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    Lightning Process - discussion thread

    how can anyone be so irresponsible and seemingly unaccountable - I’m guessing she just turns her eyes the other way at what she is causing/propping up or is brainwashed/deluded herself … so disturbing how bigotry can get disguised under people kidding themselves they are helping rather than...
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    PEM: a continued stress response / failure to enter a rest-recovery phase?

    Sorry if I didn't make clear - I was making the point about the method of taking samples (whatever they are looking at/measuring) being developed so that it can be done without requiring trips and waking up etc is something that could be very important indeed. Particularly noting how and when...
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    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Sidenote that sort of is more of a discussion about how (perhaps not with a legal case but we need to begin to show what they must either have seen or chosen to ignore) even with things like CBT it should be obvious that the coercive techniques + the particular condition they have chosen have...
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    PEM: a continued stress response / failure to enter a rest-recovery phase?

    @rvallee posted the following thread: https://www.s4me.info/threads/high-resolution-daily-profiles-of-tissue-adrenal-steroids-by-portable-automated-collection-2023-lightman-et-al.33799/ Which has some interesting methodology for measuring cortisol EDIT: adrenal hormones more continually...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    "People with FND walking problems (Gait disorder) can sometimes find that they can’t walk normally, but they can run or walk backwards. This seems very strange but actually makes a lot of sense in terms of how we know the brain works." I would be interested to check the veracity of this one...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    "If the structural changes have always been there, then that’s clearly important but we still don’t know if they represent an obstacle to improvement. If the structural changes happen because of the condition, then we need to help patients understand that FND has changed their brain, but...
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    BBC Radio 4 - ‘Prioritise energy-giving activities’: Why energy management is important and how to do it

    Agreed it is a naughty minimisation jobbie, but worse they seem oblivious to that. In theory yes the world needs to get their head around energy vs time, and of course I sit and watch those without health issues and their chosen 'busyness' and am astounded. It isn't our problem or anywhere...
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    United Kingdom: London - Royal Free Hospital CFS services

    They missed off the following? : :whistle: , Shaggy It Wasn't Me (Official Music Video) (uncensored)
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    United Kingdom: London - Royal Free Hospital CFS services

    Do you mean like those people who create problems that didn't/shouldn't exist in order to claim to be a saviour that wants to fix it, rather than errm choosing not to create the bigotry in the first place and when you encounter it doing what normal people do and stating it is misinformation and...
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    Biopsychosocial complexity in functional neurological disorder 2023 Joos et al

    Not to mention when they have disability or exhaustion effects or adjustments needed for things like speaking or walking I would hope that for their condition the exact wrong information and advice has not been OK'd for laypersons to levy at them. I'd imagine for example someone interrupting a...
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    State of Mind: Is Long COVID Linked to Mental Illness?

    True, but I suspect there is also dissociation happenning here: she is so fixated on retorts to defend what she has said that she isn't capable of stepping back to see why on earth she is saying it in the first place. Like someone who causes havoc in order to 'get x' without stopping to think...
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    State of Mind: Is Long COVID Linked to Mental Illness?

    paternalism that’s what. And she should have encountered that term as part of her gender studies unless something went very wrong with her studies so I don’t know why she is engaging in being a paternalist cliche.
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    State of Mind: Is Long COVID Linked to Mental Illness?

    Bit of a sidenote but relevant to all of these in as far as another problematic assumption underlying how they think even if their thinking the psychological attribution held water. I don't know the correct term, but we need one for these contexts that is above the deliberate ambiguous...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    But also that quote, which I've heard cited a lot and is very insightful, says just as much about the doctors' attitudes. You won't find anything you don't look for. The fact that investigations will be launched if you are male will change the point you attend vs if you are automatically told to...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Assumed despite their being no good evidence of any personality research, it is a non-area, basically parapsychology for the traits she is mentioning. She might as well be talking about spoon-bending abilities. Shocking
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    So many obvious explanations it seems irresponsible these aren't discussed. If someone gets an illness and is dismissed and expected to carry on doing sports and so on vs e.g. the boys having a week off school then the illness worsens and accumulates. Same if walking into a medical centre as a...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Hmmmm, so this is somewhat just demonstrating sexism/misogyny...? and yes who knows if these are 'functional' at all. But the biggie, given it is girls, the elephant in the room given how the ideology/attitude almost leaps of the page in this paper re: 'girls' is that surely there is one big...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    Thinking about it if there are functions that can come up with advice for different severities so that it covers those who are severe who have to speak to try and access essential goods and services then I’d like the charities and support groups and anything else to work with them. It would be...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    On that note, as she mentioned that pathologists in this area could help by explaining the condition better - which is hard for patients to do, but also to be heard/believed on. But I have realised that she isn't actually one - so the classic question of whether there is actually such a thing as...
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    A Comprehensive Evaluation of Multiple Sclerosis-Related Fatigue with a Special Focus on Fatigability, 2023, Nicolas Royer et al

    Am I being obtuse here but is the fact that this has to be done almost like those who claim that wearing FP3 facemasks vs not as a recommendation for an individual who might be going into a risky situation couldn't be done by ccommon sense and engineering but required inference-based 'RCTs' to...
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