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In most areas it also isn't marketing anymore - CMA guidelines would require them to evidence and be able to reference any claims made (and so they would have to be in pretty specific to what the data actually tested words)

If you think about people going into a trial optimistic that this could be 'the cure' for whatever horrendous thing they have, and told the fact that if they don't get x% and miss it by just 1% then it won't get to round 2 etc then I see it as 'trial effect' rather than placebo anyway. You'd...

And they are going to the same people for the solutions and diagnosis of issues. There must be some wise riddle for 'this' somewhere in history that someone who has that type of mind or interest can pick out - for a start you sort of need to know what jobs people currently do and want to in...

I've only just seen these posts but fascinated by this because - if your description of air hunger is right it is insightful and takes the timline back to where I assumed with more precision: I used to be an athlete I started getting an inability quite often to get a full breath and would sit...

http://www.darkhorses.com/7-Deadly-Sins-Dark-Horses.pdf I really like this and thought I would post it so that I didn't forget it and where it was from (an advertising agency called Dark Horses) It is about 7 deadly sins in marketing women's sport (including things like treating it like a...

Yeah. You can tell these are done by people who didn't pay attention in their psychology degree to disabuse their presumptions before either. I've had pain and I've had chronic itching (yes the afraid to go to sleep because without will you will scratch holes in your own skin level). Quite the...

I'm interested because the findings and drop-out data are stark. I think there needs to be a check (and if needed a campaign) whether 'implicit threats/nudges/warnings' exist and/or existed for those dumped into the various categories of ME, CFS, MUS, PPS and the like under a paradigm where 'nod...

Did they test cheddar? I've just read the abstract and noted Camembert which I thought was strange if the only comparator to then call 'general cheese' given it is soft cheese. Given my personal preferences I'd really be looking to confirm whether cheddar, particularly melted cheddar does me...

This is a very good point. There is a huge issue in giving such space to someone as if they can speak for those who are in a worse situation. Everyone has a right to deal with their own life psychologically in a way that works for them at that situation in time. To translate that to advice on...

I'd hope they weren't done on patients who were severe putting them on a treadmill. They might not, and the methodology would need to be significantly different - ie looking at essential ADLs exertion-wise rather than treadmills. This seems to be one area that @PhysiosforME was looking at with...

This makes me think, and rightly ask the question from a patient perspective: why on earth do we not have ME clinics that offer these as standard where applicable to the patient and measure the impact (those it works for and doesn't), probably along with other things that some report help them...

It feels like we are missing some measures doesn't it. We need objective, but then there is the issue of it not being a 2-day CPET (but that not being a great one to get people to do lots health-wise), or including the PEM/amount of PEM people are in before or after ie compensation. I think...

I'm not sure - it just makes me sad the limitations of how these trials might be read. A 14% increase in exercise tolerance over 40weeks, with an 11% interim indicates to me that (like a few other things) longer timescales, as well as, the improvement as it is is well-worth having. First 14%...

Don't apologise, I don't think that you can assume anything is uniquely one or the other - and even if it were those who chose to publish it as it is (or edited it to be that) with have done so because it fit their own needs so politics will be heavily involved/are not separable. "I am very...

Anyone smelling the selling of ACT just replacing CBT?

I find it unforgivable how seemingly easy it would have been for the NHS to have tried these out as relevant and sensible and to have collected logical and non-partisan case studies and data for each of these. By now we would have so many suggestions of what to go on Instead everyone's truth...

I get exactly the same thing and always have for many years. My calves through to under shin bones have always been the most regular for the totally inflamed muscle, shoulders/neck potentially too (although that could be other things, where the calves was so distinctive when it first started as...

It has suddenly struck me that one upshot of not providing clarity regarding the service is that people 'sign-up/go along' to find out it is something that would not be useful. 1. Does this mean that the service 'gets paid' even if people only go for one appointment? EDIT* and by this I mean...

I'm incredibly sensitive to anything not soft enough and it has to be cotton (temperature). This is to the point that I've had sheets in the past that even when they were ironed would leave my legs red from them moving over them during the night. I used to buy the highest count House of Fraser...

TMJ seems a random one to throw in there for them. What do the dentists that often deal with that think of it? But yes this comes across as poisonous diatribe from someone with a certain attitude towards certain types of people who has an axe to grind trying to justify it all. All very...