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    Ed Yong Articles on Long Covid & ME/CFS

    I've been thinking recently to myself about how the fundamental, underlying 'framing' of the condition is what needs to be nailed - ie people thinking 'back to' principles of 'chronic fatigue' as a basis has always been an unhelpful way of picturing it and certainly doesn't scale to either the...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I often have that sense of not wanting to publicise little known journals or articles that people wouldn't read if it weren't for the replies (ie the whole 'getting publiciy by causing ourage thing) vs the level of stupidity that can come from leavin unchallenged silly manifestos for too long...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Sensible predictions - can these be FOI'd too in order to see if that is the case? I guess the journal doesn't have anything along the lines of FOI to find out any behind the scenes stuff as it isn't public funded? ... Would probably then narrow down the list very convincingly (for any...
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    A new consensus? - ME/CFS skeptic blog

    The recent study with the PHD student working with Bateman HOrne was one of the first where I thought they were beginning to be onto something, including time spent horizontal etc. They had really interesting learning points from their methods and results I think. Agreed that given the weirdness...
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    A new consensus? - ME/CFS skeptic blog

    Of course the difficult thing with what BPS (and perhaps others) have turned their 'CBT and other variations' into is basically priming for the test, and so blinding - they have one thing right with their excuses - is only 'equal' if the control has the same amount of brainwashing/coercion to...
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    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    The whole ‘subject/school’ of behavioural ‘psychology’ is ONLY about the idea of making others do things differently by using various different levels of coercion. Punishment and reward and aversion like electric shocks being its basis. I’m surprised if isn’t outlawed really when you think...
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    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    We need some ‘business speak/sounds like/does what it says on the tin terms’ gir these habits and quality of ‘care’ that people pretend are acceptable ‘politely coercing’ or ‘sanitised coercion techniques’ would be one term i think is needed where the person is basically just engaging in...
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    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    Most importantly for anyone to be helpful they need to be informed better on the actual condition - which they refuse to be because they don't want to hear about the fact they only treat those without PEM because what they do damages others and refuse to hear about stories of failure of what...
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    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    I don't think it is the correct technique even in that context. ANd I certainly get the impression that any listening is shallow/skin-deep which makes it false question-asking which I find a disgusting and violating habit some have been encouraged in. For example there may be deep or good...
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    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    "it should not be a manipulative relationship." Isn't this precisely what this is, and is embedding scarily whilst telling those they are training in it that 'it isn't really manipulation'. This is what I worry about with the CBT embedding, it is just a technique in manipulation and...
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    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    This is an important impact to note which compounds and makes unrectifuable the error in attribution ie traps people meaning no one saying it’s wrong has a voice. so is worth underlining - but needs to be done so alongside noting that ‘and/when it’s the medics that are deluded not the patients’...
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    Trial Report Possible Markers For Myalgic Encephalomyelitis / CFS Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I,2023,Yamamoto

    I was trying to think my head around the potential 'confounder' of the fact that whereas those without a condition will, as a group of females in particular, include quite a lot of people who have been allowed to be anaemic or at least really low in ferritin due to the way the health system and...
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    Trials we cannot trust: investigating their impact on systematic reviews and clinical guidelines in spinal pain, 2023, O'connell et al

    Indeed, the point made in the abstract about 9 out of ten of these reviews (of which 85% were highly impacted) being positive and effectively voting positively for the treatment makes it really obvious this isn't just an issue of bias and selectivity in those that end up being reported. As far...
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    Objective sleep measures in chronic fatigue syndrome patients: A systematic review and meta-analysis 2023, Mohamed et al

    This. All of this in the two quotes. I'm impressed someone seems to have 'got it'. I do think also that there, just anecdotally from meeting others with ME over the years, does seem to be 'those that get significant sleep reversal' (and for me PEM is either a part of it/trigger or it is...
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    Psychotherapy including CBT and other counselling - benefits and harms

    the link didn't seem to work, but I seem to have found the same article here: https://www.bps.org.uk/psychologist/when-therapy-causes-harm
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good point about silly season approaching and whether any who might be able to provide friendlier articles might be able to bear that in mind and provide a few alternative spoon-feeds
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I'm interpreting that what you mean is that they are going for this actually being a 'political article' for those 'in the game'. I think you have a point there. It is like the misogynist classic when a woman is being picked on and a bystander should call it but instead chooses to label it as...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Indeed. Partcularly if someone listed how much of her time (paid for by her tenure) and how much funding or payment either directly or indirectly she has had for each of her 'studies/papers' and what they consisted of: repetition of the same thing over what decades ........that Nice basically...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Did they ever actually publish the 'pre-bunked' article the same lot pre-published on '8 errors of' which turned out to be their own errors in blagging they were and weren't just things they wished were true? Because if not I can't help but think this is their weak, eventual attempt at doing...
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    Lightning Process - discussion thread

    woth getting the Health and Safety Executive on these things too given how specific she is being and how this could be being used where a job or environment or in place of proper Occupational Health adjustments and other elements is unsafe and such ‘coaching’ might effectively intimidate or...
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