Search results

I don't/haven't had any direct experience but it seems worth flagging further afield as a question (maybe MEA could ask) given the context of it being awarded in April 2022 via this process. And thinking of previous notes elsewhere about how contracts can sometimes make it difficult for things...

Good article. Very much needed to be said. My few thoughts: - part of me wondered whether IAPT would 'eat itself' if going into more and more remote and scripted formats such as online with no person at all. Whereas the 'selling point' in CBT when debating it vs counselling was always that 'it...

Just looked up his constituency is North-East Cambridgeshire. It looks like Cambridge has a support group too but don't know much about that part of the world and whether that will likely cover it/have many from there. Or if they know him already to give an idea?

EXactly - remove ME (and any claims to guidelines and research not being debunked) and they really have nothing. It's just an exercise and think better house to send 'whoever' to that doesn't check what people have when they enter or monitor the safety or health of those once there. There is...

Can they in the interim change the patient cohort? And yes they need to work out how to get out of these things if there are renewal assumptions etc. and no changes in treatment are possible The only people these services seem safe for are those who don't have any health condition as far as I...

The picture I've picked up on from this - being ME-specific here is that it is the most ill that get told 'nothing for you' and the least that can access the services. And we all know that most once they realise what is on offer realise it will overall (inc travel) make them more ill as there is...

If it is the same one that was on the TV programme (trust me I'm a docor I think) then the phrase 'conditioned response' is something I mentally debate about whether it has either been stretched as a term or there is something else more strictly accurate. Given the drink was in fact medicine...

135day rule starts to sound even more important for charlatan-filtering. Could we come up with some catchy storytelling-style analogies for this one? I'm thinking there is material in the sector of hairdressers to cover a few of these effects

Indeed, just scary that the conclusion and abstract didn't underline absolutely with the side of common sense and history in their discussion of that 'non-finding'.

Thanks for confirming re: thread. Yes, that is certainly the impression coming through. Busy-work. I'd somehow missed the "was to allow the clinics to transition" confirmation I think but makes sense. I can't help read most of the many job descriptions, note the CBT or other specialism (CBT is...

This is a big issue I think in a broader sense. I'd like to see a thread on it in wherever the relevant place would be - noting this one is for services that individually can be addressed - discussing whether what we currently have is a set up where lots of the services saying they are for ME...

"nadir around August" I mean I can think of many illness-related reasons why it would be a certain point into peak or long terms that people would end up falling over, but I can't help but ask whether the researchers have accommodated for PHYSICIANS summer holidays. I know my dentists for...

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2770651 I think this is where people are trying to head in some areas. "Conclusions and Relevance The findings of this study suggest that improvements in clinical outcomes among participants randomized to placebo were not limited to...

Technically it is delay if you can complete more than you should have. I think it is easy to forget that normal people get signals from their body well before they are into a 'zone' that would lay them up for days+. Someone can't make themselves run a marathon fast enough to do enough damage, or...

Agree on the placebo being a bit of an emperors new clothes we've allowed them all to get away with for too long. No proof it is 'all in the mind of the patient', normally it is a trial effect - manipulation that requires and involves many people's behaviour, choices, set-ups and promises of...

It is incredibly naughty because those clinicians cannot speak for themselves, for all we know they could have thought it had been too soft on BPS. And I'm very sure that if the biomed side had inferred in the way these guys have then BPS would have noted that fact. Putting words in the mouths...

Keep the same people in, they do all this and then at best claim a 'compromise' AGAIN so at best you end up with BACME doing what they want. A load of money wasted on physios delivering motivating CBT about very little with no medical care - so basically ending up filling the clinic places they...

Wow. I mean we shouldn't be shocked at someone doing the right thing properly and taking it seriously, but it has been so bad for so long by so many

I've concluded from the number of these new jobs that seem to undermine the guideline that those in the current services genuinely believe that they are for them and all about them. And that nothing can move forward until they are cleared out. I feel so much less sympathy for any 'poor me'...

"One patient booklet, for example, informed patients: “You will experience a snowballing effect as increasing fitness leads to increasing confidence in your ability. You will have conquered CFS by your own effort and you will be back in control of your body again.”" And I think the other point...