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It's somethign akin to/like requiring those coming to a 'how to manage your diabetes better' session to eat a sugary meal that they supply, having made them attend 10-3pm with no other options, whilst they tell them to behave better on their sugar-eating. It seems a very strange choice of...

I'm glad to see 'optimising the environment and adopting ergonomic behaviours' being listed rathe than too much on dodgy motivating or psych terms like 'satisfying' (something that gives me the chills even though I acknowledge that people do need to be acknowledged that it's absolutely correct...

Agreed. And yipeee!! another 'trial' that is using an implicit filter for both recruitment and then drop-out of having sessions that people have to be well enough to travel to and find it doesn't make them so ill in length there is no point them going. When is medicine going to realise the...

They've basically described what the null hypothesis should be for their experiment haven't they? ie 'if there is nothing that is impacting the reaction to exercise in those with covid 19 or long covid then x should be what we see..........but if we see anything different then .... that is a...

I'm confused and struggling to articulate it. Which says a lot about how confused what it is in the first place I think. what I think I can put down: 1. is this really about saying we need a 'specialism' in medicine that covers the gap - a bit like when the Nice guideline people probably had...

The dimwit approach - and we've all been there when most pwme say there were at least 'more active than most' (many athletes) prior to getting it, becomes ignored and rewritten to the assumption of 'well Chalder or whoever wrote its caused by deconditioning so that reality mustn't be true -...

Is exerkines a term they've made up? Anyway, the irony of if these were real, identified things wondering whether the vice-versa is that these if better understood could then provide a useful part of methodology for studying what they create short-medium-long term in said systems vs...

It's an issues with many other job areas too: - if workplaces can't find ways to ensure that all types of people are represented then it is a vicious circle of the environment more and more favouring the ablist. I don't know the details of this particular one, but in todays day and age there...

:wtf::nailbiting::banghead:

Agreed. Given the horrific paternalism that we've had historically then I think that any allies should be keen to make sure they are 'leading the way' on attitude of who might be given power over us, their behaviour and in making sure there are limitations and safeguards - mainly in order that...

Thanks I wish you luck and would be interested in any updates that you have

Hadn't heard of this and only had a quick scan through so far. After thinking of other things from reading comments here in reverse-chronological I then 'wondered': is this just about the situation that neither the name of CFS (or anything fatigue bla) nor ME (because medics use/see the 'there...

Yep they are saying ‘in people who can [edit: still] run a marathon competitively each week there is less MS so why aren’t these MS people just building themselves up to marathon running?’ Level of dumbness … and bigotry. sure the only difference between those lucky people with nothing wrong...

If they do - and I’d be worried about the ethics of it if there is risk of harm - I surely hope that at least gif MS (we seem to not matter to anyone) the measures must be proper randomised matched groups being followed up over long long time periods ie every year for 20yrs, with no ‘less than...

The typical how to tell a scientist from a thicko question: can you see that what you’ve tested and found is that the less ill people are able to do more or feel less tired. Or are you foolish enough to convince/delude yourself that factual obvious known doesn’t exist snd ‘just maybe faking it...

indeed - another issue with the fallacislly ‘sensible sounding’ (but flawed) pushing of ‘focus on treating symptoms’ (instead of understanding the overall and the pattern beneath which would involve you not treating patients with disdain and assuming what they sensibly describe is to be ignored...

Important stuff. I wish there weren't so many in the population who choose to be incapable of doing this and by being such xyz's do the worst harm imaginable(that I think you could do to anyone long term, it is so vile and immoral, not 'a debate' or 'a small thing' but fundamental and...

I'm going to get all boring and make it complicated but I think this tool for ME/CFS might be more interesting used in a different way than necessarily it is/just doing the 120s and taking an average. Following the obvious 'learning effect' ie where I'm rubbish geting my eye in for the first...

Was going to suggest rehydration tablets, glucose tablets or relevant sweets too but some have already got those. I used to have a bottle of oasis years ago but I think the sugar tax has affected these types of options, it has 10g of sugar for 250ml. I'm even sceptical a lot of the 'squashes'...

The manifesto justifying the 10-30% to write-off continues... I wonder what that number really is explained by and if it is 'in the mind/ideology/attitude ofthe neurologist' [perhaps truthfully 'post hoc justification' for sadly certain demographics or 'don't like the face of'], communication...