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YOu can see where the 'expect to diagnose FND in x out of 10 cases' idea came from then. This is like an 80-20 rule chart. That then goes on to say and of that 20% (61 patients) 30 you could spot by eye without tests. I'm curious given all that chart shows is what % they didn't diagnose with...

Do meditation that isn't proven to reduce stress, get lectured on to 'live better' without it sounds anything that makes that more possible (little evidence except maybe a select few targeted programmes where it is very specialist, non-psych for very specific conditions/situations being tackled...

And even if people do get their head around 'focusing on coping rather than looking for anything else to help', that in itself is shown up by the fact that these researchers have to lie about recovery rates/prognosis in order to coerce people 'yes that's the most sensible option dear' and block...

Here's the thing the liars don't tell you: it doesn't matter if you think about it or not, being in a financially precarious situation is the stressor and in real ie scientific psychology rather than the anti-mental-health psychosomatic trend you look at the situational first because - and this...

This is fascinating, thanks for the RER explanation of what the R numbers mean :)

Cruel and ethically difficult but given the other problem with those who end up in hospital terribly poorly is the interruption to rest/difficult environment with regards noise and light etc impacting absorption this would be interesting as would the effects of noise/lights and so on regarding...

Indeed - good to see these things being looked into and methods seeking to show this. What a relief. Plus, particularly if we begin to note this in relation to the methodological approach of e.g. CHalder-type stuff and BPS approaches expecting people to fill in goodness knows how many questions...

What might be interesting is if you imagine your 3rd para as a description of the spectrum of 'natural environments' people actually live under - and there will be some who have lives where those around them/the situation is kinder to ME/PEM/'pacing' - that measures are found that can both...

As someone who worked for years and was what would be termed as a dedicated workhorse, make sure you are getting it right by figuring out what is the right thing, not just box-ticking of doing something I cannot help but get totally polar opposite feels from the outlook and personal qualities...

Well encapsulated I’m glad the coercion that this ‘school’ is basically selling as a methodology and treatment has been well described and elucidated - you’d hope even these deluded authors could understand it in those terms. my next point is an issue where people are too forgiving of...

Indeed if everyone at the start of their diagnosis or any point of change health or situation-wise had someone to speak for them (because it isn’t just health that makes it impossible even to tell someone you know who might do it for you but the enormity of the task) - but plus a third party...

And the use of the phrase ‘optimism’ which has been used so toxically by many to close down those who are trying to describe a factual reality they want to delude by ‘reframing’ I think it has reminded me seeing this word how important it is that somehow we are able to take back ownership of...

I haven't been able to see full text but please tell me that the 'trial' of insomnia at least used... sleep trackers and not asking people 'whether they feel more positive about their insomnia' [after they've had x sessions persuading them 'why are you worried about not sleeping, given you are...

Even creepier: Starting to see that they are trying to use distortion of the old criteria to use 'Recovery Norway/LP' mislead by not giving people correct stats on their own condition - as should be their right - in order to mislead them in behaviour that harms most. It's like a diabetes unit...

Let’s remember the extreme words such individuals use to describe patients or their actions for what turned out to be eg putting in a FOI request or wanting to provide critique or feedback to an article or research as per other illness patients would be perceived as entitled and following normal...

Just same deluded stuff - how can the same people be able to involved in anything that takes pwme as patients when two years down the line they (the staff) still can’t think straight as exampled by utterly cannot get their head round how opposite snd false beliefs their thinking is - they werent...

OK I've now looked at the other Oxford service 'Oxford Health' which is for those moderate and severe: https://www.oxfordhealth.nhs.uk/me-and-cfs/your-care/ Here is their treatments section: This is a reversal of what is supposed to be happening. Where is the bit about someone's health...

hmm just to follow-on I've look at the PEM document for BACME ( https://bacme.info/wp-content/uploads/2022/05/BACME-Post-Exertional-Malaise.pdf ) and even that includes the same old tired not accurately nuanced bits: Things like the following just show a lack of seriousness or really getting it...

Just having a look at the Oxford services in relation to this advert. At OUH (there is another one) it is run by clinical psychologist anyway, with 2+ psych and a physio. https://www.ouh.nhs.uk/chronic-fatigue/treatment/ It says that their approach is in line with 'the Nice guideline' (and...

Just been reading the following news story: https://www.thetimes.co.uk/article/fears-of-bias-in-low-traffic-neighbourhoods-research-6x3j95mjm And all I could think of is this malarkey for FND with the same rotating what trio, quad and their trainees and contacts just churning out manifestos...