21)00134-9 I think it does a pretty good job at comparing the two whilst not trying to assert lots of ideas for which the information does not exist. What do you reckon? Do you know of any more like this?

Hi folks. Thank you (as ever) for the wealth of information you are able to provide. It's MUCH- appreciated. However, I'm not sure how well I explained myself. Reading between the lines, the woman with Long Covid is well-read and up on the research on Long Covid. I think that it's her absolute...

Hi, I'm good friends with a local Councillor's wife. (Both of them have been very supportive of pwME. I have sent them all sorts of information on ME over the years. Indeed, they both followed the NICE Guideline debacle with great interest.) They have a friend who now has Long Covid. When (my...

Keto diet?

Too clever by far for me Hutan! However, what this study (and others like it) does help to illustrate, is that the reporting of harms from GET in ME/CFS has a clear physiological basis. One should not continue to exert when there is an inadequate uptake of oxygen. In asthma and heart disease...

Similar results were seen in female patients btw: https://www.mdpi.com/2227-9032/9/6/682

In reality, the crux of the issue is surely this: https://www.mdpi.com/2227-9032/9/6/683 There is a group of patients who suffer from fatigue, who actually improve with exercise. There is another group of patients (who can look similar) who have the cardinal symptom of PEM/PENE/PESE ...