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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    So that latter paragraph is from him? what a contradiction to everything else, that is more recent, above it that seems to be about the same principles and context and yet rather than 'playing the ball' we've got what seems to be him burying in 'playing the man' and distraction criticism?
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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    and they still haven't effectively worked out how to prove they exist any better than when they were last hounded out of the subject of psychology for not being psychology (other than individuals own psychologies - which can just be delusions and ideologies and things like misogyny or sexism...
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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    :wtf::eek: this is some shapeshifting manifesto. Talk about how to make groups 'untouchables' whilst claiming it is 'in their interests' and you are helping. I always note with said people how little time they must spend on creating and refining actual 'help' they claim their intention is -...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    I've had to scan through bits, so some parts in detail then back and forth due to how I am today. But, heeding the last paper had some concerns flagged that I will go back and look for on another read if I remember, this is needed stuff. THe approach of history-taking and testing and noticing...
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    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    Important also that this sort of thing is put out and expanded on further in research so that adjustments and action-consequence is made clear in descriptions of the conditions and things like workplace policies and probably things like where people go into hospital and need to be away from...
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    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    Worse than that, it has now been at least a few decades since scientific psychology realised that all the 'intelligence' stuff using things like IQ tests was not only racist but useless due to it measuring cultural issues and areas that white natives at good advantage would have drilled into...
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    Bruce Wampold: How psychotherapy works / The dodo bird verdict

    You are 100% correct in pointing this out. I guess it all comes back to what they are actually measuring with the way they do their RCTs in this area (and the allowing the methodology to mean teaching to the test and drop-outs and so on) vs what they claim/think/believe they are measuring...
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    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    Yep I don’t believe any of it, what I do believe is the power of those who rewrite someone’s narrative and feed it back to them. And how such brainwashing shouldn’t be happening without proof it helps not harms given it us being directed at probably the group most vulnerable to it due to power...
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    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    yes it is one of those ‘services with no use and no customers’ which is why they sell indirectly to those around patients by inciting them to push their loved ones or employees into it. parasitic is the correct term. In the actual health profession I think it’s a weird issue if not wanting to...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes forms like this often have tables collecting info on these characteristics for monitoring of minorities of equality and yet no standard exists for the condition itself
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This is so important and I have real bee in my bonnet about the severe being properly included with design of research and patient input focusing on being doable for them and not the other way around as there are accessibility issues. Services need to be built in the more severe and experienced...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    it is a fair point re demographics that you want included too: those who are more severe often get implicitly cut out by things like this as even a long-seeming deadline would require a lot of pacing and they’ve a harder to describe situation, those with more experience would also need more time...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    And mention/tie it to recent changes in things like conversion courses being allowed to be offered and concerns over how content can be harmful if incorrect assumptions are behind what is being directed at etc. I do think there is a common sense/descriptive model based on logic for harm of...
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    The Chrysalis Effect

    I don't understand why if she is offering courses then those are not under the CMA (competition and markets authority) regarding evidencing any claims made. Then there is the ASA. The ILM is best known as an acronym for the institute for leadership and management, which is reasonably well...
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    The Chrysalis Effect

    I don’t see where the health or wellbeing part in what she offers is it’s disgusting and shouldn’t be being branded as a product under any of the labels she claims at all. It’s just selling bigotry and lies then pretending to cure them ‘send your disabled relative to us because the horrible...
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    The Chrysalis Effect

    Substitute ME/CFS in what she says with any other minority, equality issue, 'individual difference' ... along with her utter lack of any qualifications or experience (which she seems to have 'faked' or 'inferred' but never had .. which says it all really doesn't it about what kind of person does...
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    The Chrysalis Effect

    From what I remember Elain Wilkins (and if I remember there was another woman was there too when this first started - ah yes, that is here earlier in the thread) the background of this is more the 'classic snake oil salesman model' where she/they came into it not from a background of even...
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    Important note on BPS - British Psychological Society vs 'other bps' and issue with the confusion of acronym

    But anyone who does psychology would have thought British psychological society for BPS - which isn’t an unrelated subject area given that it’s psychology that we need to starting turning on holding and calling out the psychosomatic’s methodology (as it used to). I don’t know whether this is...
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    Important note on BPS - British Psychological Society vs 'other bps' and issue with the confusion of acronym

    The BPS accreditation document for undergraduate degrees is here: https://cms.bps.org.uk/sites/default/files/2022-07/Undergraduate%20Accreditation%20Handbook%202019.pdf and page 10-11 onwards focuses on the content part. Note that it goes onto to talk about research design and ability to design...
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    Important note on BPS - British Psychological Society vs 'other bps' and issue with the confusion of acronym

    I don't know whether I can get the title or the section correct here but it is a point I've been wanting to bring up quite seriously for a while. In psychology the BPS is the British Psychological Society. And it is this that provides the accreditation for UK Psychology degrees and certainly...
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